Discussion
Prof Prolapse said:
Personally I'd be wary of public forums and anecdotes from Joe Public as a reference for the symptoms of long covid.
I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times. So you to understand that evidence made on forums etc. is anecdotal, and not necessarily representative of the bigger picture, which we've yet to see.
If that makes sense...
Agreed, I said as much to my Mrs and daughter just the other day. They had it same time as me and we were saying how likely it is that any given day we just feel a bit crap, we will all likely think...covid! , which is unlikely to be the case!! The smell, taste and naseua thing is bloody wearing now but we had it easy, certainly compared to the op mrs. I wish her a speedy and safe recovery. I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times. So you to understand that evidence made on forums etc. is anecdotal, and not necessarily representative of the bigger picture, which we've yet to see.
If that makes sense...
Sheepshanks said:
Our daughter got Covid very early on but never tested positive. However her GP was certain she'd had it, and when her lungs were x-rayed they said they were certain too.
As seems to be typical with the NHS, if there isn't an obvious fix they just shrug. Like taking your car to a dealer and they're stuffed if it doesn't have a fault code logged.
What should scare people is it seems even those who are asymptomatic can suffer a degree of organ damage.
Source for that last sentence? It sounds like scare-mongering to me.As seems to be typical with the NHS, if there isn't an obvious fix they just shrug. Like taking your car to a dealer and they're stuffed if it doesn't have a fault code logged.
What should scare people is it seems even those who are asymptomatic can suffer a degree of organ damage.
biggbn said:
Agreed, I said as much to my Mrs and daughter just the other day. They had it same time as me and we were saying how likely it is that any given day we just feel a bit crap, we will all likely think...covid! , which is unlikely to be the case!! The smell, taste and naseua thing is bloody wearing now but we had it easy, certainly compared to the op mrs. I wish her a speedy and safe recovery.
Many tks. I just checked back to when i first listed this thread ( October 2020) and how long she'd already been having the issues with Long Covid ( May 2020) and that nothing in her well being has changed.
So 9 months on and no progress in shaking this off or any form of natural repair and yet you get these absolute morons that say Covid doesnt exist.
Between us we have drawn the conclusion that her current situation is how things will remain at best.
After 8 months, the tiredness, occasional light headedness, muscle aches and headaches feel like they're going. Walking upstairs no longer feels like I'm carrying 20kg.
I still have the pins & needles on my left side and this week the ankle has been very itchy and also slight red welts appeared on the toes.
So we can't have any idea about longterm effects.
I still have the pins & needles on my left side and this week the ankle has been very itchy and also slight red welts appeared on the toes.
So we can't have any idea about longterm effects.
I thought I'd add to this as reading a lot of things at the moment that tally up with what I've been experiencing. I should note that I also suffer with Crohns Disease and I am on an immune suppressing 'mab' type drug, and for the beginning of the year was also on Steroids as for the first time in 8 years I was having a really bad flare to the extent that it appeared my medication had stopped working.
Around March I started noticing an issue with my breathing where I was getting wheezy but thought it may have been the starts of hayfever/asthma. Never really had a cough, more a lot of clearing my throat type of thing. I struggled on not really wanting to go near a doctors given the Crohns and Steroids.
Things then started to get worse, I was very shaky, occasional dizziness, felt lightheaded when walking. I had rashes down both sides of my torso and across my stomach. Racing and pounding heartbeat and occasionally a weird like heart stutter/double beat. I was struggling to sleep, when I did, I occasionally woke up soaked in sweat. Headaches on a daily basis. The chest issue was worse but I was still not coughing just clearing my throat very often. Tinnitus also started. Got pins and needles really easily, occasional aches and pains, and a strange on an off buzzing feeling in my feet.
Finally saw the GP and because I had some much going on, it was put down to crohns, anxiety, the steroids (I'd finished them at this point as my traditional crohns symptoms stopped), and after a chest xray turned out I was also fighting what was deemed to be a mild chest infection. Given antibiotics for a week and it seemed to clear up.
Very very slowly over time things have improved, but I'm still having things linger or they go and come back. The shakes have gone, I'm sleeping better (sometimes I get a good night, sometimes not). My heart doesn't really race so much now, but it still pounds really hard sometimes and I still get the stutters occasionally. I still have a very slight wheeze and tightness on my chest but no feeling of needing to 'clear' anything very often. I've found with the chest and heart thing can depend on how anxious/stressed (now back in work) I am. If I'm walking and talking I get short of breath really easily. Tinnitus never stopped and is ongoing. Still sometimes wake up sweaty in bed. Headaches, dizziness, and joint aches I tend to now have phases of, periods of being fine, and periods of putting up with it. Rashes on my torso come and go.
The worst thing by far though is the fatigue. I'm 30, slim, and after work I used to lift weights 5 times a week and cycle once a week. I now seem to make it through work okay, but as soon as I get home, I die on the sofa. Its the sort of tiredness where your eyes are stinging.
I've considered talking to my GP, but part of me just thinks what's the point? It doesn't seem as though there is much that can be done. It feels like something that I just need to hope improves over time. I hope so because I miss working out, but at the same time I just cant face it.
Around March I started noticing an issue with my breathing where I was getting wheezy but thought it may have been the starts of hayfever/asthma. Never really had a cough, more a lot of clearing my throat type of thing. I struggled on not really wanting to go near a doctors given the Crohns and Steroids.
Things then started to get worse, I was very shaky, occasional dizziness, felt lightheaded when walking. I had rashes down both sides of my torso and across my stomach. Racing and pounding heartbeat and occasionally a weird like heart stutter/double beat. I was struggling to sleep, when I did, I occasionally woke up soaked in sweat. Headaches on a daily basis. The chest issue was worse but I was still not coughing just clearing my throat very often. Tinnitus also started. Got pins and needles really easily, occasional aches and pains, and a strange on an off buzzing feeling in my feet.
Finally saw the GP and because I had some much going on, it was put down to crohns, anxiety, the steroids (I'd finished them at this point as my traditional crohns symptoms stopped), and after a chest xray turned out I was also fighting what was deemed to be a mild chest infection. Given antibiotics for a week and it seemed to clear up.
Very very slowly over time things have improved, but I'm still having things linger or they go and come back. The shakes have gone, I'm sleeping better (sometimes I get a good night, sometimes not). My heart doesn't really race so much now, but it still pounds really hard sometimes and I still get the stutters occasionally. I still have a very slight wheeze and tightness on my chest but no feeling of needing to 'clear' anything very often. I've found with the chest and heart thing can depend on how anxious/stressed (now back in work) I am. If I'm walking and talking I get short of breath really easily. Tinnitus never stopped and is ongoing. Still sometimes wake up sweaty in bed. Headaches, dizziness, and joint aches I tend to now have phases of, periods of being fine, and periods of putting up with it. Rashes on my torso come and go.
The worst thing by far though is the fatigue. I'm 30, slim, and after work I used to lift weights 5 times a week and cycle once a week. I now seem to make it through work okay, but as soon as I get home, I die on the sofa. Its the sort of tiredness where your eyes are stinging.
I've considered talking to my GP, but part of me just thinks what's the point? It doesn't seem as though there is much that can be done. It feels like something that I just need to hope improves over time. I hope so because I miss working out, but at the same time I just cant face it.
Interesting article on the atlantic about this, including some likely causes and treatments/exercises that might help those struggling:
https://www.theatlantic.com/magazine/archive/2021/...
Talks about many were found to have different breathing patterns which can cause all sorts of issues, exercises of focusing on deep breathing through the nose seem to help.
https://www.theatlantic.com/magazine/archive/2021/...
Talks about many were found to have different breathing patterns which can cause all sorts of issues, exercises of focusing on deep breathing through the nose seem to help.
V8covin said:
I shouldn't be surprised,many people have very superficial interests,never watch the news,the only topics of conversation being the latest episodes of Love Island and the like
Must be . My wife still suffers from long COVID .
Her heart rate still reaches almost 200 BPM so she is going back to see the private cardiologist although previously he said the damage to her heart and left lung was done and there was nothing they could do.
Makes me wonder if he is just cashing in on a follow up appointment as I don’t know what else he can offer her.
Problem with long COVID is there is no history to know how to deal with it .
Anyway, onwards and upwards
GT3Manthey said:
Must be .
My wife still suffers from long COVID .
Her heart rate still reaches almost 200 BPM so she is going back to see the private cardiologist although previously he said the damage to her heart and left lung was done and there was nothing they could do.
Makes me wonder if he is just cashing in on a follow up appointment as I don’t know what else he can offer her.
Problem with long COVID is there is no history to know how to deal with it .
Anyway, onwards and upwards
Well I've never had a covid test but have had long covid symptoms for a year..... fatigue, breathlessness and quicker heart rate for a few seconds for no apparent reason.My wife still suffers from long COVID .
Her heart rate still reaches almost 200 BPM so she is going back to see the private cardiologist although previously he said the damage to her heart and left lung was done and there was nothing they could do.
Makes me wonder if he is just cashing in on a follow up appointment as I don’t know what else he can offer her.
Problem with long COVID is there is no history to know how to deal with it .
Anyway, onwards and upwards
I was under the hospital because they thought initially I'd had a mini stroke.....covid never came into the conversation and I've been left to my own devices really
I’ve had Covid twice (March 2020, and Jan 2021), and now I’m suffering what what they’re calling long Covid. It’s not anything major that stops me living a normal life, it’s just lots of little things. Such as:
Constant tiredness.
Insomnia when I actually want to go to bed.
Aching arm muscles if I’m doing anything that involves lifting my arms up.
Short term memory loss. I forget everything at the minute!
Blocked ears (you know that sensation of your ears being full of water, then they pop. All day every day)
Cuts/scratches are taking ages to heal
I get out of breath easily
I’ve had more headaches in the past 6 months, then the rest of my life.
I’ve spoke to various doctors about it. Had a chest X-ray that was clear, and my bloods were fine. They didn’t really have an answer for it, but the advice was get more sleep and suck it up really.
I work between 45-60 hours per week (mon - fri) and by Friday evening I’m exhausted.
I’m 34, and slightly overweight. After my first bout of Covid, I was on furlough, so did a couch to 5k, then continued onto 10k. But since getting the virus for a second time, I doubt I could run 1k.
I had my first vaccine a few weeks ago, and it amplified every symptom I had. I ended up in bed for 4 days. I’m dreading getting the second vaccine.
Like I said, compared to some people it’s nothing, but I’m at about 75-80% of my usual health, and after 6 months it’s really starting to grate on me! Now my annual hayfeaver has kicked in, just to add insult to injury.
Constant tiredness.
Insomnia when I actually want to go to bed.
Aching arm muscles if I’m doing anything that involves lifting my arms up.
Short term memory loss. I forget everything at the minute!
Blocked ears (you know that sensation of your ears being full of water, then they pop. All day every day)
Cuts/scratches are taking ages to heal
I get out of breath easily
I’ve had more headaches in the past 6 months, then the rest of my life.
I’ve spoke to various doctors about it. Had a chest X-ray that was clear, and my bloods were fine. They didn’t really have an answer for it, but the advice was get more sleep and suck it up really.
I work between 45-60 hours per week (mon - fri) and by Friday evening I’m exhausted.
I’m 34, and slightly overweight. After my first bout of Covid, I was on furlough, so did a couch to 5k, then continued onto 10k. But since getting the virus for a second time, I doubt I could run 1k.
I had my first vaccine a few weeks ago, and it amplified every symptom I had. I ended up in bed for 4 days. I’m dreading getting the second vaccine.
Like I said, compared to some people it’s nothing, but I’m at about 75-80% of my usual health, and after 6 months it’s really starting to grate on me! Now my annual hayfeaver has kicked in, just to add insult to injury.
Andyjc86 said:
I’ve had Covid twice (March 2020, and Jan 2021), and now I’m suffering what what they’re calling long Covid. It’s not anything major that stops me living a normal life, it’s just lots of little things. Such as:
Constant tiredness.
Insomnia when I actually want to go to bed.
Aching arm muscles if I’m doing anything that involves lifting my arms up.
Short term memory loss. I forget everything at the minute!
Blocked ears (you know that sensation of your ears being full of water, then they pop. All day every day)
Cuts/scratches are taking ages to heal
I get out of breath easily
I’ve had more headaches in the past 6 months, then the rest of my life.
I’ve spoke to various doctors about it. Had a chest X-ray that was clear, and my bloods were fine. They didn’t really have an answer for it, but the advice was get more sleep and suck it up really.
I work between 45-60 hours per week (mon - fri) and by Friday evening I’m exhausted.
I’m 34, and slightly overweight. After my first bout of Covid, I was on furlough, so did a couch to 5k, then continued onto 10k. But since getting the virus for a second time, I doubt I could run 1k.
I had my first vaccine a few weeks ago, and it amplified every symptom I had. I ended up in bed for 4 days. I’m dreading getting the second vaccine.
Like I said, compared to some people it’s nothing, but I’m at about 75-80% of my usual health, and after 6 months it’s really starting to grate on me! Now my annual hayfeaver has kicked in, just to add insult to injury.
There's a support group on Facebook that might be of assistance.Constant tiredness.
Insomnia when I actually want to go to bed.
Aching arm muscles if I’m doing anything that involves lifting my arms up.
Short term memory loss. I forget everything at the minute!
Blocked ears (you know that sensation of your ears being full of water, then they pop. All day every day)
Cuts/scratches are taking ages to heal
I get out of breath easily
I’ve had more headaches in the past 6 months, then the rest of my life.
I’ve spoke to various doctors about it. Had a chest X-ray that was clear, and my bloods were fine. They didn’t really have an answer for it, but the advice was get more sleep and suck it up really.
I work between 45-60 hours per week (mon - fri) and by Friday evening I’m exhausted.
I’m 34, and slightly overweight. After my first bout of Covid, I was on furlough, so did a couch to 5k, then continued onto 10k. But since getting the virus for a second time, I doubt I could run 1k.
I had my first vaccine a few weeks ago, and it amplified every symptom I had. I ended up in bed for 4 days. I’m dreading getting the second vaccine.
Like I said, compared to some people it’s nothing, but I’m at about 75-80% of my usual health, and after 6 months it’s really starting to grate on me! Now my annual hayfeaver has kicked in, just to add insult to injury.
anonymous said:
[redacted]
A year on we are booking another private cardiologist for my wife as her heart issues havnt resolved themselves. The first private cardiologist after all the scans etc confirmed the damage to her heart and left lung but offered no medication only “ come back and see me in 6 months if there is no change” so we need a 2nd opinion.
I think most medical experts can confirm what’s happening but they don’t know how to deal with it
Got Covid quite badly in January. The main symptoms lasted 3 weeks afterwhich I forced myself to work.
Since then I've been utterly devoid of energy (used to train quite hard 4-5 times per week).
Not formerly diagnosed with long covid but seems to fit in with published symptoms.
Anyone else?
Since then I've been utterly devoid of energy (used to train quite hard 4-5 times per week).
Not formerly diagnosed with long covid but seems to fit in with published symptoms.
Anyone else?
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