Charlie Gard

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Discussion

anonymous-user

55 months

Monday 17th July 2017
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jjlynn27 said:
babatunde said:
One of my sons spent time at GOSH from about 2 weeks old, so I guess I'm biased as well, but there is reason it's considered one of the best children's hospitals in the world.
From the 'other side of the fence', few of my friends did their rotas at GOSH, and their description is that you learn more there in 6 months stint that than in some hospitals in a year or two. Absolutely brutal pace, but it looks very very good on a CV or presentation, or whatever it's called these days.
Same result surely?

jjlynn27

7,935 posts

110 months

Monday 17th July 2017
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garyhun said:
jjlynn27 said:
babatunde said:
One of my sons spent time at GOSH from about 2 weeks old, so I guess I'm biased as well, but there is reason it's considered one of the best children's hospitals in the world.
From the 'other side of the fence', few of my friends did their rotas at GOSH, and their description is that you learn more there in 6 months stint that than in some hospitals in a year or two. Absolutely brutal pace, but it looks very very good on a CV or presentation, or whatever it's called these days.
Same result surely?
Not sure that I understand. I'll blame my Engrish. The point that I was making is that we've heard parents experiences of GOSH. What I'm saying docs working there think the same, cutting edge, brutal pace, but very very satisfying.

V8LM

5,174 posts

210 months

Monday 17th July 2017
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Let's not forget it was GOSH who pushed for this recent Court case, not that their doctors have changed their minds but because they were aware of new claims about the 'therapy'.

anonymous-user

55 months

Monday 17th July 2017
quotequote all
jjlynn27 said:
garyhun said:
jjlynn27 said:
babatunde said:
One of my sons spent time at GOSH from about 2 weeks old, so I guess I'm biased as well, but there is reason it's considered one of the best children's hospitals in the world.
From the 'other side of the fence', few of my friends did their rotas at GOSH, and their description is that you learn more there in 6 months stint that than in some hospitals in a year or two. Absolutely brutal pace, but it looks very very good on a CV or presentation, or whatever it's called these days.
Same result surely?
Not sure that I understand. I'll blame my Engrish. The point that I was making is that we've heard parents experiences of GOSH. What I'm saying docs working there think the same, cutting edge, brutal pace, but very very satisfying.
I'm agreeing with you - hopefully!

TwigtheWonderkid

43,449 posts

151 months

Monday 17th July 2017
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handpaper said:
The thing with the "religious Right"... one of the places I reposted Wiccan's info/analysis was Breitbart. Very interesting range of responses. Some happy to get decent gen, some at least willing to engage on the issue of how far "parental rights" should go, but a lot of (mainly) Americans determined to retain their hold on the wrong end of the stick.
Saddest are those using the case to attack the NHS, secure in their ignorance that a baby born in similar circumstances in the US would probably have been dead for months by now.
Ironic that the religious right in the US are so anti free healthcare. If Jesus existed at all, I suspect he is more famous for handing out free healthcare than anything else. It was his USP, ffs! That and the famous dad.

Unless I read it wrong and the leapers and the blind got an invoice in the post!

Wiccan of Darkness

1,839 posts

84 months

Monday 17th July 2017
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ModernAndy said:
ALawson said:
Could the treatment effectively accelerate the rate ATP is used up by the body?
Wiccan will be along to answer this properly but I believe this is what he said would most likely happen in an earlier post.
The truthful answer is nobody knows as it hasn't been tested even in mice. My working hypothesis is that it would use more ATP than it can provide in the longer term, the situation is so damn precarious that increasing the requirement will push things over the edge. It won't accelerate its use, I simply suspect that ATP will simply be in such short supply that what little is available, will be squandered to pump nucleotides across cell membranes.

Further bits of his condition are being released daily as the case goes on, and in the last few days it has been confirmed that Charlies EEG readings show dramatic variations in electrical activity within the brain. That's hardly surprising considering the number of synaptic connections that have fried, all the wiring in the brain is short circuiting. In laymans terms that manifests itself as epilepsy, and a report from yesterday suggested this is happening in regular cycles, roughly every 20 minutes. Since his muscles basically don't work, the seizures can only be detected via EEG readings. But that's not to say residual electrical impulses continue and remain within the tissues, causing twitching. Charlies parents say he responds to stimuli; I suspect these responses are residual electrical stimuli causing random twitching.

It was also revealed today that the doctor from the US is to review Charlies medical notes for the first time today, having claimed the treatment has 10% chance of success (which has been translated as a 10% chance of improvement in condition (false) and then a 10% chance of a total cure, ffs) he has never reviewed the patient notes.

To make public a claim of success without reviewing patient notes is a pretty big breach of medical protocol. Judgement is in 8 days time.

Meanwhile, by all means link these posts to the wider social media, as a few have commented the likes of facebook and twitter seem to be populated by the great illiterati.

I've often said that human ingenuity is limited only by human imagination and the laws of physics; human stupidity, however, suffers none of these limitations.

Again, thank you to those who have PM'd their support. Makes it worthwhile.

theinstaller

40 posts

133 months

Monday 17th July 2017
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I'm not a big poster on PH as you can probably tell, but the explanations given regarding Charlies condition and proposed treatment certainly have made things so much clearer, so thank you.

GreatGranny

9,141 posts

227 months

Tuesday 18th July 2017
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Thanks Wiccan yet again.

Just had a quick read on Twitter and it's getting hysterical
Must say a lot from the USA posting actual bullst.
In fact its all bullst and if you dare to stick up for GOSH or disagree with those calling for the treatment you are shot down under a tirade of further bullst.
I'm sure most have only gained knowledge of this from social media

They are accusing GOSH of lies and deceit and basically the courts decision (if in favour of no further treatment) is murder.

this is going to run and run no matter what the court decides.

4Q

3,365 posts

145 months

Tuesday 18th July 2017
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Thanks again Wiccy, It's informed posts like yours which make PH great.


BTW, I've not seen this quote before but I love it

Wiccan of Darkness said:
human ingenuity is limited only by human imagination and the laws of physics; human stupidity, however, suffers none of these limitations.

Vizsla

923 posts

125 months

Tuesday 18th July 2017
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4Q said:
Thanks again Wiccy, It's informed posts like yours which make PH great.


BTW, I've not seen this quote before but I love it

Wiccan of Darkness said:
human ingenuity is limited only by human imagination and the laws of physics; human stupidity, however, suffers none of these limitations.
I think it's along the lines of this Einstein quote (could be Wiccy's is the original?) :

"Only two things are infinite, the universe and human stupidity, and I'm not sure about the former."

If only Albert had lived to see some of the stuff on Facebook and Twitter, infinite with a side order of extra stupid smile


TwigtheWonderkid

43,449 posts

151 months

Tuesday 18th July 2017
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If the combined IQ of #Charlies Army (sic) were points on your driving licence, you'd still be a little way off a ban.

dandarez

13,294 posts

284 months

Tuesday 18th July 2017
quotequote all
Vizsla said:
4Q said:
Thanks again Wiccy, It's informed posts like yours which make PH great.


BTW, I've not seen this quote before but I love it

Wiccan of Darkness said:
human ingenuity is limited only by human imagination and the laws of physics; human stupidity, however, suffers none of these limitations.
I think it's along the lines of this Einstein quote (could be Wiccy's is the original?) :

"Only two things are infinite, the universe and human stupidity, and I'm not sure about the former."

If only Albert had lived to see some of the stuff on Facebook and Twitter, infinite with a side order of extra stupid smile
Needs a bit of light-heartedness in this awful story, so I'm glad Wiccan is now being termed 'Wiccy'. biggrin
I confess to being a little intrigued by his username, given the 99.9 percent who rage with intensity against any or all strains of religions on these forums, I'm guessing Wiccy's 'worshippers' may not realise the meaning of the term Wiccan?

I suspect, and hope, he will tell us that his username is meant to be jovial - and does not mean he will be found with other followers hovering around the large Stones in Wiltshire at the Autumn Equinox. hehe

4Q

3,365 posts

145 months

Tuesday 18th July 2017
quotequote all
dandarez said:
I'm glad Wiccan is now being termed 'Wiccy'.
Wiccan of Darkness said:
Everyone calls me wiccy btw..

northwest monkey

6,370 posts

190 months

Tuesday 18th July 2017
quotequote all
KTF said:
TurbosSuck said:
It's worth remembering that the parents are gaining both fame and money while this is continuing. I wouldn't be so callous as to suggest that might be fuelling their fight, but it's not outside the realm of possibility either.
When its all done and dusted, watch them sell the story to one of the red tops, appear on loose women and the ilk. I cant see them suddenly disappearing into obscurity if they don't get their own way (whatever that is now).
B.B.C.

Book out.
By.
Christmas.

clonmult

10,529 posts

210 months

Wednesday 19th July 2017
quotequote all
northwest monkey said:
KTF said:
TurbosSuck said:
It's worth remembering that the parents are gaining both fame and money while this is continuing. I wouldn't be so callous as to suggest that might be fuelling their fight, but it's not outside the realm of possibility either.
When its all done and dusted, watch them sell the story to one of the red tops, appear on loose women and the ilk. I cant see them suddenly disappearing into obscurity if they don't get their own way (whatever that is now).
B.B.C.

Book out.
By.
Christmas.
I'm hoping that they don't go that route, although I wouldn't be surprised.

northwest monkey

6,370 posts

190 months

Wednesday 19th July 2017
quotequote all
clonmult said:
northwest monkey said:
KTF said:
TurbosSuck said:
It's worth remembering that the parents are gaining both fame and money while this is continuing. I wouldn't be so callous as to suggest that might be fuelling their fight, but it's not outside the realm of possibility either.
When its all done and dusted, watch them sell the story to one of the red tops, appear on loose women and the ilk. I cant see them suddenly disappearing into obscurity if they don't get their own way (whatever that is now).
B.B.C.

Book out.
By.
Christmas.
I'm hoping that they don't go that route, although I wouldn't be surprised.
Same here, but the parents (in particular the father) seem to revel in playing this whole sorry situation out all over social media, the press etc. Maybe I'm just being cynical, but I'd bet a virtual pint I'm not.

pidsy

8,011 posts

158 months

Wednesday 19th July 2017
quotequote all
Breaking news - Charlie is now a US citizen.

I've been following this thread for some time - Wicci has certainly added a great deal of depth to the discussion - I didn't want to comment but it's starting to rile me too much.

I hate the whole social media bandwagon society that we have today. There are countless parents who have babies that are born very ill and die, some die immediately, some die a little down the line. The truly unfortunate have babies that die before birth.

Yet, you don't see the majority of these families courting social media, the press and fighting this obscene crusade.

The reality is, that most parents in their position would let him go. Mourn, let time heal then have another child.

Not amass huge sums of cash, fight for a life which he can never have, and induce hysteria in the ill educated social media users of today.

He isn't going to get any better. Regardless of the success of this treatment. Their cash will be gone in months and they're left having to afford a very very expensive care programme for the rest of his "life".
His life would be pointless and their lives will be impossible to be happy in. Cue ugly split, tell all stories, book deals and a permanent slot on the sofa at This Morning. Campaigning and charities set up which will only serve to take attention from causes already suffering from a lack of traditional media support.

Oh, and a vigil in London too.


Just let him go.

Edited by pidsy on Wednesday 19th July 11:00

clonmult

10,529 posts

210 months

Wednesday 19th July 2017
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According to the daily mail, Charlie has been given US citizenship by congress, so he can be flown to the US for treatment.

So now the circus will move to america. Assuming he survives the flight - although he's barely surviving at the moment. They're just delaying the inevitable.

XCP

16,948 posts

229 months

Wednesday 19th July 2017
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how would that make a difference to the court case? he is still under the jurisdiction of the court is he not?

GCH

3,995 posts

203 months

Wednesday 19th July 2017
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pidsy said:
Breaking news - Charlie is now a US citizen.
No he hasn't been granted US citizenship.

He - and interestingly, also his parents - is now entitled to become a lawful permanent resident upon application or adjustment of status following entry, after the bill passed yesterday.
There is however, a world of difference between being a permanent resident and a citizen.

He has certain rights in the US upon application and issuance, but none that I can see would make any difference to his predicament at the current time, and certainly not that would over-ride the UK courts decision.