Effing cancer is an effing effer, frankly

Effing cancer is an effing effer, frankly

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Discussion

Mrs Muttleysnoop

1,412 posts

184 months

Wednesday 25th October 2017
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mp3manager said:
As above really, just checking in to my previous post on here.

After a CT scan on Monday, had a meeting with my consultant on Tuesday and it's good news. I've responded well to the chemo and the remaining tumors have decreased in size. Really happy with that and have another appointment on Friday to discuss a new treatment plan going forward.

It's not a cure but if things can be kept under control and damped down, then bowel cancer can eff off, frankly. smile

Edited by mp3manager on Wednesday 25th October 03:28
Good to hear and good luck on Friday.

anonymous-user

54 months

Thursday 26th October 2017
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TooManySheds said:
Hi
Thanks for all the replies
Will give Macmillan a shout next week.

Tumbler, do you have a link to your blog ? (or do you mean this page ? )

I suppose over next week or so mind will settle and I can start to organise stuff.

Its the not knowing what happens next that is strange, I no idea if I got till bonfire night / christmas / next spring etc ? Plus of course I have a house and garage full of stuff that I just dont have the energy or strengh to shift and sell.
Has anyone used House Clearance companies when someone has died ?

Sorry for all the questions.
Hi Tom anysheds - as a fellow owner of way too many sheds who doesn't live a million miles away if you still need help with the boring stuff please PM me.

Sorry I didn't see the post earlier - I haven't checked on here for ages.

All the best to every one else - some stty stories with a few positive posts as well.



ali_kat

31,990 posts

221 months

Thursday 26th October 2017
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Thoughts are with you all

We lost my friend's Sister very suddenly to this fking evil thing last week, 4 years after she was given a week, she rallied and has been mostly hale & hearty since. She was early 30s cry.

FocusRS3

3,411 posts

91 months

Thursday 26th October 2017
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ali_kat said:
Thoughts are with you all

We lost my friend's Sister very suddenly to this fking evil thing last week, 4 years after she was given a week, she rallied and has been mostly hale & hearty since. She was early 30s cry.
Terrible news and no age . RIP

anonymous-user

54 months

Saturday 28th October 2017
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ali_kat said:
Thoughts are with you all

We lost my friend's Sister very suddenly to this fking evil thing last week, 4 years after she was given a week, she rallied and has been mostly hale & hearty since. She was early 30s cry.
Sorry to hear that Ali - that's far too young frown


MrsMiggins

2,809 posts

235 months

Saturday 28th October 2017
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Friend of a friend is currently trying to raise £30k to fund experimental treatment for clear cell sarcoma.

He's early 30s and has 2 kids. His cancer is so rare that they don't really have a treatment, hence the need to go experimental.

Cancer can fk right off.

boobles

15,241 posts

215 months

Tuesday 21st November 2017
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Really worried to ask but does anyone know how toomanysheds is doing?

Ozzie Dave

565 posts

248 months

Tuesday 21st November 2017
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My mother has fought valiantly for the last 6 months against pancreatic cancer, today while with her was one of the hardest in my life, but is completely insignificant to what she is going through. To all of you going through this my thoughts are with you, most of the friends who had cancers have recovered, but as this now draws to a close I see things with such a changed light.

FocusRS3

3,411 posts

91 months

Tuesday 21st November 2017
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Ozzie Dave said:
My mother has fought valiantly for the last 6 months against pancreatic cancer, today while with her was one of the hardest in my life, but is completely insignificant to what she is going through. To all of you going through this my thoughts are with you, most of the friends who had cancers have recovered, but as this now draws to a close I see things with such a changed light.
Thoughts with you and family Ozzie

AJB88

12,421 posts

171 months

Tuesday 21st November 2017
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My dad (Aged 53) was taken into Hospital last December with bad gaulstones, when they scanned him before operating they spotted some spots they didn't like so send him home for further testing, testing was done in Febuary and confirmed as Pancreatic cancer.

A whipples procedure was booked and attempted but once they had him open mets were found on his liver as well so they didn't carry out the whipples.

He went straight onto chemo once fit enough and went through his first cycle well. the next scan came back as no chance (hadn't grown or shrunk) his second cycle of chemo was started but a bad chest infection stopped it half way through. They rebooked him to carry on and then told us too long had passed to carry it on (it was booked for 2 weeks later than it should of been) so they wanted to carry out a new scan and then start chemo again. A scan was completed 4 weeks ago and had no response since from his "specialist"

Me and my sister in the mean time have spoken to a specialist in London who deals with the specific type of cancer he has, as the "specialist" dad is under isn't a specialist in this type, he attended a meeting yesterday with them. Turns out the scan he had 4 weeks ago which we haven't heard anything about from his specialist is bad news, the liver mets have grown.

The specialist from London is proposing a different type of Chemo where dad carries it around with him for 2 days, rather than the normal sit in a chair for 5 hours kind.

Not the news we wanted but we have to live in hope. I didn't attend the meeting but I was hoping they would propose a liver transplant and then whipples procedure but it wasn't mentioned apparently.

First time posting in this thread by the way, I'm a bottle it up kind of person.

Ozzie Dave

565 posts

248 months

Tuesday 21st November 2017
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Good day AJ, I wish you and your dad all the best, Mum also had a fungal infection, that when cleared they immediately tried a whipples procedure, that was abandoned, when she came round I held her hand in the bed and had to tell her all had gone well, telling her when she was no longer affeted by the anathetic, having been told an hour ago by the surgeon it was too late. You are lucky with the Chemo, we were advised against it due to the nature and size and number of organs infected.

N7GTX

7,866 posts

143 months

Tuesday 19th December 2017
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Since being diagnosed with prostate cancer 30 months ago had the radiotherapy and then went on a 3 year plan of Prostap. Long story short, side effects becoming too much so changed to a 2 year plan. This should give me a short break as it takes a few months for the drug to disappear. All the nurses say I should be more positive about the future as I may be 'cured'. Not a word I like to use with this disease. So I tell them I expect it will be a short time till the PSA test starts to increase (started at 38 but currently 0 with a Gleason score of 9 - aggressive form and stage 3) and then accelerate meaning I have to go back on the drug or another similar.
When I tell them there is a family history of the disease they ignore me telling me to be positive. My family history is:

1. mother had breast cancer but survived for a long time after a mastectomy
2. mother's brother (my uncle) had prostate cancer but died of something else
3. younger brother has prostate cancer (stage 2) Gleason score of 10 (most aggressive), age 63 now
4. father died of prostate cancer aged 69
5. my father's dad died of prostate cancer age 69
6. my father's grandfather died of prostate cancer age 54

They tell me there is no family link.............eek

FocusRS3

3,411 posts

91 months

Wednesday 20th December 2017
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N7GTX said:
Since being diagnosed with prostate cancer 30 months ago had the radiotherapy and then went on a 3 year plan of Prostap. Long story short, side effects becoming too much so changed to a 2 year plan. This should give me a short break as it takes a few months for the drug to disappear. All the nurses say I should be more positive about the future as I may be 'cured'. Not a word I like to use with this disease. So I tell them I expect it will be a short time till the PSA test starts to increase (started at 38 but currently 0 with a Gleason score of 9 - aggressive form and stage 3) and then accelerate meaning I have to go back on the drug or another similar.
When I tell them there is a family history of the disease they ignore me telling me to be positive. My family history is:

1. mother had breast cancer but survived for a long time after a mastectomy
2. mother's brother (my uncle) had prostate cancer but died of something else
3. younger brother has prostate cancer (stage 2) Gleason score of 10 (most aggressive), age 63 now
4. father died of prostate cancer aged 69
5. my father's dad died of prostate cancer age 69
6. my father's grandfather died of prostate cancer age 54

They tell me there is no family link.............eek
My father died almost 20yrs ago of a heart attack at the age of 68 and they discovered he also had prostrate cancer but never told us to what degree .

I wish I’d known what stage it was at just incase that gave me a measure of something to look out for further down the line .

Oddly enough a few years ago at the age of 46 my wife sent me to the docs to be checked out and he said then i was a bit young to be getting checked but all was in order .

N7GTX, good luck with the treatment obviously and try and stay positive . It clearly wasn’t the prostrate cancer that killed my father but the stress of worrying about everyday things maybe.




Tumbler

1,432 posts

166 months

Saturday 23rd December 2017
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Following surgery and chemo I have a clear scan, oncologist is amazed how well my body has held up under the chemo, got told off for doing too much and to expect at least 12 months of recovery.

Next hurdle, to stay clear for two years.

motco

15,956 posts

246 months

Saturday 23rd December 2017
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Tumbler said:
Following surgery and chemo I have a clear scan, oncologist is amazed how well my body has held up under the chemo, got told off for doing too much and to expect at least 12 months of recovery.

Next hurdle, to stay clear for two years.
Wonderful news Tumbler! Now have a damned good time at Christmas and then follow the advice in January. I daresay the advice is to avoid alcohol... Anyway, I am delighted for you. smile

Tumbler

1,432 posts

166 months

Saturday 23rd December 2017
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motco said:
Wonderful news Tumbler! Now have a damned good time at Christmas and then follow the advice in January. I daresay the advice is to avoid alcohol... Anyway, I am delighted for you. smile
I'm choosing not to drink, mainly because I can't just have one and more than one is likely to make me feel not so great, the data is thin on the ground but given this cancer runs through the hormone and nervous system it just seems prudent to give alcohol a miss.

mattyn1

5,757 posts

155 months

Saturday 23rd December 2017
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Tumbler said:
Following surgery and chemo I have a clear scan, oncologist is amazed how well my body has held up under the chemo, got told off for doing too much and to expect at least 12 months of recovery.

Next hurdle, to stay clear for two years.
Warming news. Well done. News like this is important to me with what my son is going through. The thread is helping me loads.
Have a great Christmas and New Year. I would suggest you and the family probably deserve it.
I am proper chuffed for you.

motco

15,956 posts

246 months

Saturday 23rd December 2017
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Tumbler said:
motco said:
Wonderful news Tumbler! Now have a damned good time at Christmas and then follow the advice in January. I daresay the advice is to avoid alcohol... Anyway, I am delighted for you. smile
I'm choosing not to drink, mainly because I can't just have one and more than one is likely to make me feel not so great, the data is thin on the ground but given this cancer runs through the hormone and nervous system it just seems prudent to give alcohol a miss.
Frankly I think that's a wise course. A close family member of mine has been struggling with breast cancer on and off for twenty years and alcohol is most certainly implicated with that disease. Currently in remission for the umpteenth time and having monoclonal antibody infusions three weekly. She also avoids dairy products because of a question mark over IGF1 which is found in milk. It's insulin-like growth factor and is great for young animals but of dubious benefit for adult mammals. Prof Jane Plant - now dead from sepsis - had Ca.breast in the eighties and promoted a non dairy diet based purely on observing that rural Chinese women have a cancer rate of one in ten thousand and western women have a rate of one in ten. Quite a difference. It is not genetic nor race related because Chinese women who move to a western country and eat western diets rapidly acquire the western Ca. breast levels. In the rural parts of China and other eastern nations they have no dairy industry so no intake of the many compounds in cow's milk. It may be wrong, but there's no harm in avoiding milk. The osteoporosis thing is not significant if you get adequate calcium and vitamin D from other foods.

RDMcG

19,142 posts

207 months

Saturday 23rd December 2017
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Tumbler said:
Following surgery and chemo I have a clear scan, oncologist is amazed how well my body has held up under the chemo, got told off for doing too much and to expect at least 12 months of recovery.

Next hurdle, to stay clear for two years.
This is exceptionally good news.!..I hope you manage a good holiday period as best you can, and of course you now have optimism for the future. For all here I wish you the very best.

Much cancer in my family, so have a very personal experience with it. Statistically not unlikely it will be my turn one day. This thread is an inspiration.

FocusRS3

3,411 posts

91 months

Saturday 23rd December 2017
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Tumbler said:
Following surgery and chemo I have a clear scan, oncologist is amazed how well my body has held up under the chemo, got told off for doing too much and to expect at least 12 months of recovery.

Next hurdle, to stay clear for two years.
So pleased for you tumbler seriously good news.

Wishing you all the best for Xmas and the new year