Discussion
ch37 said:
Julia121 said:
I've had it since June and most of the problems i.e. sweating, limbs ache, pins and needles I feel pretty comfortable now saying they've gone. The 'only' two things I still have are the palpitations and difficulty breathing. But that's rare now and they come together and only when I overdo it (last time when I was watching a missed Dave Allen episode on youtube).
Many of the symptoms reported in Long-Covid (such as these) are identical to those which I had after suffering from Myocarditis in 2012. I was/am fit, slim and do a reasonable amount of exercise. After the immediate recovery from the virus itself, I also started noticing lots of strange things which could never be explained, so I'd be interested to know if any of these have come up:- A strange sensation that I was going to drop whatever I was holding, like a cup of tea. I was just hit with an overwhelming urge to put down whatever I was holding as soon as possible. I never did drop anything but it was the strangest thing, that lasted a couple of years and then suddenly went away. I'd also occasionally feel it whilst holding the steering wheel when driving.
- A complete lack of tolerance to being warm. Sweating, just wearing t-shirts when everyone else was in jumpers etc. I'd still get cold if outside in winter etc, but summer was unbearable.
- A sudden urge to sleep and absolutely no way of shaking it off. I'd also wake up every morning feeling like I'd not slept at all.
They tested me for everything going but found nothing. My overall condition was put down to 'post viral fatigue' but there was very little support. I ended up working 2 days a week for the best part of 9 months during the worst phase of the tiredness.
GT3Manthey As an add on to my previous comment I've since discovered that cold isn't my lung's friend. Found this out when I went out to pickup my groceries that were being delivered. I'm getting round that by moving food delivery slots to the evening so husband can go meet the driver at the gate. I'll still put the food away because I need to feel I'm contributing something. We're going around the house at the weekend and 'cold proofing' it so I don't get any unwelcome surprises. Damm it's so frustrating with all the middle east closed down as the weather would be perfect till March. Ho hum.
Prof Prolapse I agree with your last comment that most people will get through it.
Edited by Julia121 on Thursday 29th October 18:56
Prof Prolapse said:
I had Pneumonia earlier this year, yes. No MRI though, (I think they use X-rays to image don't they?). In any instance I avoided hospitalisation so no scans, just antibiotics and sent home. I was 33 and very fit so was amazed to have caught it in the first place, but it ruined me for months. Even without COVID-19, it can take a long time to heal from Pneumonia, six months is often quoted (https://www.blf.org.uk/support-for-you/pneumonia/recovery).
All I meant by my previous comment was that "Post viral fatigue" and the protracted healing times from Pneumonia, are well known even if their underlying mechanisms are not fully understood. I'm just personally, struggling to see how COVID-19 is unique in this regard, and more importantly I'm not sure it really matters as it's difficult to see how it's going to guide treatment.
I'm all for research, but not media scare mongering guiding decisions, or healthcare. I think what would be more helpful, is knowing that these sequelae often exist for many infections, and the overwhelming majority will heal up and be fine.
Sorry yes X-ray although she's had so many tests and more to come that i'm getting a tad confused as you might imagine.All I meant by my previous comment was that "Post viral fatigue" and the protracted healing times from Pneumonia, are well known even if their underlying mechanisms are not fully understood. I'm just personally, struggling to see how COVID-19 is unique in this regard, and more importantly I'm not sure it really matters as it's difficult to see how it's going to guide treatment.
I'm all for research, but not media scare mongering guiding decisions, or healthcare. I think what would be more helpful, is knowing that these sequelae often exist for many infections, and the overwhelming majority will heal up and be fine.
As an update she tried to go for a jog this morning ( she wont bloody listen to reason) came over feeling sick with a few hundred yards and looked at her Iwatch that read 205bpm.
Next Wednesday she has the next MRi where they inject her to get her heart racing prior to going into the MRI
Julia121 said:
GT3Manthey As an add on to my previous comment I've since discovered that cold isn't my lung's friend. Found this out when I went out to pickup my groceries that were being delivered. I'm getting round that by moving food delivery slots to the evening so husband can go meet the driver at the gate. I'll still put the food away because I need to feel I'm contributing something. We're going around the house at the weekend and 'cold proofing' it so I don't get any unwelcome surprises. Damm it's so frustrating with all the middle east closed down as the weather would be perfect till March. Ho hum.
She is generally always cold but you make a good point in that maybe her breathlessness might be heightened by the change in temperature.Edited by Julia121 on Thursday 29th October 18:56
Tks for everyone's input
GT3Manthey said:
Sorry yes X-ray although she's had so many tests and more to come that i'm getting a tad confused as you might imagine.
As an update she tried to go for a jog this morning ( she wont bloody listen to reason) came over feeling sick with a few hundred yards and looked at her Iwatch that read 205bpm.
Next Wednesday she has the next MRi where they inject her to get her heart racing prior to going into the MRI
I'm no expert myself so no need to say sorry.As an update she tried to go for a jog this morning ( she wont bloody listen to reason) came over feeling sick with a few hundred yards and looked at her Iwatch that read 205bpm.
Next Wednesday she has the next MRi where they inject her to get her heart racing prior to going into the MRI
I feel for her, regardless of ill health, if I don't exercise I feel soft, weak and anxious, I'm like a dog that needs walked, and that's an extra psychological pressure you don't need when you're sick. Personally I think exercise is OK if you know your body and don't push it too hard, but it sounds like she went beyond that. We all need to be kind to ourselves when we're ill, but exercising, correctly, is important.
Best of luck to her (and indeed everyone) but I think it's ok to be optimistic, we'll all get through it. Just need to be patient.
I had covid back in March. I gave it to someone who had a positive test and i've had a positive antibody test.
Ever since, I get hot flushes, often a couple of times a day. I haven't gone to a doctor or anything because i'm not the type but it is fairly odd and I thought it would go by now. I was pretty unwell feeling for a couple weeks when I had it but apart from the flushes, all seems well.
Ever since, I get hot flushes, often a couple of times a day. I haven't gone to a doctor or anything because i'm not the type but it is fairly odd and I thought it would go by now. I was pretty unwell feeling for a couple weeks when I had it but apart from the flushes, all seems well.
I had it in April, was off work for 6 weeks. Bad fatigue, usual sort of stuff. Just avoided a hospital stay.
Ever since then I’ve really struggled walking uphill, and stairs. Get really out of breath, a bit fatigued, Don’t need to be long hills either. Am back exercising and can run 5k again (just!) with no ill effects but walking up hills or stairs just break me. Going to see the gp again soon, mate who is an icu doc on COVID wards suggested I should do that.
Ever since then I’ve really struggled walking uphill, and stairs. Get really out of breath, a bit fatigued, Don’t need to be long hills either. Am back exercising and can run 5k again (just!) with no ill effects but walking up hills or stairs just break me. Going to see the gp again soon, mate who is an icu doc on COVID wards suggested I should do that.
It seems those who have had covid are at an increased risk of developing a psychiatric condition as a result of the disease.
https://www.theguardian.com/world/2020/nov/10/near...
https://www.theguardian.com/world/2020/nov/10/near...
BlackLabel said:
It seems those who have had covid are at an increased risk of developing a psychiatric condition as a result of the disease.
https://www.theguardian.com/world/2020/nov/10/near...
Fortunately my Wife has none of those....Maybe she was mental to start with and i never realised ! https://www.theguardian.com/world/2020/nov/10/near...
Consultant said y'day the damage to her heart and lungs wont repair so its a case of monitoring her condition and if worsens we'll have to discuss what can be done,although that bit he didnt go into any detail.
She is likely to go back and have another check up in 6 months time unless the situation worsens then we go back immediately.
What this means for her in a few years time is to us the unknown right now
Daughter’s spoken to a cardiac consultant now. Again, ‘nothing to worry about’. Got ectopic heartbeat (which daughter thinks is making her cough – I Googled that and seems it does happen), very low blood pressure (wants her to have more salt). Thinks chest pain is lingering pleurisy.
She’s been taking Q10 tablets for a couple of weeks and reckons she feels less breathless, although (touch wood) her youngest child has been sleeping better lately so that must help.
She’s been taking Q10 tablets for a couple of weeks and reckons she feels less breathless, although (touch wood) her youngest child has been sleeping better lately so that must help.
Sheepshanks said:
Daughter’s spoken to a cardiac consultant now. Again, ‘nothing to worry about’. Got ectopic heartbeat (which daughter thinks is making her cough – I Googled that and seems it does happen), very low blood pressure (wants her to have more salt). Thinks chest pain is lingering pleurisy.
She’s been taking Q10 tablets for a couple of weeks and reckons she feels less breathless, although (touch wood) her youngest child has been sleeping better lately so that must help.
The wife got the results back of the most recent MRI last week and basically there is no change.She’s been taking Q10 tablets for a couple of weeks and reckons she feels less breathless, although (touch wood) her youngest child has been sleeping better lately so that must help.
The damage wont be going away. She has the same symptoms in fact her BPM is getting worse in terms of how often it goes nuts when resting.
Cardiologist said " listen to your body and rest when you feel you need to and come back and see me in 6 months".
She has no medication either so essentially we are no further forward and have no way of knowing where this may lead to
My mum has it and is in hopspital with it shes 88,
shes currently on a covid ward but is being transfered to another hospital for rehabilitation for it,
the nurse was at pains to say though that it can take months,
i didnt ask her at the time if she meant mum would take mums or covid can take months
i cant fault the nhs, its a marvellous thing
shes currently on a covid ward but is being transfered to another hospital for rehabilitation for it,
the nurse was at pains to say though that it can take months,
i didnt ask her at the time if she meant mum would take mums or covid can take months
i cant fault the nhs, its a marvellous thing
Small sample I know, but many of the reports I've seen/read about long term fatigue and heart issues are from middle aged (30s to 50s) previously healthy women, often with a strong interest in fitness - either for their job or otherwise just very active and fit. A lot seem to mention overdoing it rather than resting while initially recovering, and a lot with various health test results that come back fine but they still suffer phantom virus symptoms. There are different strands including actual organ damage, but in many it seems to knock the body's heart and breathing regulatory systems out somehow, so could be brain or neurological in some cases?
Hub said:
Small sample I know, but many of the reports I've seen/read about long term fatigue and heart issues are from middle aged (30s to 50s) previously healthy women, often with a strong interest in fitness - either for their job or otherwise just very active and fit. A lot seem to mention overdoing it rather than resting while initially recovering, and a lot with various health test results that come back fine but they still suffer phantom virus symptoms. There are different strands including actual organ damage, but in many it seems to knock the body's heart and breathing regulatory systems out somehow, so could be brain or neurological in some cases?
This is exactly my wife situation !We've had no mention of brain or neurological from any doc/consultant only the affected areas themselves that have conformed the damage.
She's not suffering phantom virus symptoms now just has the after effects. As previously mentioned she was very preparing for half marathon as well as busy all day.
I thought they may try and restart her heart but seemingly not
Hub said:
Small sample I know, but many of the reports I've seen/read about long term fatigue and heart issues are from middle aged (30s to 50s) previously healthy women, often with a strong interest in fitness - either for their job or otherwise just very active and fit. A lot seem to mention overdoing it rather than resting while initially recovering, and a lot with various health test results that come back fine but they still suffer phantom virus symptoms. There are different strands including actual organ damage, but in many it seems to knock the body's heart and breathing regulatory systems out somehow, so could be brain or neurological in some cases?
There seems to be a lot of assumptions and extrapolations to reach your conclusion.Hub said:
Small sample I know, but many of the reports I've seen/read about long term fatigue and heart issues are from middle aged (30s to 50s) previously healthy women, often with a strong interest in fitness - either for their job or otherwise just very active and fit. A lot seem to mention overdoing it rather than resting while initially recovering, and a lot with various health test results that come back fine but they still suffer phantom virus symptoms. There are different strands including actual organ damage, but in many it seems to knock the body's heart and breathing regulatory systems out somehow, so could be brain or neurological in some cases?
I don't think my mid 30's daughter would be very thrilled to be refered to as middle aged! However the description above has become common and in addition to the things I mentioned earlier, she is getting the 'brain fog' thing also often referred to. She's not bad - you hear of some people who can barely walk up a flight of stairs - but she can't run, is knackered all time, and she said the chest pain can be pretty bad, certainly enough to keep her awake.Bit of a bump I know but there doesn't seem to be a more active topic on this one.
I just wondered if any of you (or those you know) have noticed tinnitus type symptoms appear unannounced as part of this?
I had what I considered to be "a bit of a cold" back in late Feb that went away and then appeared again later, fairly mild, temperature, fatigue, sore throat, bit of a cough etc but nothing different to the usual colds and man flu.
Since the end of March or so I've had issues with breathing (it feels like I have less capacity and I get out of breath doing basic things like having a conversation or going upstairs some days) but then in the last month of so I have what I presume to be tinnitus.
I've had blood tests, checks by the doc and recently got sent for an x-ray but, x-ray aside as the results are still outstanding, nothing is abnormal. I forgot to mention the ear thing to the doctor but I was just curious if anyone else had noticed it.
I haven't had an antibody test and have never actually tested positive for Covid so it's all a bit of a mystery and I'm certainly not trying to jump on the "Covid survivor" bandwagon like some. I did have a couple of Covid tests later in the year that were prompted by the ZOE study in order to test the process but they came back negative (they still routinely ask me to have tests done but I haven't since July as it seems like a waste of resources and a bit of a stat building exercise).
I was just curious, while not the fittest specimen out there I'm a bit befuddled by all of this, the doctor seems to be too.
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