Declining CT scan - straight to treatment plan
Declining CT scan - straight to treatment plan
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fish butty

Original Poster:

3 posts

1 month

Has anyone declined a CT scan (with contrast) on the basis of radiation exposure - was there any pushback? The medical issue has already been diagnosed by what's considered the gold standard method according to what I've read online

simon_harris

2,915 posts

61 months

I was diagnosed with follicular lymphoma from an excisional biopsy, in order t fully understand the extent of the spread I needed a CT scan with contrast to show if I had any other enlarged nodes that were not obvious to look or feel, and about 5 more were discovered that could not have been discovered without a scan of some sort.

dundarach

6,148 posts

255 months

Unless you've a very robust argument, or you're paying, I'm not sure it's such a good idea, will it not just bump you and make everyone think you're a problem.

I don't know anything, but tend to do as I'm told, so what do I know.

Mr Pointy

13,190 posts

186 months

fish butty said:
Has anyone declined a CT scan (with contrast) on the basis of radiation exposure - was there any pushback? The medical issue has already been diagnosed by what's considered the gold standard method according to what I've read online
Which part of the body & have you have other CTs already? You may have been diagnosed but can you be sure they found everything?

simon_harris

2,915 posts

61 months

the amount of "extra" radiation you are getting is tiny anyway, without question worth the amount of additional information it will give to your diagnosis.

fish butty

Original Poster:

3 posts

1 month

Mr Pointy said:
Which part of the body & have you have other CTs already? You may have been diagnosed but can you be sure they found everything?
It's an airway scar causing the airway to close up. Doctor wants to do a full chest and throat scan but they've seen the scarring on scope. If it's anything more than a scar they will notice that during surgery? Just questioning if the CT is completely necessary given the radiation

Mr Pointy

13,190 posts

186 months

simon_harris said:
the amount of "extra" radiation you are getting is tiny anyway, without question worth the amount of additional information it will give to your diagnosis.
Actually it isn't if you look it up. A chest CT is equivalent to 3.6 years of background radiation & comes with a 1 in 2500 lifetime additional risk of a fatal cancer. It's not negligible.

bmw5921

13 posts

164 months

Hi I am a thoracic surgeon with an interest in the airway. While most diagnoses can be made with a scope ( namely bronchoscopy in your situation) CT scan is a useful adjunct, especially if surgery to cut out the scar is contemplated or looking for causes of the scarring not evident on biopsy. Radiation doses for CT chest are smaller these days but you are right to be concerned, however, I would think the risks are very small compared to the benefits of the information the CT scan may provide, even if it is negative.

simon_harris

2,915 posts

61 months

Mr Pointy said:
simon_harris said:
the amount of "extra" radiation you are getting is tiny anyway, without question worth the amount of additional information it will give to your diagnosis.
Actually it isn't if you look it up. A chest CT is equivalent to 3.6 years of background radiation & comes with a 1 in 2500 lifetime additional risk of a fatal cancer. It's not negligible.
I did look it up, 2-3 years of background for a normal dose chest CT, and your 1 in 2500 chance of cancer is about the same as 99.95% chance of not getting cancer. As I said, generally worth the tiny amount of additional risk.

ChevronB19

8,653 posts

190 months

Mr Pointy said:
simon_harris said:
the amount of "extra" radiation you are getting is tiny anyway, without question worth the amount of additional information it will give to your diagnosis.
Actually it isn't if you look it up. A chest CT is equivalent to 3.6 years of background radiation & comes with a 1 in 2500 lifetime additional risk of a fatal cancer. It's not negligible.
The average background radiation in the UK is 2.7 mSv (millisieverts) per year. The nuclear worker limit is 20 mSv. Both are effective dose.

It will be fine, the additional risk is negligible. If you’re really concerned, ask about equivalent dose to the organs being targeted.

Edited by ChevronB19 on Tuesday 7th July 13:27

CrgT16

2,500 posts

135 months

Not to be underestimated but if it helps achieve better diagnosis/treatment or surgical planning then you have to think about pros and cons.

A CT chest is less radiation than a yearly exposure to radon if you live in Cornwall.

Meaning, in terms of radiation if you live in Cornwall you are getting the same amount of extra radiation as CT chest every year.

ChevronB19

8,653 posts

190 months

CrgT16 said:
Not to be underestimated but if it helps achieve better diagnosis/treatment or surgical planning then you have to think about pros and cons.

A CT chest is less radiation than a yearly exposure to radon if you live in Cornwall.

Meaning, in terms of radiation if you live in Cornwall you are getting the same amount of extra radiation as CT chest every year.
True, but there is a difference between effective dose and equivalent dose.

Steve Campbell

2,376 posts

195 months

…and the equivalent of about 50 return trips to New York (so long haul pilots are getting that level of dosage every year at least for the duration of their careers).

OIC

406 posts

20 months

A one off CT is not a major risk to most people.

For some, genetically predisposed to certain cancers, it is.

The radiation dose is significant, but so is the level of information gained.

Ask if they can do an MRI instead if you are worried.

Not as useful for calcification and scarring, but not currently thought to be harmful.

You're the patient.

Your treatment is your decision, guided (non-directively) by the medics.

You have every right to voice your concerns.

simon_harris

2,915 posts

61 months

look at it this way - you have someone who is going to operating on your throat and by not having this scan you are depriving them of useful additional information about how that op might go, if they find nothing extra then great they know what they are dealing with is what they have already seen, if the problem is deeper then they know about it before they go in and it might even change what or how they plan to do it. Not having the information raises the possibility that they open you up and find something they don't expect and is more complicated to deal with than planned.

for me it is a no brainer and I say that as someone who had (multiple) CT and PET scans with actual cancer.

ucb

1,111 posts

239 months

Also consider that airway narroiwng will often require repeated operations with the attendant risks of each operation. There's also the suggestion that repeated anaesthetic exposure will increase your lifetime risk of dementia.

Basing a decision on an isolated statistic is often not helpful in Medicine. But as stated above, discuss it with your specialist