NHS Big Data Grab
Discussion
Saw this on the register site, people maybe interested in what will happen to all their medical histories/data in a few weeks.
https://www.theregister.com/2021/05/13/nhs_data_gr...
Opt out online https://www.nhs.uk/your-nhs-data-matters/manage-yo...
https://www.theregister.com/2021/05/13/nhs_data_gr...
Opt out online https://www.nhs.uk/your-nhs-data-matters/manage-yo...
Edited by anonymous-user on Thursday 13th May 22:18
Storm, meet teacup.
Anyone who has worked with the civil service knows that they tie themselves in knots about data sharing, and generally make the data entirely useless before releasing it. They aren’t going to be selling your medical records to insurance companies.
Who bloody cares if Microsoft release a load of machine learning on it and can come up with something interesting? I was just reading an article about fat teenagers having a higher risk of stroke in later life - well here’s the data set that can prove or disprove that notion. It would be quite handy to be able to predict outcomes and treat people before they lost the use of their brains.
If I was in charge of the NHS, I’d make it simple, your data belongs to the NHS, if you don’t like it, f
k off to the private hospital down the road.
Anyone who has worked with the civil service knows that they tie themselves in knots about data sharing, and generally make the data entirely useless before releasing it. They aren’t going to be selling your medical records to insurance companies.
Who bloody cares if Microsoft release a load of machine learning on it and can come up with something interesting? I was just reading an article about fat teenagers having a higher risk of stroke in later life - well here’s the data set that can prove or disprove that notion. It would be quite handy to be able to predict outcomes and treat people before they lost the use of their brains.
If I was in charge of the NHS, I’d make it simple, your data belongs to the NHS, if you don’t like it, f
k off to the private hospital down the road. Edited by rxe on Friday 14th May 01:09
Penelope Stopit said:
NHS Digital said names and addresses, written notes, images, letters, and documents would not be collected
Yet people don't want 'their' data being shared. It is moronic and i'm sure they will spiel off the same BS, most likely antivax, big conspiracy people.i have zero issue with sharing anonymised data, i have a rare medical condition that hopefully sharing my data would help others. i already feed back my data to pharmaceuticals, doctors anyway, because in my eyes my self importance is not as great as helping others.
rxe said:
Storm, meet teacup.
Anyone who has worked with the civil service knows that they tie themselves in knots about data sharing, and generally make the data entirely useless before releasing it. They aren’t going to be selling your medical records to insurance companies.
Who bloody cares if Microsoft release a load of machine learning on it and can come up with something interesting? I was just reading an article about fat teenagers having a higher risk of stroke in later life - well here’s the data set that can prove or disprove that notion. It would be quite handy to be able to predict outcomes and treat people before they lost the use of their brains.
If I was in charge of the NHS, I’d make it simple, your data belongs to the NHS, if you don’t like it, fk off to the private hospital down the road.
Can we take our NHS payments with us?Anyone who has worked with the civil service knows that they tie themselves in knots about data sharing, and generally make the data entirely useless before releasing it. They aren’t going to be selling your medical records to insurance companies.
Who bloody cares if Microsoft release a load of machine learning on it and can come up with something interesting? I was just reading an article about fat teenagers having a higher risk of stroke in later life - well here’s the data set that can prove or disprove that notion. It would be quite handy to be able to predict outcomes and treat people before they lost the use of their brains.
If I was in charge of the NHS, I’d make it simple, your data belongs to the NHS, if you don’t like it, f
k off to the private hospital down the road. Edited by rxe on Friday 14th May 01:09
Lol'ing at the usual t
ts just giving everything away. Nothing to see here!TX.
This is not new information. El Reg are living up to their red top cliche.
This is none identifiable data that will be used for big data analysis for groups like this: https://www.bdi.ox.ac.uk/
It will be used for things like identifying if there are particular patterns that identify heart attack risk early, or unexpected links that humans would never see, for example if having chicken pox early reduces the risk of some type of cancer or having a vaccination has any very long term effects.
This is none identifiable data that will be used for big data analysis for groups like this: https://www.bdi.ox.ac.uk/
It will be used for things like identifying if there are particular patterns that identify heart attack risk early, or unexpected links that humans would never see, for example if having chicken pox early reduces the risk of some type of cancer or having a vaccination has any very long term effects.
Those susceptible to fear will rightly be fearful of anything with big words, and rightly they can opt out of it to make them feel like they are in control of their anonymised data lol. All doing this whilst carrying a phone everyday yet miss the irony of it all.
We live in a world nowadays where we are looked upon as not individuals but part of data pools.
We live in a world nowadays where we are looked upon as not individuals but part of data pools.
One medical condition and a postcode.105.4 said:
Thanks for the heads-up.
I’m sure there’s absolutely nothing to worry about. Government agencies are 100% always so very careful with our most sensitive and private information......
Oh.
+1 I’m sure there’s absolutely nothing to worry about. Government agencies are 100% always so very careful with our most sensitive and private information......
Oh.
The UK Government has shown many times that it couldn't organise a beer drinking competition
in a brewery and usually spends billions in doing so.
I've never understood why UK Gov is in the health care business.
The folk who didn't sign up to data sharing between hospitals (consent was sought a long time ago - at least a decade) make life difficult for themselves
If you agree to data sharing I (mental health trust doctor) can see what is in the letters on your acute hospital records and all blood tests, radiology pathology and a summary of GP records. If you didn't I can only see what is recorded within our Trust.
It's highly unlikley that if I requested the paper records form the general hospital that they would have all this information filed as almost everything is electronic record now.
It is possible to 'break glass' in urgent circumstances to see what information is there but this is supposed to be exceptional and you have to make an entry justifying the data breach
So those who didn't agree to data sharing are making life more difficult for professionals and at a population level incurring risk
Even though our patients have mental health problems, the ones who didn't sign up for data sharing tend to be of the 'tinfoil hat' variety. Most are sensible.
Sharing 'big data' could be enormously beneficial in terms of research, planning etc.
If you agree to data sharing I (mental health trust doctor) can see what is in the letters on your acute hospital records and all blood tests, radiology pathology and a summary of GP records. If you didn't I can only see what is recorded within our Trust.
It's highly unlikley that if I requested the paper records form the general hospital that they would have all this information filed as almost everything is electronic record now.
It is possible to 'break glass' in urgent circumstances to see what information is there but this is supposed to be exceptional and you have to make an entry justifying the data breach
So those who didn't agree to data sharing are making life more difficult for professionals and at a population level incurring risk
Even though our patients have mental health problems, the ones who didn't sign up for data sharing tend to be of the 'tinfoil hat' variety. Most are sensible.
Sharing 'big data' could be enormously beneficial in terms of research, planning etc.
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