Charlie Gard

Author
Discussion

amusingduck

9,396 posts

136 months

Wednesday 26th July 2017
quotequote all
rscott said:
If you thought the Charlie's Army page was bad, try the Charlie's Army USA one.
According to them, GOSH is corrupt, the entire legal system are working together behind the scenes, etc.
If you thought that was bad, try The_Donald on reddit.

"It proves there's an EU death panel for healthcare. They sentenced that boy to die."

"Charlie's life demonstrates the evils of Socialized medicine."

"I've tried discussing this with people on my site and the British in general seem to think the medical work was (a) a financial waste, (b) unnecessary prolonging of suffering. They 100% have endorsed the Death Panels."

The delusion is off the charts.

It really does make me thankful that our brand of moron is of much higher standard.

Wiccan of Darkness

1,839 posts

83 months

Wednesday 26th July 2017
quotequote all
I'm a little surprised that a few of the posters on mumsnet took it upon themselves to make wild assumptions about my qualifications and my gender, seems like Bore of Whabylon has a lot to say about it, despite having never met me. What really shocked me was this post..

mumsnet poster contortionist said:
Tue 18-Jul-17 07:58:27
I'd assumed Wiccan was a man too. A quick search to confirm my prejudices found this unrelated post by Wiccan which strongly implies maleness I think.

Mansplaining seems an appropriate description for the combination of superficial / partial knowledge and a patronising tone of sharing great expertise.
The post was embedded, here is the link https://www.pistonheads.com/gassing/topic.asp?h=0&...

Thought it was quite amusing that someone on mumsnet has spent hours sifting through my posts to work out my gender, since obviously it makes a difference if it's explained by a man or a woman. The more I think about it though, the more I'm a little unnerved and creeped out by it.

That aside, if a few mumsnet posters wish to try and debunk what I said then that's fair enough but they seem to spend more time making assumptions about whether I'm a clinician, geneticist, armchair wikipedia reader or even a man or a woman.

That said, they seem to be pretty angry at the idiots on social media, and quite rightly so. Just think logically for one moment. Would it have even been considered possible just 12 months ago that Great Ormond Street Hospital would receive death threats and abuse against its staff? I really don't know what's happened to this country, to have a facebook army riddled with blind stupidity making threats of physical violence and borderline terrorism against the worlds leading childrens hospital.

If Mumsnet are prepared to go against that lot, then I'm 100% behind mumsnet on this one. Frankly, Mumsnet would be right to tackle them head on, armed with actual factual knowledge. Whether or not they choose to use what I have provided, is up to them. But to threaten the worlds leading childrens hospital, the staff, patients and parents of sick children is a low point that I never imagined in my wildest dreams. Society has hit lows before, but this takes some beating.

This has all stemmed from a complete ignorance as to the condition Charlie has, the prognosis, outcome and possible treatments. I've provided, to the best of my ability, very complex information delivered in a way the layman can understand. But simply to reject factual information because it is deemed as 'mansplaining' and worse to 'debunk' it without correction is just as ignorant as those displayed on social media.

hornetrider

63,161 posts

205 months

Wednesday 26th July 2017
quotequote all
rscott said:
Henners said:
I'd like to see very very close scrutiny of where the £1.3m goes (from memory it was raised for the kids treatment?).
Much of it paid directly into their account, to avoid JustGiving's fees....
Is that true?

hairykrishna

13,166 posts

203 months

Wednesday 26th July 2017
quotequote all
hornetrider said:
Is that true?
Their website encourages bank transfers to avoid gofundme and paypal fees;

http://www.charliesfight.org/

They've raised ~£1,3m on gofundme. Who knows how much directly into their account.The classy move would be to donate the lot directly to GOSH.

anonymous-user

54 months

Wednesday 26th July 2017
quotequote all
Wiccan of Darkness said:
Thought it was quite amusing that someone on mumsnet has spent hours sifting through my posts to work out my gender, since obviously it makes a difference if it's explained by a man or a woman. The more I think about it though, the more I'm a little unnerved and creeped out by it.
It's easier to attack the poster than the content. Although gender is rather broad-brush and an odd angle given the subject-matter.

The fundamental problem you have is you're dealing with people who don't start out with from a neutral position and work their ways to conclusions via the evidence. You're dealing with people who have a pre-set conclusions and filter, dismiss and attack in order to support those.

It's a waste of time to engage with them.



hornetrider

63,161 posts

205 months

Wednesday 26th July 2017
quotequote all
hairykrishna said:
hornetrider said:
Is that true?
Their website encourages bank transfers to avoid gofundme and paypal fees;

http://www.charliesfight.org/

They've raised ~£1,3m on gofundme. Who knows how much directly into their account.The classy move would be to donate the lot directly to GOSH.
What happens to this cash will be very interesting indeed. Verrrry interesting.

carl_w

9,181 posts

258 months

Wednesday 26th July 2017
quotequote all
hairykrishna said:
Their website encourages bank transfers to avoid gofundme and paypal fees;

http://www.charliesfight.org/

They've raised ~£1,3m on gofundme. Who knows how much directly into their account.The classy move would be to donate the lot directly to GOSH.
They could done the £1.3m and keep some or all of the directly-transferred money and no-one would be any the wiser.

Dogwatch

6,229 posts

222 months

Wednesday 26th July 2017
quotequote all
La Liga said:
t's easier to attack the poster than the content. Although gender is rather broad-brush and an odd angle given the subject-matter.

The fundamental problem you have is you're dealing with people who don't start out with from a neutral position and work their ways to conclusions via the evidence. You're dealing with people who have a pre-set conclusions and filter, dismiss and attack in order to support those.

It's a waste of time to engage with them.
Sad but all too true. banghead

Slaav

4,255 posts

210 months

Wednesday 26th July 2017
quotequote all
Wiccan of Darkness said:
The post was embedded, here is the link https://www.pistonheads.com/gassing/topic.asp?h=0&...

Thought it was quite amusing that someone on mumsnet has spent hours sifting through my posts to work out my gender, since obviously it makes a difference if it's explained by a man or a woman. The more I think about it though, the more I'm a little unnerved and creeped out by it.

That aside, if a few mumsnet posters wish to try and debunk what I said then that's fair enough but they seem to spend more time making assumptions about whether I'm a clinician, geneticist, armchair wikipedia reader or even a man or a woman.

That said, they seem to be pretty angry at the idiots on social media, and quite rightly so. Just think logically for one moment. Would it have even been considered possible just 12 months ago that Great Ormond Street Hospital would receive death threats and abuse against its staff? I really don't know what's happened to this country, to have a facebook army riddled with blind stupidity making threats of physical violence and borderline terrorism against the worlds leading childrens hospital.

If Mumsnet are prepared to go against that lot, then I'm 100% behind mumsnet on this one. Frankly, Mumsnet would be right to tackle them head on, armed with actual factual knowledge. Whether or not they choose to use what I have provided, is up to them. But to threaten the worlds leading childrens hospital, the staff, patients and parents of sick children is a low point that I never imagined in my wildest dreams. Society has hit lows before, but this takes some beating.

This has all stemmed from a complete ignorance as to the condition Charlie has, the prognosis, outcome and possible treatments. I've provided, to the best of my ability, very complex information delivered in a way the layman can understand. But simply to reject factual information because it is deemed as 'mansplaining' and worse to 'debunk' it without correction is just as ignorant as those displayed on social media.
Wiccy, I'm ashamed to say I can't remember (never got it really anyway smile) the finer details but did you see the message 'debunking' your clear narrative? He/she accused you of being a wiki based expert.... they must be using a different version of wiki to me if they think you've picked that up from there???

I think the mumsnet poster was trying to give the impression they were actually a clinician? What did you think? Sorry, can't face trawling through it again to find the post....

As an aside, I can't believe the parents are fighting further.... utter selfish, single minded idiots. From what I've managed to read this evening, I have now only the very tiniest slither of sympathy left for them! Idiots.


rscott

14,758 posts

191 months

Wednesday 26th July 2017
quotequote all
hairykrishna said:
hornetrider said:
Is that true?
Their website encourages bank transfers to avoid gofundme and paypal fees;

http://www.charliesfight.org/

They've raised ~£1,3m on gofundme. Who knows how much directly into their account.The classy move would be to donate the lot directly to GOSH.
And still asking for donations on their site, even after this week's ruling..

KTF

9,805 posts

150 months

Wednesday 26th July 2017
quotequote all

HTP99

22,552 posts

140 months

Wednesday 26th July 2017
quotequote all
I wonder if they've tried FB'ing or Tweeting the Dalai Lama, it's worth a shot?!

KTF

9,805 posts

150 months

Wednesday 26th July 2017
quotequote all
The parents need to get off the Internet and go and sit with their boy to spend as much of the remaining time with him.

If they don't, one day they will realise that they missed that opportunity.

TurbosSuck

193 posts

82 months

Wednesday 26th July 2017
quotequote all
This is all starting to feel a bit like an episode of Black Mirror...

GloverMart

11,818 posts

215 months

Wednesday 26th July 2017
quotequote all
KTF said:
The parents need to get off the Internet and go and sit with their boy to spend as much of the remaining time with him.

If they don't, one day they will realise that they missed that opportunity.
+1000.

For a couple that wanted to spend as much time with their dying boy as possible, they've spent a lot of time walking into courts, walking out of courts (sometimes before they were meant to!) and being on telly interviews. Just be there for the poor mite in his last few days, it's the least he deserves.

FN2TypeR

7,091 posts

93 months

Wednesday 26th July 2017
quotequote all
PorkInsider said:
KTF said:
Didnt take long.

I can imagine a stampede of consultants just desperate to get involved in this train-crash st-storm cluster-fk.
You'd have to be certifiable to get involved with this situation out of choice IMO, sad to say

anonymous-user

54 months

Wednesday 26th July 2017
quotequote all
I saw something about GOSH nurses volunteering to look after him on their days off

Which I thought was a very dignified response to receiving death threats for their work

chris390

161 posts

219 months

Wednesday 26th July 2017
quotequote all

IIIRestorerIII

842 posts

228 months

Wednesday 26th July 2017
quotequote all
I don't believe Chris Gard attended court today and his posts from Charlies facebook page are no longer visible. I hope he's ok.

Losing a loved one is never easy and going through it with the media circus that they themselves helped create must be difficult.

KTF

9,805 posts

150 months

Wednesday 26th July 2017
quotequote all
I noticed he had taken down the email that was sent to them.

Based on this - http://www.bbc.co.uk/news/uk-england-40733491 - would guess that they want the extra week so he reaches his first birthday (or maybe they just want a week of quiet after all they have been through, even if they brought it on themselves).

I can see why they want to do this but, if he is in constant pain as GOSH suggest, that's not fair on the child.

The Charlie's Army Facebook page is still an absolute state. They really should lock it and they are still removing posts by people who said they should be spending time with him and that enough is enough.

Edited by KTF on Wednesday 26th July 22:11