Arthritis - new drug
Discussion
I did search for an existing thread but nothing seemed right.
I just took delivery of my new drug YUFLYMA which is a fortnightly injection. This will hopefully lead to me dropping Methotrexate later in the year.
Wondered if anyone else has used it? It's referred to as a 'biological'.
Fingers crossed it helps.
I just took delivery of my new drug YUFLYMA which is a fortnightly injection. This will hopefully lead to me dropping Methotrexate later in the year.
Wondered if anyone else has used it? It's referred to as a 'biological'.
Fingers crossed it helps.
Thanks for that. My RA consultant mentioned she was considering it about 18 months ago, then in latev25 she said it was the way to go and they did the funding request, which was approved earlier in the year.
She's pretty optimistic about the benefits ans I can immediately drop one of my drugs. (Sulfasalazine) which I'm keen to do.
She's pretty optimistic about the benefits ans I can immediately drop one of my drugs. (Sulfasalazine) which I'm keen to do.
I'm surprised the NHS didn't offer it to you sooner, I know it's because of the expense. Although I think the expense is coming down since the original drug companies license on that drug expired. Humira I think.
I used to take Humira in the UAE - it used to be AED 13,500 per box, 2 injections, so 1 months worth. AED 13,500 was equivalent to around £2,000 at that point - £2,000 per month for the injections :0
it was all done though private insurance
I used to take Humira in the UAE - it used to be AED 13,500 per box, 2 injections, so 1 months worth. AED 13,500 was equivalent to around £2,000 at that point - £2,000 per month for the injections :0
it was all done though private insurance
Prisoner 24601 said:
Best of luck with it - I would imagine your body reacting very well to this. I think it is a miracle drug.
This. I use it too but also with a low weekly dose of methotrexate. Been on it (adalimumab, in it's various guises- started on Humira) for about 9 years and it has changed my life. I recall it making an immediate impact too, within a few hours of the first injection.The Grouch said:
I recall it making an immediate impact too, within a few hours of the first injection.
It's very strange. 24 hours since the first dose and I genuinely feel better. Difficult to express exactly how but I feel somehow a little, I'm....leaner in the areas the RA tends to affect with me. Hands, wrists, hips and ankles. It may well be some sort of placebo effect but I went to my pilates reformer class last night and the instructor commented on my performance being better than usual.Very curious, but positive.
The jab is of no consequence to me being a twice a day insulin user.
That's great news.
In my case it definitely wasn't a placebo effect. I had a new born baby at home and was struggling with my hands and was also in pain just walking (I had issues with the outsides of my feet). Walking became literally painless the same day and everything else got better soon after.
I suffered with tiredness before starting on humira. Often getting in from work at 6pm and sleeping right through until 7am the next day. Once on humira that seemed to get better, though with some tiredness in the 24 hours after injection. That has gone away now too.
Hope all continues to get better for you. I was in a bad place before getting this drug.
In my case it definitely wasn't a placebo effect. I had a new born baby at home and was struggling with my hands and was also in pain just walking (I had issues with the outsides of my feet). Walking became literally painless the same day and everything else got better soon after.
I suffered with tiredness before starting on humira. Often getting in from work at 6pm and sleeping right through until 7am the next day. Once on humira that seemed to get better, though with some tiredness in the 24 hours after injection. That has gone away now too.
Hope all continues to get better for you. I was in a bad place before getting this drug.
I'm now almost a week into this.
I feel so much better! Certainly didn't expect this as I hoped for a gradual improvement. Walked the dogs yesterday twice as far as usual with hips and ankles so much free moving.
It's like you've had a dull headache for ages, take a paracetamol and then you suddenly notice it's gone.
Reducing my tablet intake by 28 a week is also a step in tge right direction. (Sulfasalazine)
I feel so much better! Certainly didn't expect this as I hoped for a gradual improvement. Walked the dogs yesterday twice as far as usual with hips and ankles so much free moving.
It's like you've had a dull headache for ages, take a paracetamol and then you suddenly notice it's gone.
Reducing my tablet intake by 28 a week is also a step in tge right direction. (Sulfasalazine)
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