Effing cancer is an effing effer, frankly

Effing cancer is an effing effer, frankly

Author
Discussion

FocusRS3

3,411 posts

92 months

Wednesday 11th April 2018
quotequote all
AJB88 said:
Thanks all.

It is a big relief that he's gone and is no longer suffering, but wish I could hear his voice again.
I lost my father to a sudden massive heart attach when I was exactly your age .

I feel the same about wanting to hear his voice or shake his hand . It was 20yrs ago now but I still look at pictures and remember him as if it were yesterday.
You will have the same trust me

AJB88

12,454 posts

172 months

Thursday 12th April 2018
quotequote all
Yes I know I will. going to see him tomorrow.

When my nan passed away years ago I didn't see her once she had gone and could never bring myself to go see her. I have always been worried about seeing a passed person.

I sat with dad as he went, so I am feeling quite relaxed about seeing him tomorrow now.

Dibble

Original Poster:

12,938 posts

241 months

Saturday 14th April 2018
quotequote all
Just bobbed into Health Matters to look at/post something completely unrelated and saw this thread I started was back on page one, so I’ve spent a few minutes catching up with it.

I had a fairly nasty motorbike accident at the end of May last year - shattered femur, fractured pelvis, fractured wrist, post op infection, blood clots on both lungs, pneumonia. 12 weeks in hospital and I’m back in this last week for operation number four to try and sort my non healing femur out (everything else is all pretty much sorted). I’ve got probably a minimum of two more ops and I’m now sporting an external rail/fixator, designed to start “lengthening” my femur in six or so weeks once I’m over this most recent bout of surgery.

God, I feel lucky and I’m truly sorry to read what some of you have been through or are going through. I’m in a bit of discomfort (I wouldn’t describe it quite as bad as pain) and I’m hobbling round on my good leg and crutches. I’ve a way to go but I’m 99% assured of a full recovery by my consultant, so I’m lucky I don’t have the near constant worry hanging over me too.

Thinking of you all.

Dgr90

168 posts

133 months

Sunday 6th May 2018
quotequote all
After a short(ish - 2 years) battle with lung cancer, mum passed away at 12.20pm today. She was in no pain, surrounded by family and friends, and gently slipped away at her hospice. I'm absolutely heartbroken.

AJB88

12,454 posts

172 months

Monday 7th May 2018
quotequote all
Dgr90 said:
After a short(ish - 2 years) battle with lung cancer, mum passed away at 12.20pm today. She was in no pain, surrounded by family and friends, and gently slipped away at her hospice. I'm absolutely heartbroken.
Very sorry to hear this frown

Biggles111

458 posts

264 months

Monday 7th May 2018
quotequote all
Today marks 4 years since I was diagnosed with acute leukaemia, a point that changed my life and that of my wife and young kids dramatically.

Two sets of severe chemo, one relapse and one stem cell transplant later I’m still here, something I will be celebrating by taking the kids out today. I have joint and leg pain but other than that am ok, able to work, and have a normal life. We are off on a fun run for a hospice next Saturday, and in 3 weeks are off to meet and thank my donor, who saved my life.

For those of you going through this or recovering, it is a tough gig, but things can get better, do hang in there.

AJB88

12,454 posts

172 months

Monday 7th May 2018
quotequote all
Biggles111 said:
and in 3 weeks are off to meet and thank my donor, who saved my life.

Wow that is amazing! its good to hear a good story for once!

bexVN

14,682 posts

212 months

Monday 7th May 2018
quotequote all
Dgr90 said:
After a short(ish - 2 years) battle with lung cancer, mum passed away at 12.20pm today. She was in no pain, surrounded by family and friends, and gently slipped away at her hospice. I'm absolutely heartbroken.
I am so sorry for your loss, I am glad she passed on peacefully but the pain for you is going to be raw I know, take care.

mp3manager

4,254 posts

197 months

Saturday 19th May 2018
quotequote all
After 16 cycles of chemo, the results from my last CT scan are encouraging and I continue to make good progress. smile
What's not so good are the side-effects from the chemo. The Cetuximab has weakened the bones in my spine, effectively giving me osteoporosis, which explains the crippling back pain and muscle spasms I've been suffering for the last few weeks. frown

As a result, oncology will reduce the dosage and give me something to try and strengthen my spine. Meanwhile, the Cocodamol works well. smile


Mrs Muttleysnoop

1,412 posts

185 months

Sunday 20th May 2018
quotequote all
mp3manager said:
After 16 cycles of chemo, the results from my last CT scan are encouraging and I continue to make good progress. smile
What's not so good are the side-effects from the chemo. The Cetuximab has weakened the bones in my spine, effectively giving me osteoporosis, which explains the crippling back pain and muscle spasms I've been suffering for the last few weeks. frown

As a result, oncology will reduce the dosage and give me something to try and strengthen my spine. Meanwhile, the Cocodamol works well. smile
Good to read of your good progress. Side effects of chemo really are something else to deal with grrrr.

FocusRS3

3,411 posts

92 months

Monday 21st May 2018
quotequote all
mp3manager said:
After 16 cycles of chemo, the results from my last CT scan are encouraging and I continue to make good progress. smile
What's not so good are the side-effects from the chemo. The Cetuximab has weakened the bones in my spine, effectively giving me osteoporosis, which explains the crippling back pain and muscle spasms I've been suffering for the last few weeks. frown

As a result, oncology will reduce the dosage and give me something to try and strengthen my spine. Meanwhile, the Cocodamol works well. smile
As previously mentioned it’s good to read your update.
Hope the side effects can be contrailled somewhat .

Gruffy

7,212 posts

260 months

Thursday 31st May 2018
quotequote all
Some may remember my Transcontinental Race from 2016 when I first raised funds for Cancer Research UK. Two years on and I’m now an official ambassador for them and about to begin an even bigger challenge for them.

On Saturday the 7,000km Trans Am Bike Race begins and I’ll be racing my bike non stop, solo and unsupported all the from Oregon to Virginia. PH was a huge supporter last time around and We raised a good chunk of money for the great work they do. This time we’re shooting for the moon!

If anybody is keen to learn more or share the story around (hugely encouraged) you’ll find the details at www.justgiving.com/fundraising/my-arse-hurts or through my blog www.theadventurecapitalist.wordpress.com/

Dan_1981

17,403 posts

200 months

Friday 1st June 2018
quotequote all
Biggles111 said:
Today marks 4 years since I was diagnosed with acute leukaemia, a point that changed my life and that of my wife and young kids dramatically.

Two sets of severe chemo, one relapse and one stem cell transplant later I’m still here, something I will be celebrating by taking the kids out today. I have joint and leg pain but other than that am ok, able to work, and have a normal life. We are off on a fun run for a hospice next Saturday, and in 3 weeks are off to meet and thank my donor, who saved my life.

For those of you going through this or recovering, it is a tough gig, but things can get better, do hang in there.
Great to hear Biggles.

If I could shamelessly jump on your post and ask people again to register with DKMS or the Anthony Nolan Trust as a potential donor.

https://www.dkms.org.uk/en

You don't have to do anything - they send you a mouth swab, you swab your cheek, send it back.

Then in the future if you are ever a match you might just save someones life.

A very close friend of mine wasn't so lucky 18 months ago and left his wife and 3 year old behind.

Henners

12,230 posts

195 months

Friday 1st June 2018
quotequote all
Am on DKMS biggrin

CharlesdeGaulle

26,305 posts

181 months

Friday 1st June 2018
quotequote all
Yeah, me too. As a result of a previous posting by Dan as a matter of fact! Good work to all.

Henners

12,230 posts

195 months

Saturday 2nd June 2018
quotequote all
Just yesterday they sent me a pile of 'get your mates to join up' leaflets, which I left scattered at work.

One of the things I like about them is I receive very little junk from them, or requests for money. They just seem to want me on the register, which is nice biggrin

PostHeads123

1,042 posts

136 months

Monday 4th June 2018
quotequote all
My dad hand lung cancer treated successfully about 15 months ago, required surgery and chemo. In last 2 weeks he started to have mild fits he went into hospital at weekend and they did scans and can see something near the brain rest of the body is fine, he having full head MRI tomorrow to confirm but not looking good, without the meds now he fits. My question is he has had regular scans since the lung cancer was treated but not one has been on the head, if it had been may be this would of been caught earlier. After lung cancer treatments should head scan be part of the normal process? I know NHS is limited but if secondary cancer to the brain is common shouldnt they have checked before ? He is obviously a bit peeved his head wasnt checked before.

Thanks

Edited by PostHeads123 on Monday 4th June 18:46


Edited by PostHeads123 on Monday 4th June 18:46

Tumbler

1,432 posts

167 months

Monday 4th June 2018
quotequote all
There is no routine scanning for brain metastasis as yet, they should be able to control the symptoms, which lung cancer did he have?

PostHeads123

1,042 posts

136 months

Monday 4th June 2018
quotequote all
Tumbler said:
There is no routine scanning for brain metastasis as yet, they should be able to control the symptoms, which lung cancer did he have?
Thanks, I thought they would check, he had small cell adenocarcinoma they recon from smoking even though he gave up smoking 36 years ago.

mattyn1

5,774 posts

156 months

Monday 4th June 2018
quotequote all
Dan_1981 said:
Great to hear Biggles.

If I could shamelessly jump on your post and ask people again to register with DKMS or the Anthony Nolan Trust as a potential donor.

https://www.dkms.org.uk/en

You don't have to do anything - they send you a mouth swab, you swab your cheek, send it back.

Then in the future if you are ever a match you might just save someones life.

A very close friend of mine wasn't so lucky 18 months ago and left his wife and 3 year old behind.
Just registered. I feel quite ignorant that I did not even know I could do this. However I will promote this through work in a big way.