13 year old - Migraines - HELP - MD Doctors in the House?!?
13 year old - Migraines - HELP - MD Doctors in the House?!?
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IceBoy

Original Poster:

2,455 posts

250 months

Wednesday 27th January 2016
quotequote all
Hi All,

I just need a little help and support.....

My 13 year old son, who is mentally and physically fit started suffering from Aura Migraines approx 16 months ago.

We took him straight to hospital as the symptoms seemed like a stoke, he was having difficulty with his speech, face went numb and huge pains in his head.

By the time we got him to hospital, the pains had gone from 9/10 to 6/10 and he was talking fine but felt sick.

They diagnosed him with Aura migraines gave him some medicine and off we went.

Since then he gets Migraine attacks every 2-3 months. They last 3-6 days (currently off school - day 4), when he feels sick gets pains in his head, his eyes hurt, even in the dark and generally, will vomit and is totally out of action for the whole attack.

Went to seen the GP 3-4 times (when the attacks happen over the last 12 months) and all we get is a change of drugs.

I'm really worried it could be something more sinister lurking in the background.

What can I do?

I spent all night with him.....he was having his tablets every 3-4 hours and then being sick every hour and not getting 5 mins of sleep.

Please help, anyone got any experience of young teenagers with these problems?

HELP
IceBoy

AmiableChimp

3,674 posts

266 months

Wednesday 27th January 2016
quotequote all
I've suffered from migraines for the past 25 years.

At one stage, I was getting one every couple of weeks, but now they have gone back to every couple of months.

Mine start with the visual aura defects (like looking through a microscope and seeing something wriggle in your field of vision) which quickly turns to about 80% vision loss for 30 mins or so.

Things go completely calm for about 20-30 mins after this, then the pain kicks in and I also get nausea, etc.

Mine only tend to knock me out for a day or so, but I do feel completely hollow the day after as well (like my head is filled with expanding foam).

I registered with The Migraine Trust and got lots of great information - http://www.migrainetrust.org/

I started to keep a diary and worked with my GP. I didn't know the triggers can be up to 48 hours before the attack.

I tried various tablets, but eventually found that taking Amatriptyline (anti-depressant) helps to keep them at bay more - I take 10mg per day.

When I feel an attack coming on, I also take a Naratriptan to try and slow down the release of blood which causes the headaches, but it's a bit hit and miss as to timing and results.

My trigger tends to be calming down after a stressful period.

I would get him to keep a diary (difficult at that age and the frequency in play) but you might be able to see some kind of pattern/trigger.

Good luck - I wouldn't wish these on my worst enemy.

IceBoy

Original Poster:

2,455 posts

250 months

Wednesday 27th January 2016
quotequote all
Thanks AmiableChimp........the effects are very upsetting for me to see, when your kids is in pain, being sick, curled in to a ball, eyes hurting and telling me he feels like someone has fired a gun in his head!

IceBoy

Crush

15,078 posts

198 months

Wednesday 27th January 2016
quotequote all
Have had migraines all my life too. At primary school I'd often be off for a week every month.

My 'triggers' were pressure changes with the weather, stress/change from stress to calm, orange juice, strong smells such as bleach/potent perfumes, fluorescent lighting and more recently energy saving bulbs.

I could never stop a migraine once it started, but found lying in a dark and quiet room would often help. A flannel soaked in hot water and placed over my forehead/eyes provided pretty good relief too.

Trouble I found is that senses seem to heighten with a migraine, so any sounds, lights or smells seem a lot stronger!

IceBoy

Original Poster:

2,455 posts

250 months

Wednesday 27th January 2016
quotequote all
Thanks for the insight.

Just feel hopeless.
IceBoy

Podie

46,649 posts

304 months

Wednesday 27th January 2016
quotequote all
I started getting aura migraines when I was about 12. Had various scans and stuff and was basically told to live with it.

As Crush said, you eventually work out what the triggers are, and in my case the early warning signs. There was a period in my life where I wouldn't go anywhere without migraleve and I knew I had about a 5 minute window to stem the aura from happening.

They never made me feel sick, but they were debilitating and I could actually do anything. In my twenties I had to have a 3 hour kip in my car, as I couldn't see anything.

In our family it appears to be genetic. My father, uncle and grandfather all had them - but largely we all stopped getting them in our mid thirties. My youngest nephew is getting them most weeks at the moment.

Like Crush, stress/change from stress to calm and fluorescent lighting would set me off (I actually had a light tint on my glasses which helped)

olimain

1,010 posts

164 months

Wednesday 27th January 2016
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My younger brother gets these, when we were children it was eating bright sweets (E numbers) which triggered them

anonymous-user

83 months

Wednesday 27th January 2016
quotequote all
I suffered from migraines up until around 13. We discovered that they also followed a pork Sunday lunch so I cut out Pork and I've not had one in almost 40 years.

Might be worth looking to see if you can see a connection between the migraines and certain foods.

I wish your son all the best!

essayer

10,410 posts

223 months

Wednesday 27th January 2016
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Definitely keep a food/activity log.

For me it's a combination of sugary foods and dehydration, it's taken many years to make the connection!


ali_kat

32,152 posts

250 months

Wednesday 27th January 2016
quotequote all
If it helps, it all sounds familiar to me too frown

According to the American Migraine Foundation; a migraine is an (inherited) neurological disorder characterized by hyper-excitable brain networks that result in attacks. These networks can be triggered by a variety of stimuli including alcohol, light and smells, or they can become spontaneously active. Long story short, a migraine is not as simple as it may appear to be to others.

It is frightening, I too suffer from auras with tunnel vision (AmiableChimp described these beautifully). I was sent for brain scans at 17 as I was completely losing my vision, that stopped at the end of my teens and now I mostly just get fireworks and fuzzy tunnel vision.

But they are different for everyone. Even in my own family they aren’t the same patterns or triggers (although Mum & I shared Oranges & red wine)

My brother had them in his teens, they stopped once his hormones levelled out. I haven’t been so lucky frown Mum’s stopped when she went through the menopause… We’ve been told that ours are linked to the family medical history of epilepsy (they’re related); one side of us gets varying degrees of migraine, the other petit/grand mal seizures. I guess 5 days out with migraine a month makes me lucky – at least I can drive. But it sure as hell doesn’t feel that way when they hit, and I sure as hell won’t drive whilst I have one

Tablets that have worked for me in the past are having no effect now, I’m now on Codeine & Diazepam. Which work great if I catch it at the start, but if I wake up with it past a certain point or out and can’t get to my tablets in time (rare TBH, I & my husband have spares carried in everything) – it’s not worth me taking anything frown Drinking room temperature water helps me too.

I have found that not fighting one at all can make it go easier and quicker, and the following one a bit more responsive to drugs. Sleep really helps for me, with some sort of ‘white noise’ in the background. In my teens Mum used to say I couldn’t possibly have migraine as I had Meatloaf playing in my room laugh but it helped me relax, which helped me sleep, which got rid.

Like Crush my triggers can be pressure changes with the weather, stress, orange juice, strong smells/potent perfumes (as a teen in the 80s this was trying… Poison, Opium, Anais Anais, Obsession and Samsara were worn by everyone!) and fluorescent lighting.

My other triggers are being dehydrated, plain/dark chocolate, red wine, lack of sleep and I always have one after I’ve been really angry. And, of course, being female… my monthly cycle.

Again like Crush I find that my senses heighten with a migraine, so I’m very susceptible to sounds, lights or smells – in fact I can use this as a warning that I’ve got one on the way.

He needs to learn his triggers (this can take a while) and what drugs suit him best (trial and error), as what triggers me won’t trigger others and it’s the same for the medications. As AmiableChimp suggests, keeping a diary of feelings, sensations and food & drink will help to find his triggers.

List out common triggers, I’m sure others will contribute here and list theirs and Google will help too. That way you know ‘kinda’ what you are looking for

Good luck

quotes from migraine sufferers said:
1. “It’s not just a headache.”
2. “Chronic migraines are on a totally different level than the occasional migraine. You end up living in fear of when the next one will hit.”
3. “It’s not something I can control, and it’s not my fault.”
4. “Some of us get warning signs that a migraine is coming. I get signs up to a full day before the pain starts. The anticipation of the pain and resulting anxiety sets me on edge. When I know it’s coming, I get desperate for anything that will stop it.”
5. “yes, three days later, I’m still on the same migraine. And no, I can’t just ‘tough it out.’”
6. “One can look functional while in a lot of pain. Not all migraines develop into the hang-over-the-bowl, turn-out-the-lights, don’t-speak-to-me-for-four-days kind. We take care of our kids, go to work (mostly) and even drive carpool to school while quite ill.”
7. “I may look ‘fine’ to you, but the pain I’m in is not fine. So please don’t tell me I don’t look sick.”
8. “It’s hard to leave the house because of the fear one might happen while you’re away from your safe place.”
9. “For the sake of others, you usually pretend you feel much better than you actually do.”
10. “It’s different for everyone. So the ones your sister’s cousin’s uncle’s ex-fiancé had are not the same as mine.”
11. “The sounds of clinking dishes, pots and pans or a squeaky door can be excruciating, even one floor away.”
12. “Smells can be painful.”
13. “If you wear perfume or aftershave near me when I have a migraine, I might have to kill you. Except I’ll be in so much pain that I won’t be able to.”
14. “I would not wish it on my worst enemy.”
15. “I’m not faking. It bothers me when I have to cancel plans, but I would never do it unless I absolutely had to.”
16. “Pain meds do not get rid of a migraine. They may ease off the pain for a bit and give me room to breathe and function, but I’m always in pain. And yes, I’ve tried all the folk stuff your great grandma with migraines tried. I’ve also been to some of the top doctors in my state. I would give up years of my life to be pain free for just a little while.”
17. “When I have migraines, I can see them. It’s like a firework display in my peripheral vision.”
18. “The inability to concentrate is horrible, and it takes so much effort just to focus on one simple task daily.”
19. “They stop me in my tracks, and I hate missing out on my life.”
20. “The difference between a headache and a migraine is like comparing labor pains to an upset stomach.”
21. “Everyone experiences migraines differently. Some get aura, and others don’t. Some need to be flat on their backs, and others can’t lie down. Some need silence and darkness while others aren’t affected by these things too much. Migraines can change and evolve over time and with age and with life events such as pregnancy.”
22. “It’s not an easy thing to live with.”
23. “I’m not an antisocial hermit by choice. It’s a necessity.”
24. “It’s not just pain. It’s a complete physical, mental and emotional assault on your body.”
25. “It’s like a grip on the back of your head.”
26. “Yes, I do have to cancel my appointments. I’m not willing to endanger myself and my children to drive while blind.”
27. “It feels like your head is about to split open and some alien is going to pop out.”
28. “It’s real.”
29. “Even light and air hurt. My skin feels like somebody sand-papered it. It’s not something one can snap out of.”
30. “My migraines are not meant to punish my family. I hate the time migraines take from them.”
31. “There is no such thing as a quick fix for a migraine.”
32. “They can knock you in the dirt. Your whole body aches, and it feels like your head will explode. All you can do is go into a dark room, lie down and pray for it to stop. You can’t eat or sleep, and this can last for days. This is not a joke. I hate having them; it makes you feel worthless because you can’t do anything to stop them.”
33. “Just because I’m used to it — it being constant pain — doesn’t mean it hurts any less. Just because most days I can live with it doesn’t mean there aren’t days I can’t.”
34. “Please stop telling us to ‘just drink water.’”

All that jazz

7,632 posts

175 months

Wednesday 27th January 2016
quotequote all
IceBoy said:
Hi All,

I just need a little help and support.....

My 13 year old son, who is mentally and physically fit started suffering from Aura Migraines approx 16 months ago.

We took him straight to hospital as the symptoms seemed like a stoke, he was having difficulty with his speech, face went numb and huge pains in his head.

By the time we got him to hospital, the pains had gone from 9/10 to 6/10 and he was talking fine but felt sick.

They diagnosed him with Aura migraines gave him some medicine and off we went.

Since then he gets Migraine attacks every 2-3 months. They last 3-6 days (currently off school - day 4), when he feels sick gets pains in his head, his eyes hurt, even in the dark and generally, will vomit and is totally out of action for the whole attack.

Went to seen the GP 3-4 times (when the attacks happen over the last 12 months) and all we get is a change of drugs.

I'm really worried it could be something more sinister lurking in the background.

What can I do?

I spent all night with him.....he was having his tablets every 3-4 hours and then being sick every hour and not getting 5 mins of sleep.

Please help, anyone got any experience of young teenagers with these problems?

HELP
IceBoy
Drinks sugar-free stuff, per chance?

joscal

2,610 posts

229 months

Wednesday 27th January 2016
quotequote all
Nothing to add but as a father I can only imagine how difficult it is to watch. Best of luck.

plasticpig

12,932 posts

254 months

Wednesday 27th January 2016
quotequote all
I used to suffer from migraines on a regular basis. The main trigger for me is pollen so making sure I am fully dosed up on antihistamine during the hay fever season helps and has now reduced it to once or twice a year.

Unfortunately the best treatment I have found for migraines is cannabis. I smoked cannabis on a regular basis for several years and I never had a migraine in that time. I understand this probably not suitable for a 13 year old! The link between migraine prevention and cannabis is being actively researched by drug companies though.




IceBoy

Original Poster:

2,455 posts

250 months

Wednesday 27th January 2016
quotequote all
Thanks All,

I think he will have to keep a keen diary!

IceBoy

cologne2792

2,151 posts

155 months

Wednesday 27th January 2016
quotequote all
Firstly, sorry to hear that your son's not well.

My dad, now in his mid-seventies has suffered from Migraines all his life. This has been accompanied by stress for which he has previously had various tranquilizers including valium, co-codemol and the only real winner which were Beta Blockers. All of which he's developed a high tolerance for and all of which have become progressively less effective over time.

My Migraines started when I was six years old and like your sons became most debilitating. They used to start around Thursday and last until Monday with me completely out of it and usually asleep. This was 40 years ago and the standard response from the Doctor was some industrial grade pain killers that just made me sleep but didn't treat the underlying cause. This persisted for months and in desperation my parents took me to a Naturopath who asked a couple of simple questions looking for changes in my circumstances.

The primary change was I was taking packed lunches to school and the primary ingredient was Hard Cheese. He suggested cutting it out, we did and the Migraines stopped immediately.
The cheese and chocolate triggers are often now overlooked but even at 47 years of age If I eat too much hard cheese in a short space of time I still get Migraines. They aren't to the severity of your son's but still bad enough. I'm also unable now, as I was when I was a child, to eat cooked cheese as it triggers a nauseous, migraine type reaction very quickly. It's interesting over 40 years how the same triggers remain.

I'm now a dad of two children and just last week both were off school with a bug. In my son's case, he's 6 years old, this manifested itself as a light sensitive, nauseous migraine - his first. Hopefully this was a one off as he and his 8 year old sister are otherwise fit and healthy.

I hope this is helpful in part - if not I wish you all the best with finding a solution to a nasty condition.

Martin

Piginapoke

5,992 posts

214 months

Wednesday 27th January 2016
quotequote all
Hi, we too have a 13 year old boy suffering from Aura Migrane episodes. I can well relate to the helplessness and fear of what they may mean

The only treatment that my boy has had in addition to yours is an MRI scan, to rule out tumours etc. It was a tough day but worth it for some peace of mind

His worst episode was a week long and I dread it returning



IceBoy

Original Poster:

2,455 posts

250 months

Thursday 28th January 2016
quotequote all
Thank you to everyone for their support.

Today is day 6 and he got a good night sleep and seems to be much better.

I think he will go to school tomorrow but that is a long time with this debilitating issue.

Thanks once again and we are now going to start to look in to food, keep a diary and look at homoeopathy.

IceBoy

benm3evo

421 posts

210 months

Thursday 28th January 2016
quotequote all
I haven't got anything very useful to add other than I used to suffer the same when I was a similar age. Vision would go, followed by not being able to talk (at all!) then a tingling in my hands & jaw. Then came the inevitable headache & sickness. It was all quite scary at that age.

No medication would touch mine so the only thing I could do was prepare, i.e. as soon as my vision went funny I knew I'd have to get home & get to bed. My parents also made sure the School was aware so they were more sympathetic, this helps put your mind at ease when you're young.

Mine stopped when I was about 20 I'd say, never found a cause or likely cause. Then all of a sudden I had one when I was about 30. The only thing I had being doing different is eating dry roasted peanuts. Not touched one since & no more migraines (I'm 34 now).

The Doctor did think peanuts were an unlikely cause but worth bearing in mind possibly, having said that, there seems to be a lot of foods that can potentially cause migraines.

Good luck!
Cheers, Ben

All that jazz

7,632 posts

175 months

Thursday 28th January 2016
quotequote all
Sucralose is the trigger for me. Can set my clocks by it - 30 mins after having more than a couple of mouthfuls of any "sugar-free" drink with it in I get a migraine. Unfortunately sucralose is found in about 90% of sugar-free beverages these days frown.

HarryFlatters

4,203 posts

241 months

Thursday 28th January 2016
quotequote all
OP - sounds terrible having to watch your lad like that.

My migraines are triggered by dehydration and lack of sleep, but have found that the best treatment is Sumatriptan which I get on prescription. It's available OTC under the brand name Imigran Recovery.

Ibuprofen and paracetamol have no affect, and opiates (codeine mostly) just make it worse.

All the very best.