BBC R5 Live today: cluster headache feature
BBC R5 Live today: cluster headache feature
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kurt535

Original Poster:

3,560 posts

146 months

Friday 5th May 2017
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For anyone out there struggling with mysterious headaches that make you want to self harm/ kill yourself, have a listen to R5Live on catch-up.

It may explain what's going on with you and why your doctor's prescription of strong pain killers is like chucking stones at a tank!

Beyond that, check out OUCH (Organisation for the Understanding of Cluster Headaches) on Facebook. A truly wonderful organisation that covers many 'headachy' type of issues, not just CH's


Bellini

768 posts

180 months

Friday 5th May 2017
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I've suffered with these since I was 12 years old. I'm now 46.

Back in the early 80's, no-one knew what they were and I endured years of occasional prescription migraine medication, Nurofen and other suggested remedies. All of them massively ineffective when attacks happened.

I eventually settled on low-key remedies that worked for me, albeit ones that couldn't prevent attacks but at least helped soften them if I timed things correctly.

It's good to know these headaches are getting the recognition and research due to them.

Watching that video earlier today was the first time I have ever seen someone else suffer from them and all horribly identical to my own experiences.