Discussion
Who suffers from it and who can offer some help?
I've found the only thing that offers me any relief is topical steroids (Dermovate and Betnovate). If I use them over a 2 week period, it clears up completely but as soon as I stop, it comes back more aggressive than ever. Every day I find a new patch and I just find it disheartening.
I've also tried a course of Methotrexate on the understanding it helped a lot of people. All it did for me was bring out more and more patches, particularly on my feet.
I've tried lots and lots of various diets but nothing has ever really been sucessful. I have found though, that if I avoid alcohol, the symptoms will be lessened but they are still there.
As any fellow sufferrer will know, it's no fun constantly scratching yourself until you bleed. All I want is to be able to go onto the beach in my shorts and T-shirt without people pointing and staring.
I've found the only thing that offers me any relief is topical steroids (Dermovate and Betnovate). If I use them over a 2 week period, it clears up completely but as soon as I stop, it comes back more aggressive than ever. Every day I find a new patch and I just find it disheartening.
I've also tried a course of Methotrexate on the understanding it helped a lot of people. All it did for me was bring out more and more patches, particularly on my feet.
I've tried lots and lots of various diets but nothing has ever really been sucessful. I have found though, that if I avoid alcohol, the symptoms will be lessened but they are still there.
As any fellow sufferrer will know, it's no fun constantly scratching yourself until you bleed. All I want is to be able to go onto the beach in my shorts and T-shirt without people pointing and staring.
Yep i'm a sufferer myself, have had it since 17, i'm using dipro salic and find that it makes the itchyness stop and takes the scaley look off it, diet is a strange one, heard wonders about going gluten free diet but i like bread so i kinda eat what i want,
Best thing for me is sun, get the arms and legs out and get the rays on it, i no it's hard when people look at it (i work in a school for kids with autism and challenging behavior and there always asking how i hurt myself) but most people know someone who's close to them that has it or eczema,
Try not to let it bother ye that much, oh and drink is terrible for it but i'm going on the beer know so meh
Best thing for me is sun, get the arms and legs out and get the rays on it, i no it's hard when people look at it (i work in a school for kids with autism and challenging behavior and there always asking how i hurt myself) but most people know someone who's close to them that has it or eczema,
Try not to let it bother ye that much, oh and drink is terrible for it but i'm going on the beer know so meh
The sun does help but ATM i have it really bad and I'm real self conscious and I hate walking out of the house in shorts. What bothers me is people pointing at my scabby legs and asking, "WTF is wrong with your skin dude?". I always answer, "It's just Psoraisis, don't worry, you can't catch it". I'm just fed up being asked.
+1 for plenty sunshine, and the other half is using a German ointment called "Alter Heideschäfer" "Melkfet Salbe" which has transformed seriously scabby, itchy, festering sores into new pink skin in less than a month. She has also spent many hours marinading in chlorinated water, solar heated to a balmy 28 degrees C, which may or may not be relevant, likewise the high blood alcohol content.
The ointment is over-the-counter here, the equivalent of 2 quid for 100 millilitres, if you cant get hold of it I'll wing some over to you for the cost of a jiffy-bag.
The ointment is over-the-counter here, the equivalent of 2 quid for 100 millilitres, if you cant get hold of it I'll wing some over to you for the cost of a jiffy-bag.
turbopug said:
Who suffers from it and who can offer some help?
I've found the only thing that offers me any relief is topical steroids (Dermovate and Betnovate). If I use them over a 2 week period, it clears up completely but as soon as I stop, it comes back more aggressive than ever. Every day I find a new patch and I just find it disheartening.
I've also tried a course of Methotrexate on the understanding it helped a lot of people. All it did for me was bring out more and more patches, particularly on my feet.
I've tried lots and lots of various diets but nothing has ever really been sucessful. I have found though, that if I avoid alcohol, the symptoms will be lessened but they are still there.
As any fellow sufferrer will know, it's no fun constantly scratching yourself until you bleed. All I want is to be able to go onto the beach in my shorts and T-shirt without people pointing and staring.
If you use topical steroids then you need to wean yourself off them or you get a rebound effect with it coming back with a vengeance. I've found the only thing that offers me any relief is topical steroids (Dermovate and Betnovate). If I use them over a 2 week period, it clears up completely but as soon as I stop, it comes back more aggressive than ever. Every day I find a new patch and I just find it disheartening.
I've also tried a course of Methotrexate on the understanding it helped a lot of people. All it did for me was bring out more and more patches, particularly on my feet.
I've tried lots and lots of various diets but nothing has ever really been sucessful. I have found though, that if I avoid alcohol, the symptoms will be lessened but they are still there.
As any fellow sufferrer will know, it's no fun constantly scratching yourself until you bleed. All I want is to be able to go onto the beach in my shorts and T-shirt without people pointing and staring.
Have you tried any of the light therapies e.g. UVB or PUVA?
Roger645 said:
sinizter said:
Have you tried Vit B ?
I think you mean D?Alcoholics get Vit B as a supplement, both when seeing their GP or in hospital as alcohol is an anti-nutrient for Vit B.
Alcohol seems to have a detrimental effect on psoriasis.
Lack of Vitamin B3 and B2 causes problems with skin and mucosa.
To me there seems to be a good correlation between these factors, so while it is not medically proven (like some of the other remedies which still work), it may be something that does help. There seems to be some support for this from a quick google, although nothing from really good sources such as medical journals.
While I cannot recommend it to anyone as such, I wondered if anyone had tried it with any success or lack of.
Sunlight certainly helps a bit; stress definitely makes it worse.
Many years ago, my GP prescribed some steroid cream (can't remember the name, psoriderm??) and this helped short-term but seemed to make it worse longer-term so I stopped using it.
Fortunately, I only get it quite mildly so let it take its' course without using anything these days. It comes and goes but meh!
Many years ago, my GP prescribed some steroid cream (can't remember the name, psoriderm??) and this helped short-term but seemed to make it worse longer-term so I stopped using it.
Fortunately, I only get it quite mildly so let it take its' course without using anything these days. It comes and goes but meh!
Creamwise- OP look into the pro & cons* of a relatively new one called Protopic.
Unlike steriods which wouldn't last long & made me paranoid of the skin thinning issue, a thin layer of this during an outbreak would clear perfect for a couple of weeks- was my miracle cream.
OP - How long have you had it and when did it start? As I suffered from Severe atopic eczema which started in my adult life as opposed to when was a child
I suspected environmental reasons and so tried various things, some combination of which (what exactly I can't say as don't know) have led to me being completely eczema free now using only moisturisers.
Unlike steriods which wouldn't last long & made me paranoid of the skin thinning issue, a thin layer of this during an outbreak would clear perfect for a couple of weeks- was my miracle cream.
OP - How long have you had it and when did it start? As I suffered from Severe atopic eczema which started in my adult life as opposed to when was a child
I suspected environmental reasons and so tried various things, some combination of which (what exactly I can't say as don't know) have led to me being completely eczema free now using only moisturisers.
- Mention pro and cons as there are claims by some it can be carcegenic which is unproven, my dermotologists opinion of this was that when used internally, on the skin in small amounts it would not be an issue. My own take was to use very rarely and a very fine film of it, works so well was worth the risk for me.
sinizter said:
No. I meant Vitamin B.
Alcoholics get Vit B as a supplement, both when seeing their GP or in hospital as alcohol is an anti-nutrient for Vit B.
Alcohol seems to have a detrimental effect on psoriasis.
Lack of Vitamin B3 and B2 causes problems with skin and mucosa.
To me there seems to be a good correlation between these factors, so while it is not medically proven (like some of the other remedies which still work), it may be something that does help. There seems to be some support for this from a quick google, although nothing from really good sources such as medical journals.
While I cannot recommend it to anyone as such, I wondered if anyone had tried it with any success or lack of.
Never heard of B, but the use of Vitamin D is well tried and tested in Psoriasis. Not all people with psoriasis suffer any detrimental effects with alcohol. That's one of the issues with treating it, it does not respond consistently across patients or even the same patient in different time frames.Alcoholics get Vit B as a supplement, both when seeing their GP or in hospital as alcohol is an anti-nutrient for Vit B.
Alcohol seems to have a detrimental effect on psoriasis.
Lack of Vitamin B3 and B2 causes problems with skin and mucosa.
To me there seems to be a good correlation between these factors, so while it is not medically proven (like some of the other remedies which still work), it may be something that does help. There seems to be some support for this from a quick google, although nothing from really good sources such as medical journals.
While I cannot recommend it to anyone as such, I wondered if anyone had tried it with any success or lack of.
Had eczema/soriasis for 65 years always present better now than ever before.
Topical Steroids are effective but I now have a serious thin skin condition caused by the steroids. If a run my nails over my skin it tears like tissue paper. Love making for example requires considerable care.
If I discuss this with any doctor (seen dozens over the years) I ALWAYS say I would rather have the thin skin problem than eczema for 65 years.
But you should be aware of the problems these steroids cause.
I have found Calypso factor 15 sun tan Dry Oil spray VERY effective at reducing the problem. Over a year constant use of this product has reduced the problem to almost complete control. Best in fifty years.
If I stop using this oil the problem returns.
Something in the product is solving this problem for me. I do not know what it is. Other Sun Tan creams and sprays do not work. Only Calypso.
Fortunately it is cheap.
I use two bottles a week apply all over every morning and every night.
Dries quickly does not stain. Slight perfume.
This has been a godsend for me. I can actually not worry about my skin.
Topical Steroids are effective but I now have a serious thin skin condition caused by the steroids. If a run my nails over my skin it tears like tissue paper. Love making for example requires considerable care.
If I discuss this with any doctor (seen dozens over the years) I ALWAYS say I would rather have the thin skin problem than eczema for 65 years.
But you should be aware of the problems these steroids cause.
I have found Calypso factor 15 sun tan Dry Oil spray VERY effective at reducing the problem. Over a year constant use of this product has reduced the problem to almost complete control. Best in fifty years.
If I stop using this oil the problem returns.
Something in the product is solving this problem for me. I do not know what it is. Other Sun Tan creams and sprays do not work. Only Calypso.
Fortunately it is cheap.
I use two bottles a week apply all over every morning and every night.
Dries quickly does not stain. Slight perfume.
This has been a godsend for me. I can actually not worry about my skin.
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