Thanks for nothing NHS!
Discussion
As some of you will know, I have been suffering from Psoriatic Arthritis for around 6 years. Since being diagnosed I have been seeing a specialist every six months (which simply meant him checking to see which tablet he could raise the doseage for), blood tests every month and up to 30 (no, not a typo, 30) tablets per day.
After a couple of years of stomach problems, which have been more or less ignored by my Doctors, and knowing full well that something other than Arthritis was going on I took some action of my own.
A diet which meant eating only rice, peas, sweetcorn and non-citrus fruit, then the gradual trying-out of different foods. After a month of being pissed off with rice I have discovered that I have developed an intolerance for milk (Lactose to be exact).
After just a month I yesterday carried my wife around the house! Two months ago I was using a bloody wheelchair...........
Anyway, bollox to 'em, thanks to all for keeping me laughing when I have really been feeling like shite.
I will soon be heading for some mountains as soon as my legs get used to walking again......3 years in a wheelchair has also given me some back problems, but compared to how I have been feeling they are roughly equal to a slightly itchy arse.
Have a great Christmas, I've already had the best present I'm likely to get!
After a couple of years of stomach problems, which have been more or less ignored by my Doctors, and knowing full well that something other than Arthritis was going on I took some action of my own.
A diet which meant eating only rice, peas, sweetcorn and non-citrus fruit, then the gradual trying-out of different foods. After a month of being pissed off with rice I have discovered that I have developed an intolerance for milk (Lactose to be exact).
After just a month I yesterday carried my wife around the house! Two months ago I was using a bloody wheelchair...........
Anyway, bollox to 'em, thanks to all for keeping me laughing when I have really been feeling like shite.
I will soon be heading for some mountains as soon as my legs get used to walking again......3 years in a wheelchair has also given me some back problems, but compared to how I have been feeling they are roughly equal to a slightly itchy arse.
Have a great Christmas, I've already had the best present I'm likely to get!
Superflid - that is excellent news. I have also had a similar situation - was diagnosed with Palindromic Rheumatism and offered anti-malarials and steroids. Decided to try and treat it myself with diet - sounds similar to yours - no citrus fruit, potato, alcohol, wheat, sugar - although I can have dairy products. Does make a difference although the diet is really hard to stick to.
Here's to 2003.
Here's to 2003.
That is fantastic news Superflid! 
... Mum has been wrapped up in bandages for various (far to easily)injured joints over the past three years. It's got to the point now where even the private doctors have decided to stop using NU's money to fix the symptoms and begin to look for and treat an underlying cause.
Maybe this is a good place to start. Where did you find out about the diet? I'll aim the "Old Saddlebag" in that direction, and maybe things might become easier for her too...
...here's hoping.
Good luck and enjoy the turkeyfest (if you're allowed to
)
Mouse
... Mum has been wrapped up in bandages for various (far to easily)injured joints over the past three years. It's got to the point now where even the private doctors have decided to stop using NU's money to fix the symptoms and begin to look for and treat an underlying cause.
Maybe this is a good place to start. Where did you find out about the diet? I'll aim the "Old Saddlebag" in that direction, and maybe things might become easier for her too...
...here's hoping.
Good luck and enjoy the turkeyfest (if you're allowed to
) Mouse
If you feel up to it, later on next year, I want to do a treck into wales for driving eating and rock climbing: I see from your profile that's your bag.
Obviously open to anyone, Mungo may remember talking with me about it in the dim and distant.
The previously mentioned "Old Saddle Bag" is a climbing instrutor, and pysically unstoppable. Seems to make sense that she likes to climb unmovable objects. She will come along and use us mercilessly to gain quality mountain days.
I hope you recover fully an quickly, and are able to start to pursue your previous adventures.
Obviously open to anyone, Mungo may remember talking with me about it in the dim and distant.
The previously mentioned "Old Saddle Bag" is a climbing instrutor, and pysically unstoppable. Seems to make sense that she likes to climb unmovable objects. She will come along and use us mercilessly to gain quality mountain days.
I hope you recover fully an quickly, and are able to start to pursue your previous adventures.
That is unreal - NHS are 
beyond useless at time - how much have they spent on your treatment and for what - For you to take control of the situation do some research and take control of your condition and with what - sodding diet - well done - who was it said 'that which does not kill you can only make you stronger' - just keep getting stronger - Have a good Christmas
beyond useless at time - how much have they spent on your treatment and for what - For you to take control of the situation do some research and take control of your condition and with what - sodding diet - well done - who was it said 'that which does not kill you can only make you stronger' - just keep getting stronger - Have a good ChristmasThanks for all the support, it has helped a great deal!
Danger Mouse, the website I got the diet from is
www.vegsource.com/klaper/nutrition.htm
Hope it helps! As for a meet in Wales, put my name down.... If things improve as they have been doing, I will be up for a stroll at the very least.
Danger Mouse, the website I got the diet from is
www.vegsource.com/klaper/nutrition.htm
Hope it helps! As for a meet in Wales, put my name down.... If things improve as they have been doing, I will be up for a stroll at the very least.
You aint the first person i know who this has happened to mother had same problem for 5 years.Now they have sorted out the origional problem she has to take aload of tablets to sort out the problems the origional tabs caused.
Congratulations and hope you have a full and speedy recovery
merry xmas
Congratulations and hope you have a full and speedy recovery
merry xmas
Fantastic news mate! F*ck presents, it's stuff like this that really matters!
Does that mean you'll be spending more time up the North West of Scotland then? Don't forget the pieshop
Secondhand TVRs are pretty cheap at the moment
Damn it's been a good couple of days - first Madcop back as binned, then with full moniker, now this! Warms the cockles of me heart it does!
Does that mean you'll be spending more time up the North West of Scotland then? Don't forget the pieshop
Secondhand TVRs are pretty cheap at the moment
Damn it's been a good couple of days - first Madcop back as binned, then with full moniker, now this! Warms the cockles of me heart it does!
"THANKS FOR NOTHING NHS!"
I'm glad to hear about anybody getting better from any kind of infirmity, but I for one am going to have to object to the title of this thread.
Like everything else in life the NHS, and the people who work in it, are not perfect. It's a shame that your treatment took the wrong track, but for a huge number of other people the NHS works extremely well
John
I'm glad to hear about anybody getting better from any kind of infirmity, but I for one am going to have to object to the title of this thread.
Like everything else in life the NHS, and the people who work in it, are not perfect. It's a shame that your treatment took the wrong track, but for a huge number of other people the NHS works extremely well
John
I'm sure you are right John, but along with the rest of the story how about this!
Yesterday I finally got an appointment to be assessed for a NHS electric wheelchair. Perfect timing........ Not bad after 3 years and spending money, which could have gone on a decent car, buying one myself......
Anyway, have a great holiday
Edited to add, Mungo - let's do it! (OOHH ERRR MRS!)
>> Edited by Superflid on Tuesday 24th December 18:35
Yesterday I finally got an appointment to be assessed for a NHS electric wheelchair. Perfect timing........ Not bad after 3 years and spending money, which could have gone on a decent car, buying one myself......
Anyway, have a great holiday
Edited to add, Mungo - let's do it! (OOHH ERRR MRS!)
>> Edited by Superflid on Tuesday 24th December 18:35
johnelliott said: "THANKS FOR NOTHING NHS!"
I'm glad to hear about anybody getting better from any kind of infirmity, but I for one am going to have to object to the title of this thread.
Like everything else in life the NHS, and the people who work in it, are not perfect. It's a shame that your treatment took the wrong track, but for a huge number of other people the NHS works extremely well
John
It's easy to knock the whole system for the shortcoming of one part. It isn't fair - without the outstanding skills of one part of the NHS Mrs Hutch wouldn't be with us.
Without doubt the NHS is not perfect. I don't think it is, nor should any reasonable person consider it, or expect it, to be so. However the lack of a locally accessible level of high quality healthcare continues to undermine the confidence of those using the service. Quality is patchy, regional centers have it but others don't.
It doesn't matter how much the Government bleat about rising NHS investment in real terms, accessibility to local, high quality, consistent healthcare is further away that ever before.
In the great part, doctors, pharmacists, nurses and other healthcare professionals do an outstanding job. With a few exceptions it is the system that lets them done - not the people themselves.
If you have a specific grievance with the treatment you obtained, then make a complaint through the proper channels. That way there is a chance that you will positively influence the clinical outcome of others.
We're all delighted you're better and we hope that this situation continues. But there is no retribution to be had through posting your NHS grievance on Pistonheads, without directing that energy back into the system that you believe let you down.
Hutch
Superflid said: I'm sure you are right John, but along with the rest of the story how about this!
Yesterday I finally got an appointment to be assessed for a NHS electric wheelchair. Perfect timing........ Not bad after 3 years and spending money, which could have gone on a decent car, buying one myself......
Anyway, have a great holiday
Edited to add, Mungo - let's do it! (OOHH ERRR MRS!)
>> Edited by Superflid on Tuesday 24th December 18:35
I'm sure that I will make no freinds at all with the following comment, but why should the NHS supply you with an electric wheel chair so as to free up cash for a "decent Car" when the service is underfunded and streched to breaking point? I am however extremely pleased that your health is improving, long may it continue, happy Christmas, Simon.
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