Chronic nonbacterial prostatitis/chronic pelvic pain syndrom
Discussion
I have been diagnosed with it a few years back,
Literally it’s a pain in the balls sometimes. I get a full ache in the groin area, kinda only way to describe it is someone has kicked you in the balls. It’s quite deliberating to be honest and people think you’re making it up. Also I had a recent bout of it for a few weeks where when I peed and I dried myself, my bellend would hurt-very odd.
I have had it on and off for 4 years now and had two cystoscophys and samples taken from my prostate and although it was inflamed it’s nothing sinister. From time to time I got though a few days of ridiculous amounts of peeing load, I mean loads. I do have mild traces of blood (not noticeable) in my wee, but it’s okay. My private GP can do a 24hr Urine test for sensible money which is reassuring if I am worried and my consultant is contactable via email and I can normally see him within a week. I have a PSA once a year too as part of blood test - bear in mind any vigorous exercise and also a bit of “action” a couple of days before can elevate PSA.
Dealing with it there is nothing I have found to relieve the pain. Stress does have a huge impact on how it affects you if have this condition. No medication has helped me, but everyone is different.
Have you seen a consultant?
Literally it’s a pain in the balls sometimes. I get a full ache in the groin area, kinda only way to describe it is someone has kicked you in the balls. It’s quite deliberating to be honest and people think you’re making it up. Also I had a recent bout of it for a few weeks where when I peed and I dried myself, my bellend would hurt-very odd.
I have had it on and off for 4 years now and had two cystoscophys and samples taken from my prostate and although it was inflamed it’s nothing sinister. From time to time I got though a few days of ridiculous amounts of peeing load, I mean loads. I do have mild traces of blood (not noticeable) in my wee, but it’s okay. My private GP can do a 24hr Urine test for sensible money which is reassuring if I am worried and my consultant is contactable via email and I can normally see him within a week. I have a PSA once a year too as part of blood test - bear in mind any vigorous exercise and also a bit of “action” a couple of days before can elevate PSA.
Dealing with it there is nothing I have found to relieve the pain. Stress does have a huge impact on how it affects you if have this condition. No medication has helped me, but everyone is different.
Have you seen a consultant?
Thanks for the reply mate. Sorry to read about your difficulties. I know exactly what you mean about the kicked in the balls feeling.
Yes, I’ve been diagnosed with it (this month). I first experienced symptoms about a decade ago but initially only had bouts of it for about 5 days per year so no big deal. It was at the time misdiagnosed as a varicocele (and so not treated).
During the last year it’s rapidly got worse and it effects me pretty much all day every day. I’ve been prescribed strong anti inflammatories (which I’ve just finished) and A blockers to relax my prostate (half way through those). There’s been no real improvement so I’m considering the rest of my life from a pretty bleak perspective to be honest.
Do your symptoms come and go from month to month, or do you have this every day?
Yes, I’ve been diagnosed with it (this month). I first experienced symptoms about a decade ago but initially only had bouts of it for about 5 days per year so no big deal. It was at the time misdiagnosed as a varicocele (and so not treated).
During the last year it’s rapidly got worse and it effects me pretty much all day every day. I’ve been prescribed strong anti inflammatories (which I’ve just finished) and A blockers to relax my prostate (half way through those). There’s been no real improvement so I’m considering the rest of my life from a pretty bleak perspective to be honest.
Do your symptoms come and go from month to month, or do you have this every day?
What treatment have you had since they diagnosed it to keep it down to 4-5 weeks in the year?
That’s a ratio I’d take right now - I’ve been like this every day for the last 7 months.
I was diagnosed on the basis of a digital exam and my description of symptoms. A blockers and anti-inflamatories aren’t doing the trick though.
Have you ever had a local anaesthetic injection for this?
Sorry for all the questions.
Cheers
That’s a ratio I’d take right now - I’ve been like this every day for the last 7 months.
I was diagnosed on the basis of a digital exam and my description of symptoms. A blockers and anti-inflamatories aren’t doing the trick though.
Have you ever had a local anaesthetic injection for this?
Sorry for all the questions.
Cheers
No private healthcare but it’s a consultant urologist who has diagnosed me. I’ve been prescribed more A blockers to see if it settles. If it doesn’t I’m struggling to imagine every day being like this. I’ll give it a bit of time, try to man up and then consider more extreme options if there’s no change. Everything I read seems pretty bleak though.
Removal of the prostate apparently only has around a one third success rate once the prostatitis symptoms are set in to the surrounding tissues.
I note that neural therapy claims to have had success by numbing the nerves but it’s not mainstream in the UK and seems to be considered to be qwakish.
Removal of the prostate apparently only has around a one third success rate once the prostatitis symptoms are set in to the surrounding tissues.
I note that neural therapy claims to have had success by numbing the nerves but it’s not mainstream in the UK and seems to be considered to be qwakish.
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