M.E - Does it exist or doesn't it?
M.E - Does it exist or doesn't it?
Author
Discussion

TheCarpetCleaner

Original Poster:

7,294 posts

231 months

Tuesday 26th January 2010
quotequote all
I don't know much about the subject, I know a girl at school had M.E when I was 14, and everyone was saying she was faking it. She recovered from it a year later and was fine.

However reading all these things in the news, especially the girl that was recently euthanased(sp) by her mother for it, makes me wonder if it does exist or not.

To be clear again, for those rare few who rush to get offended at anything possible, I don't know one way or the other if it is real or not, but I do know personally cases where people are (still) suffering from it, and those that have miraculously recovered when they feel it necessary.

Apparently there are no actual physical symptoms of the illness either, so quite hard to diagnose.

So in this day and age of many fakers making up illnesses to get benefits, is this real and they are giving the real sufferers a bad name, or is it dubious at best?


PhillT

2,489 posts

254 months

Tuesday 26th January 2010
quotequote all
Yes, it's real.

HTH.

Yoshiwaan

322 posts

219 months

Tuesday 26th January 2010
quotequote all
I think it's mostly psychological, but that doesn't make it 'not real' per se...

okgo

42,127 posts

227 months

Tuesday 26th January 2010
quotequote all
reminds me of Ricky Gervais on the subject, saying how you would never find an African child saying they had ME when they had to walk ten miles to get water each day...


davido140

9,616 posts

255 months

Tuesday 26th January 2010
quotequote all
Yoshiwaan said:
I think it's mostly psychological, but that doesn't make it 'not real' per se...
neurological, not psychological.

I know a couple of people with it, and it's certainly not a lot of fun.


davido140

9,616 posts

255 months

Tuesday 26th January 2010
quotequote all
okgo said:
reminds me of Ricky Gervais on the subject, saying how you would never find an African child saying they had ME when they had to walk ten miles to get water each day...
rofl made me laugh, But Suki, why can you not walk many miles to the well...?

smile

GTIR

24,741 posts

295 months

Tuesday 26th January 2010
quotequote all
Didn't it used to be Yuppy flue?

My mate had it for years. Lazy bastid.

TheCarpetCleaner

Original Poster:

7,294 posts

231 months

Tuesday 26th January 2010
quotequote all
I knew a woman some time back who suffered from it, when she lost her job.

She used to recover when she ran out of money or her benefits were not paying her enough to make a repair to her car, then she would get it again, usually just after her 6 months probation, and the cycle continued.

In this instance, I would strongly disagree that she actually had M.E, in the form that chronic sufferers claim they suffer from it.

evenflow

8,876 posts

311 months

Tuesday 26th January 2010
quotequote all
TheCarpetCleaner said:
Apparently there are no actual physical symptoms of the illness either, so quite hard to diagnose.
There most certainly are a myriad of physical symptoms that the disease causes. Maybe you meant physical changes in the physiology/biochemistry of the body that can be tested for (using current knowledge)?

TheCarpetCleaner said:
So in this day and age of many fakers making up illnesses to get benefits, is this real and they are giving the real sufferers a bad name, or is it dubious at best?
It is without a doubt real, but yes, I imagine that many people in this day and age use it as an excuse.

Sevo

297 posts

220 months

Tuesday 26th January 2010
quotequote all
Psychiatric illness. No evidence has ever been found of a physiological or anatomical abnormality.


Dave^

7,895 posts

282 months

Tuesday 26th January 2010
quotequote all
Similar to Tourettes then? Most people pass it off as an excuse or a pisstake, until it affects them directly...

st fk bd... hehe

Bill

58,635 posts

284 months

Tuesday 26th January 2010
quotequote all
davido140 said:
Yoshiwaan said:
I think it's mostly psychological, but that doesn't make it 'not real' per se...
neurological, not psychological.
I don't think anyone can say for sure one way or the other, but there are no neurological tests for ME.

Chronic fatigue syndrome seems like a better moniker.

Neil H

15,418 posts

280 months

Tuesday 26th January 2010
quotequote all
I have this, tends to hit me in the mornings when I have to go to work, then again after lunch. Usually clears up by the time I get home and strangely never affects me at weekends.

okgo

42,127 posts

227 months

Tuesday 26th January 2010
quotequote all
Neil H said:
I have this, tends to hit me in the mornings when I have to go to work, then again after lunch. Usually clears up by the time I get home and strangely never affects me at weekends.
hehe


evenflow

8,876 posts

311 months

Tuesday 26th January 2010
quotequote all
Neil H said:
I have this, tends to hit me in the mornings when I have to go to work, then again after lunch. Usually clears up by the time I get home and strangely never affects me at weekends.
rolleyes

markmullen

15,877 posts

263 months

Tuesday 26th January 2010
quotequote all
I was off work for 14 months with suspected ME (it is really difficult to correctly diagnose, no specific tests) and I can vouch for it being real.

Normally I work 55+ hour weeks with another 12 hours commuting so no-one could accuse me of being workshy but I was fked, I was sleeping 20 hours a day, couldn't walk more than 1/4 mile or so without having to stop for a sleep, really really unwell.

Its not a lot of fun, and I was lucky getting away with a relatively short stint, some people have it for years.

AMLK

407 posts

214 months

Tuesday 26th January 2010
quotequote all
Bill said:
I don't think anyone can say for sure one way or the other, but there are no neurological tests for ME.
Not necessarily - 50-80% of ME sufferers will show abnormalities on a MRI scan.

Luke.

11,994 posts

279 months

Tuesday 26th January 2010
quotequote all
markmullen said:
I was off work for 14 months with suspected ME (it is really difficult to correctly diagnose, no specific tests) and I can vouch for it being real.

Normally I work 55+ hour weeks with another 12 hours commuting so no-one could accuse me of being workshy but I was fked, I was sleeping 20 hours a day, couldn't walk more than 1/4 mile or so without having to stop for a sleep, really really unwell.

Its not a lot of fun, and I was lucky getting away with a relatively short stint, some people have it for years.
How did you get over it/out of your system? My dad was a sufferer for years.

markmullen

15,877 posts

263 months

Wednesday 27th January 2010
quotequote all
Luke. said:
How did you get over it/out of your system? My dad was a sufferer for years.
I tried a lot of things, more exercise, healthier food, Bowen Therapy (a type of massage which worked a treat), I did some charity work and gradually built myself up from one day a week to two over time, then occasionally to three days a week.

As I was getting better I got a new girlfriend (who I am still with 2 year on) and a job which is about as cool as it gets and things just kept getting better.


sinizter

3,348 posts

215 months

Wednesday 27th January 2010
quotequote all
There is something along the lines of ME - and a real condition exists for people who have severe problems. But I remain sceptical about the normal/ME borderline ... For some people its psychological and others its real.