7 yr old and forced Radiotherapy

7 yr old and forced Radiotherapy

Author
Discussion

dandarez

13,317 posts

285 months

Friday 21st December 2012
quotequote all
Having a good friend who many years ago was one of the ladies who appeared on the front of The Sun and other newspapers in a 'big' cancer story, who got large compensation payouts, she 'refused point blank' certain treatments which doctors insisted would 'save' her. The radiotherapy, chemo etc.
Guess what? She's still here!

My Mum ended up in hospital in the late 70s. Dad had died not long before, aged 56. Mum in hospital for many months, I visited her daily after work. Told she had cancer. One breast removed (I had to sign for the op.) Then all the 'helpful' treatments they insist on will help her recover. About 6 weeks later, still in hosp., she complained about her tongue (she had been doing so for some weeks, and I had mentioned this to the nurse) but this time I could see she was in pain. I asked her to open her mouth. Her tongue was 'green'! I looked at her notes (end of bed). 'They' knew this, it was all there for me to read. Guinea pig was what came to mind. I was not happy! Next eve her notes no longer on bed. She perked up a bit - long story short - then bombshell, doc told me they wanted to remove most of her tongue. I had to sign (makes me ill now to think about it). Op was successful, 'they' said.
Then came the start of the 'bed' crisis. My mum needed to leave hospital (they said). I tried in desperation to find her somewhere (my wife was pregnant with our first child so living with us was not an option).
A hospital doc who was overseeing my mum, he phoned me at work, said she had life expectancy of around 20 years so could not help me. Hospices and similar on this advice said no.

Bombshell number 2. Big row with Staff Nurse - ie blazing row in ward - after she tells me my mum is leaving the hospital tomorrow to go to Solihull. WHERE?!!! 60 miles away! Over my .... body I yell! Middle of winter, the only clothes were what she arrived at hospital in the summer. I got to the hospital early, my broth in law arrived a little after. Mum? She'd gone. The bds had put her in a taxi at 7am and it was snowing! Long story short. They transported her to a Marie Curie Centre (yes, exactly!).
I understand the Staff Nurse later got moved or sacked (you never know for sure).
Mum died a few weeks later. Age? 56 - same as Dad. Gave me the impetus to beat that awful number. I have, by some years.

Then the bds tried to charge me to bring mum's body back through the different counties. Contact with a couple national newspapers soon changed their minds and she was home 'free of charge' and buried alongside Dad.

How did I mangage to cope?
My daughter was born very soon after - she had serious complications of the brain (thanks to being left in labour for 27 hours). Rushed to another hospital where I personally carried her to the op theatre to be met by a newly arrived Canadian neuro-surgeon - he saved her life. Daughter is now 32 married with a beautiful 3 year old daughter of her own. Other docs told us she would basically have a useless life. Wrong!

You do have to place your trust in them (medical profession), but over the years my trust has worn thin (hardly surprising).
Pharma companies really do control vast swaves of it.

Those who say 'quackery' about alternative medicines, are quite entitled to say so, just as I am entitled to say what I have above.

What worries me in the highlighted case is should the 'boy' die, she will be blamed. I wouldn't blame her. I can see where she is coming from.
As for a or the 'cure' for cancer. Who knows? Perhaps there is one already there?
But we will never know while so much emotion, fear, and most certainly far too much money is at stake!

Ozzie Osmond

21,189 posts

248 months

Friday 21st December 2012
quotequote all
dandarez said:
Having a good friend who many years ago was one of the ladies who appeared on the front of The Sun and other newspapers in a 'big' cancer story, who got large compensation payouts, she 'refused point blank' certain treatments which doctors insisted would 'save' her. The radiotherapy, chemo etc.
Guess what? She's still here!
You really don't understand ststistics, do you.

Perhaps you avoid wearing a seatbelt in the hope of being "thrown clear" in an accident. wink

TwigtheWonderkid

43,662 posts

152 months

Saturday 22nd December 2012
quotequote all
I blame Prince Charles and his ilk for giving credence to all this alternative nonsense. If it's any good, put it thru the same rigorous testing as conventional medicine. If it stands up to scrutiny, it will no longer be called alternative treatment, just treatment.

Alternative is a euphemism for untested and unproven.

Richard Dawkins called it The Irrational Health Service. And he was spot on.

A load of new age hocus pocus tripe, most of it. And for every success story where someone supposedly cured brain cancer by rubbing tea leaves into their scalp and eating nothing but tofu, there's a 1000 Steve Jobs, people that would probably still be alive today if they hadn't wasted vital months pursuing this cobblers.

Jasandjules

70,012 posts

231 months

Saturday 22nd December 2012
quotequote all
TwigtheWonderkid said:
If it's any good, put it thru the same rigorous testing as conventional medicine. If it stands up to scrutiny, it will no longer be called alternative treatment, just treatment.
You paying?

As I said above, let's just hope it all goes well for the lad, that is after all the important bit.

eccles

13,747 posts

224 months

Saturday 22nd December 2012
quotequote all
dandarez said:
Having a good friend who many years ago was one of the ladies who appeared on the front of The Sun and other newspapers in a 'big' cancer story, who got large compensation payouts, she 'refused point blank' certain treatments which doctors insisted would 'save' her. The radiotherapy, chemo etc.
Guess what? She's still here!

My Mum ended up in hospital in the late 70s. Dad had died not long before, aged 56. Mum in hospital for many months, I visited her daily after work. Told she had cancer. One breast removed (I had to sign for the op.) Then all the 'helpful' treatments they insist on will help her recover. About 6 weeks later, still in hosp., she complained about her tongue (she had been doing so for some weeks, and I had mentioned this to the nurse) but this time I could see she was in pain. I asked her to open her mouth. Her tongue was 'green'! I looked at her notes (end of bed). 'They' knew this, it was all there for me to read. Guinea pig was what came to mind. I was not happy! Next eve her notes no longer on bed. She perked up a bit - long story short - then bombshell, doc told me they wanted to remove most of her tongue. I had to sign (makes me ill now to think about it). Op was successful, 'they' said.
Then came the start of the 'bed' crisis. My mum needed to leave hospital (they said). I tried in desperation to find her somewhere (my wife was pregnant with our first child so living with us was not an option).
A hospital doc who was overseeing my mum, he phoned me at work, said she had life expectancy of around 20 years so could not help me. Hospices and similar on this advice said no.

Bombshell number 2. Big row with Staff Nurse - ie blazing row in ward - after she tells me my mum is leaving the hospital tomorrow to go to Solihull. WHERE?!!! 60 miles away! Over my .... body I yell! Middle of winter, the only clothes were what she arrived at hospital in the summer. I got to the hospital early, my broth in law arrived a little after. Mum? She'd gone. The bds had put her in a taxi at 7am and it was snowing! Long story short. They transported her to a Marie Curie Centre (yes, exactly!).
I understand the Staff Nurse later got moved or sacked (you never know for sure).
Mum died a few weeks later. Age? 56 - same as Dad. Gave me the impetus to beat that awful number. I have, by some years.

Then the bds tried to charge me to bring mum's body back through the different counties. Contact with a couple national newspapers soon changed their minds and she was home 'free of charge' and buried alongside Dad.

How did I mangage to cope?
My daughter was born very soon after - she had serious complications of the brain (thanks to being left in labour for 27 hours). Rushed to another hospital where I personally carried her to the op theatre to be met by a newly arrived Canadian neuro-surgeon - he saved her life. Daughter is now 32 married with a beautiful 3 year old daughter of her own. Other docs told us she would basically have a useless life. Wrong!

You do have to place your trust in them (medical profession), but over the years my trust has worn thin (hardly surprising).
Pharma companies really do control vast swaves of it.

Those who say 'quackery' about alternative medicines, are quite entitled to say so, just as I am entitled to say what I have above.

What worries me in the highlighted case is should the 'boy' die, she will be blamed. I wouldn't blame her. I can see where she is coming from.
As for a or the 'cure' for cancer. Who knows? Perhaps there is one already there?
But we will never know while so much emotion, fear, and most certainly far too much money is at stake!
Without wishing to sound unsympathetic, that would have made a cracking 'our tune'.

XCP

16,963 posts

230 months

Saturday 22nd December 2012
quotequote all
An adult can make an informed choice, a child cannot. I agree with the judgement of the court.

anonymous-user

56 months

Saturday 22nd December 2012
quotequote all
dandarez said:
Having a good friend who many years ago was one of the ladies who appeared on the front of The Sun and other newspapers in a 'big' cancer story, who got large compensation payouts, she 'refused point blank' certain treatments which doctors insisted would 'save' her. The radiotherapy, chemo etc.
Guess what? She's still here!

My Mum ended up in hospital in the late 70s. Dad had died not long before, aged 56. Mum in hospital for many months, I visited her daily after work. Told she had cancer. One breast removed (I had to sign for the op.) Then all the 'helpful' treatments they insist on will help her recover. About 6 weeks later, still in hosp., she complained about her tongue (she had been doing so for some weeks, and I had mentioned this to the nurse) but this time I could see she was in pain. I asked her to open her mouth. Her tongue was 'green'! I looked at her notes (end of bed). 'They' knew this, it was all there for me to read. Guinea pig was what came to mind. I was not happy! Next eve her notes no longer on bed. She perked up a bit - long story short - then bombshell, doc told me they wanted to remove most of her tongue. I had to sign (makes me ill now to think about it). Op was successful, 'they' said.
Then came the start of the 'bed' crisis. My mum needed to leave hospital (they said). I tried in desperation to find her somewhere (my wife was pregnant with our first child so living with us was not an option).
A hospital doc who was overseeing my mum, he phoned me at work, said she had life expectancy of around 20 years so could not help me. Hospices and similar on this advice said no.

Bombshell number 2. Big row with Staff Nurse - ie blazing row in ward - after she tells me my mum is leaving the hospital tomorrow to go to Solihull. WHERE?!!! 60 miles away! Over my .... body I yell! Middle of winter, the only clothes were what she arrived at hospital in the summer. I got to the hospital early, my broth in law arrived a little after. Mum? She'd gone. The bds had put her in a taxi at 7am and it was snowing! Long story short. They transported her to a Marie Curie Centre (yes, exactly!).
I understand the Staff Nurse later got moved or sacked (you never know for sure).
Mum died a few weeks later. Age? 56 - same as Dad. Gave me the impetus to beat that awful number. I have, by some years.

Then the bds tried to charge me to bring mum's body back through the different counties. Contact with a couple national newspapers soon changed their minds and she was home 'free of charge' and buried alongside Dad.

How did I mangage to cope?
My daughter was born very soon after - she had serious complications of the brain (thanks to being left in labour for 27 hours). Rushed to another hospital where I personally carried her to the op theatre to be met by a newly arrived Canadian neuro-surgeon - he saved her life. Daughter is now 32 married with a beautiful 3 year old daughter of her own. Other docs told us she would basically have a useless life. Wrong!

You do have to place your trust in them (medical profession), but over the years my trust has worn thin (hardly surprising).
Pharma companies really do control vast swaves of it.

Those who say 'quackery' about alternative medicines, are quite entitled to say so, just as I am entitled to say what I have above.

What worries me in the highlighted case is should the 'boy' die, she will be blamed. I wouldn't blame her. I can see where she is coming from.
As for a or the 'cure' for cancer. Who knows? Perhaps there is one already there?
But we will never know while so much emotion, fear, and most certainly far too much money is at stake!
A sad tale, but surely more to do with incompetent nursing/medical care and all too common NHS failure than a critique on treatment or otherwise?

And things have moved a long way since the 70s. I have close up experience of more than one recent situation where radiation treatment, both 'traditional' and implant, has proved to be a life saver with minimal side effects.

Are you saying you would refuse such a treatment if you were advised that you needed it? If so, on what grounds?

TorqueVR

1,845 posts

201 months

Saturday 22nd December 2012
quotequote all
As the dad and the doctors want the radiotherapy and as I understand it only his mum is against it should not the the tile of this thread be "7yr old denied radiotherapy".

Derek Smith

45,852 posts

250 months

Saturday 22nd December 2012
quotequote all
Jasandjules said:
As I said above, let's just hope it all goes well for the lad, that is after all the important bit.
You seem to be concerned that a court is acting in loco parentis. Is this so?

RichyBoy

3,741 posts

219 months

Saturday 22nd December 2012
quotequote all
I thought jobs shunned the alternative treatment because if thc was found in his system he'd had been ineligible for the conventional treatment.

Caulkhead

4,938 posts

159 months

Saturday 22nd December 2012
quotequote all
dandarez said:
Having a good friend who many years ago was one of the ladies who appeared on the front of The Sun and other newspapers in a 'big' cancer story, who got large compensation payouts, she 'refused point blank' certain treatments which doctors insisted would 'save' her. The radiotherapy, chemo etc.
Guess what? She's still here!
My uncle has smoked 60 fags a day since he was a kid and now he's 76 and still alive. That must mean that fags are good for you! Without your infallible logic we never would've realised this.

Oakey

27,617 posts

218 months

Saturday 22nd December 2012
quotequote all
I'm not entirely sure I agree the parent has the right to decide either. Why do they? It should be the choice of the patient and if the patient is too young to make an informed choice then it should be the decision of those qualified best. The life of a child shouldn't come down to the personal beliefs of one nutty parent. What right do they have to risk their child's future?

Jasandjules

70,012 posts

231 months

Saturday 22nd December 2012
quotequote all
Oakey said:
I'm not entirely sure I agree the parent has the right to decide either. Why do they? ?
So I guess you don't think parents should choose which school their kids attend? Personally I believe the state is here to serve us NOT the other way around.

srebbe64

13,021 posts

239 months

Saturday 22nd December 2012
quotequote all
Jasandjules said:
Oakey said:
I'm not entirely sure I agree the parent has the right to decide either. Why do they? ?
So I guess you don't think parents should choose which school their kids attend? Personally I believe the state is here to serve us NOT the other way around.
But what if the parent instruct the child to walk on the road, not the pavement, on the way to said school?

Oakey

27,617 posts

218 months

Saturday 22nd December 2012
quotequote all
Jasandjules said:
So I guess you don't think parents should choose which school their kids attend? Personally I believe the state is here to serve us NOT the other way around.
Choosing their school isn't affecting their health or mortality.

Jasandjules

70,012 posts

231 months

Saturday 22nd December 2012
quotequote all
Oakey said:
Choosing their school isn't affecting their health or mortality.
Depends on the bullies there and the standard of the school...... wink

Slaav

4,272 posts

212 months

Saturday 22nd December 2012
quotequote all
Hoping not to get too shouted down here.... but (fingers crossed) whilst I do not think for one minute that the mother is in any way glad that she is in this position, I cannot help but feel she is enjoying the limelight a little too much?

If the parents disagree then in a circumstance such as this, it simply has to go to an independent third party and a Judge appears to fit that bill! SS or some local social worker may well be too influenced by their own belief or religion; my 'assumption' is that the judge would put his own feelings to one side and make the best decision he can from middle ground - whilst keeping the child's best interests forefront at all times.

I mean no ill feeling to the mother but I feel uneasy with the way she glams up and parades to COurt in full view etc. It is possible to get in and out of there more discreetly if you want to!


Deva Link

26,934 posts

247 months

Saturday 22nd December 2012
quotequote all
Jasandjules said:
Oakey said:
I'm not entirely sure I agree the parent has the right to decide either. Why do they? ?
So I guess you don't think parents should choose which school their kids attend?
Good God - what on earth was the point of that comment? As if the two things are in any way comparable. Not the first daft comment you've made in this thread, I see.

Jasandjules said:
Personally I believe the state is here to serve us NOT the other way around.
Your belief is incorrect - the State MUST protect the interests of those unable to protect themselves.

Mojocvh

16,837 posts

264 months

Saturday 22nd December 2012
quotequote all
Hope it works out for the wee man.

otolith

56,550 posts

206 months

Saturday 22nd December 2012
quotequote all
The only rational decision making process I know leads to medicine. What process do the advocates of "alternative medicine" use to determine their choices?