Anyone with experience of treatment for ADHD as an adult?
Anyone with experience of treatment for ADHD as an adult?
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Discussion

Kermit power

Original Poster:

29,622 posts

242 months

Monday 6th July 2020
quotequote all
Having just been diagnosed with this myself, I'd be interested in hearing the experiences of others.

Did the drugs work? What did "working" look/feel like? Were there any side effects? etc....

Cheers in advance for any input. smile

Heartworm

1,938 posts

190 months

Monday 6th July 2020
quotequote all
can I Ask how you got a diagnosis for this.

Ive been told a few times I have a lot of the symptoms, and when mentioned looking back at old school reports and even uni I can see how I could meet the criteria.

Kermit power

Original Poster:

29,622 posts

242 months

Monday 6th July 2020
quotequote all
Heartworm said:
can I Ask how you got a diagnosis for this.

Ive been told a few times I have a lot of the symptoms, and when mentioned looking back at old school reports and even uni I can see how I could meet the criteria.
A slightly convoluted story!

My teenage daughter has been really struggling with lockdown, and actually managed to research what she was feeling and came up with her own diagnosis of ADHD for herself. It sounded pretty credible to me, so I booked a GP appointment for her, on which she actually educated the GP about the different types of the disorder to the point where she agreed to provide a referral for psychiatric assessment even though her immediate reaction had been basically "it can't be ADHD because you're not bouncing off the walls".

I paid to go private for the assessment to speed the process up, and my daughter asked me to sit in with her for support.

By the end of the assessment, he confirmed that my daughter's self assessment had been absolutely spot on, and I knew 100% that exactly the same applied to me, so the following morning I got on to my health insurers at work, told them all the above and said I wanted the same assessment for me. They agreed, the assessment was last week and the diagnosis was the same.

I'm now just waiting for the formal report to go back to the insurer to then move on to the treatment phase.

It cost me £700 to have my daughter assessed, which did sting a bit, but it's such an accelerant that I feel like it's probably the best money I'll ever spend for her. If you go through the NHS route, you may well get to the same diagnosis eventually, but it seems you're looking at 18-24 months. Having done that part privately, the GP has arranged the ECG and other tests before my daughter can be prescribed medication (it is basically speed after all!!), the psychiatrist will provide the initial prescription, and then the GP will take ownership of the process thereafter under the NHS again, so we shouldn't have any ongoing costs.

anxious_ant

2,626 posts

108 months

Monday 6th July 2020
quotequote all
Diagnosed as an adult and have to say it wasn't easy...

I'm on Concerta XL (methylphenidate) 25mg which I take weekdays. Works well.
Years ago I was put on short course of Dexamphetamine and that somehow helped my depression too. However the "crash" that I had just didn't work out.

Heartworm

1,938 posts

190 months

Monday 6th July 2020
quotequote all
Kermit power said:
A slightly convoluted story!

My teenage daughter has been really struggling with lockdown, and actually managed to research what she was feeling and came up with her own diagnosis of ADHD for herself. It sounded pretty credible to me, so I booked a GP appointment for her, on which she actually educated the GP about the different types of the disorder to the point where she agreed to provide a referral for psychiatric assessment even though her immediate reaction had been basically "it can't be ADHD because you're not bouncing off the walls".

I paid to go private for the assessment to speed the process up, and my daughter asked me to sit in with her for support.

By the end of the assessment, he confirmed that my daughter's self assessment had been absolutely spot on, and I knew 100% that exactly the same applied to me, so the following morning I got on to my health insurers at work, told them all the above and said I wanted the same assessment for me. They agreed, the assessment was last week and the diagnosis was the same.

I'm now just waiting for the formal report to go back to the insurer to then move on to the treatment phase.

It cost me £700 to have my daughter assessed, which did sting a bit, but it's such an accelerant that I feel like it's probably the best money I'll ever spend for her. If you go through the NHS route, you may well get to the same diagnosis eventually, but it seems you're looking at 18-24 months. Having done that part privately, the GP has arranged the ECG and other tests before my daughter can be prescribed medication (it is basically speed after all!!), the psychiatrist will provide the initial prescription, and then the GP will take ownership of the process thereafter under the NHS again, so we shouldn't have any ongoing costs.
That’s very interesting to read, my wife mum has had sons training in recognising these things in children and has always said that I’ve down many symptoms, as a result I did the ASRS forms which have pretty high results, I know it’s commonly diagnosed when younger (I’m 35) but there were things going on when I was at the age it’s commonly picked up up.

My work provide us with health cover but never thought it would be included so thanks for letting me know.

I hope all the best for you and your daughter, Hopefully caught it early enough to be a benifit to your daughter and it makes things easier for yourself.

sbarclay62

945 posts

86 months

Wednesday 15th July 2020
quotequote all
I posted similar a few months back, the thread might be worth a read >https://www.pistonheads.com/gassing/topic.asp?h=0&t=1869134&mid=583312

This morning actually phoned my doctor back for an update. I went to see her in end of Feb to speak about this. She said nhs psychiatrist dept will be in touch then lockdown happened and i've heard nothing back. Waiting on a phone call from her to see what happens next.

I done 20 minutes off an online lecture this morning and I felt burst when I came off the laptop. Headache, dry throat, urge to get up and walk. I'd be aswell as pressing play on the lecture then turning the monitor off and dissappearing for 20 minutes as not one single bit of information entered and stuck in my brain.

Job38

1,973 posts

265 months

Wednesday 15th July 2020
quotequote all
Similar situation, recently diagnosed at 52!

I used Dr Helen Read https://www.adhdconsultancy.co.uk

Prescribed Lisdexamfetamine, but unable to get my GP to undertake cardio checks!

Some useful resources:

https://www.additudemag.com

Great podcast by https://ihaveadhd.com/category/kristen-carder/

Kermit power

Original Poster:

29,622 posts

242 months

Wednesday 15th July 2020
quotequote all
That's really helpful, thanks!

gooner1

10,223 posts

208 months

Wednesday 15th July 2020
quotequote all
sbarclay62 said:
I posted similar a few months back, the thread might be worth a read >https://www.pistonheads.com/gassing/topic.asp?h=0&t=1869134&mid=583312

This morning actually phoned my doctor back for an update. I went to see her in end of Feb to speak about this. She said nhs psychiatrist dept will be in touch then lockdown happened and i've heard nothing back. Waiting on a phone call from her to see what happens next.

I done 20 minutes off an online lecture this morning and I felt burst when I came off the laptop. Headache, dry throat, urge to get up and walk. I'd be aswell as pressing play on the lecture then turning the monitor off and dissappearing for 20 minutes as not one single bit of information entered and stuck in my brain.
Link not working s.

PurpleTurtle

8,859 posts

173 months

Wednesday 15th July 2020
quotequote all
No experience personally, but at 48 a friend I've known since i was 12 has just been diagnosed and it came as no surprise, not that I knew there was an 'adult' condition beforehand.

Interested to follow the thread as this guy has basically lost everything (wife/kid/home) all he thinks largely attributable to behaviour caused by his condition, I'm trying to be a supportive old friend but don't really know where to start understanding it.

halo34

2,890 posts

228 months

Thursday 16th July 2020
quotequote all
Threads been useful.

It’s had serious consequences on my life

Kermit power

Original Poster:

29,622 posts

242 months

Thursday 16th July 2020
quotequote all
gooner1 said:
sbarclay62 said:
I posted similar a few months back, the thread might be worth a read >https://www.pistonheads.com/gassing/topic.asp?h=0&t=1869134&mid=583312

This morning actually phoned my doctor back for an update. I went to see her in end of Feb to speak about this. She said nhs psychiatrist dept will be in touch then lockdown happened and i've heard nothing back. Waiting on a phone call from her to see what happens next.

I done 20 minutes off an online lecture this morning and I felt burst when I came off the laptop. Headache, dry throat, urge to get up and walk. I'd be aswell as pressing play on the lecture then turning the monitor off and dissappearing for 20 minutes as not one single bit of information entered and stuck in my brain.
Link not working s.
It works for me if you copy and paste it. Try this!

Kermit power

Original Poster:

29,622 posts

242 months

Thursday 16th July 2020
quotequote all
PurpleTurtle said:
No experience personally, but at 48 a friend I've known since i was 12 has just been diagnosed and it came as no surprise, not that I knew there was an 'adult' condition beforehand.

Interested to follow the thread as this guy has basically lost everything (wife/kid/home) all he thinks largely attributable to behaviour caused by his condition, I'm trying to be a supportive old friend but don't really know where to start understanding it.
Halo34 said:
Threads been useful.

It’s had serious consequences on my life
Sorry to hear that. frown

The more I read into it, and other people's experiences, the more I realise how lucky I am to have been able to cope with life up to now as well as I have. Of course it would've been nice to know about it 30+ years ago, but I've still got a very good job, loving wife, nice kids etc. It's just been much harder work than maybe it needed to be, but I didn't know that at the time, so thought it was just life!!

The main thing for me is that we've caught it for my daughter, as she has definitely been hit much harder by it than I have, and the thought of what it might've done to her (and, not being complacent, absolutely still could) just doesn't bear thinking about.

Chamon_Lee

3,948 posts

176 months

Thursday 16th July 2020
quotequote all
I posted a reply on a different thread regarding this topic, I can't tell you from my own perspective but my wife is on the medication and she seems like a different person. So much more able and independant.

Its been brilliant for us, it takes time to get on the meds and get the right dose set up, all in it was around 5 months from the first pill she took but its been brilliant for her.


gooner1

10,223 posts

208 months

Thursday 16th July 2020
quotequote all
Kermit power said:
gooner1 said:
sbarclay62 said:
I posted similar a few months back, the thread might be worth a read >https://www.pistonheads.com/gassing/topic.asp?h=0&t=1869134&mid=583312

This morning actually phoned my doctor back for an update. I went to see her in end of Feb to speak about this. She said nhs psychiatrist dept will be in touch then lockdown happened and i've heard nothing back. Waiting on a phone call from her to see what happens next.

I done 20 minutes off an online lecture this morning and I felt burst when I came off the laptop. Headache, dry throat, urge to get up and walk. I'd be aswell as pressing play on the lecture then turning the monitor off and dissappearing for 20 minutes as not one single bit of information entered and stuck in my brain.
Link not working s.
It works for me if you copy and paste it. Try this!
thumbup