Effing cancer is an effing effer, frankly

Effing cancer is an effing effer, frankly

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Discussion

motco

15,969 posts

247 months

Tuesday 5th June 2018
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This BBC report should give hope to all in an early to mid-stage case. If you can remain alive as long as possible, a therapy may come along to save the day. A family member of mine has been a breast cancer patient for more than twenty years; there's hope yet!

Biggles111

458 posts

264 months

Wednesday 6th June 2018
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mattyn1 said:
Dan_1981 said:
Great to hear Biggles.

If I could shamelessly jump on your post and ask people again to register with DKMS or the Anthony Nolan Trust as a potential donor.

https://www.dkms.org.uk/en

You don't have to do anything - they send you a mouth swab, you swab your cheek, send it back.

Then in the future if you are ever a match you might just save someones life.

A very close friend of mine wasn't so lucky 18 months ago and left his wife and 3 year old behind.
Just registered. I feel quite ignorant that I did not even know I could do this. However I will promote this through work in a big way.
Thanks everyone who is helping to sign up people to Anthony Nolan or DKMS. It really does make a difference. We had a great time in Scotland last week meeting David, my donor, and whilst there did a session at a school with Anthony Nolan and Scottish Fire and Rescue Service. SFRS have signed up 11,000 people in their partnership with AN, amazing effort from them, it would be great if more organisations could do the same.
Story below, just pleased to be here to tell it!
https://www.sundaypost.com/fp/without-him-my-kids-...
Do sign up if you have not already!

AJB88

12,466 posts

172 months

Tuesday 19th June 2018
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Just send my swabs off for DKMS

theboss

6,922 posts

220 months

Friday 22nd June 2018
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My stepdad got his diagnosis today - non-small cell lung cancer at stage T4N3M1a. He had a PET scan and a biopsy from a lymph node in his neck where it’s spread to. Anyone survived this? It’s not looking good for him.

FocusRS3

3,411 posts

92 months

Friday 22nd June 2018
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theboss said:
My stepdad got his diagnosis today - non-small cell lung cancer at stage T4N3M1a. He had a PET scan and a biopsy from a lymph node in his neck where it’s spread to. Anyone survived this? It’s not looking good for him.
I had a friend that survived lung cancer but he was quite young .
He obviously still goes for regular check ups and has changed his life and lifestyle dramatically .

How old is your step dad ? How is his health generally aside from the cancer of course ?

Sorry to hear the news obviously

theboss

6,922 posts

220 months

Friday 22nd June 2018
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FocusRS3 said:
I had a friend that survived lung cancer but he was quite young .
He obviously still goes for regular check ups and has changed his life and lifestyle dramatically .

How old is your step dad ? How is his health generally aside from the cancer of course ?

Sorry to hear the news obviously
He’s 69... health generally good although he has lost a lot of weight recently and has had poor oxygen level in blood so seems fatigued, has lost voice presumably where his neck is affected. Doesn’t seem like much of a prospect of surviving a year.

Naturally I’m worried about my mum and the situation she is facing.

Eyersey1234

2,898 posts

80 months

Sunday 24th June 2018
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theboss said:
FocusRS3 said:
I had a friend that survived lung cancer but he was quite young .
He obviously still goes for regular check ups and has changed his life and lifestyle dramatically .

How old is your step dad ? How is his health generally aside from the cancer of course ?

Sorry to hear the news obviously
He’s 69... health generally good although he has lost a lot of weight recently and has had poor oxygen level in blood so seems fatigued, has lost voice presumably where his neck is affected. Doesn’t seem like much of a prospect of surviving a year.

Naturally I’m worried about my mum and the situation she is facing.
Sorry to hear about your stepdad, I can imagine you're worried

theboss

6,922 posts

220 months

Sunday 24th June 2018
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I had a good chat with him yesterday alone. He seems positive, aware the odds are against him but doesn’t want chemo as he feels it will just kill him sooner and diminish any quality of life for the time he has left.

He takes comfort from the fact that I’m one of seven and that we (children) will rally around our mother to support her when the time invariably comes.

It’s a total stter of a situation. The pair of them have been caring for my mums very elderly parents for the last 2 years and now it seems my grandparents will probably outlive my stepdad - never saw that one coming.

More talks with a consultant in the coming week so will have more of a “formal” prognosis, but the general stats for this stage of cancer really do look dire.

Will have to try and make the most of the coming months.


FocusRS3

3,411 posts

92 months

Monday 25th June 2018
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theboss said:
I had a good chat with him yesterday alone. He seems positive, aware the odds are against him but doesn’t want chemo as he feels it will just kill him sooner and diminish any quality of life for the time he has left.

He takes comfort from the fact that I’m one of seven and that we (children) will rally around our mother to support her when the time invariably comes.

It’s a total stter of a situation. The pair of them have been caring for my mums very elderly parents for the last 2 years and now it seems my grandparents will probably outlive my stepdad - never saw that one coming.

More talks with a consultant in the coming week so will have more of a “formal” prognosis, but the general stats for this stage of cancer really do look dire.

Will have to try and make the most of the coming months.
Not good to hear im once again very sorry for the news.

Not sure how you prepare for the meeting with the consultant, i guess just being there and holding his hand is all you can do.

My grandmother outlived my father and that seemed very wrong.
I remember my mother struggling to come to terms with that and almost wishing it was her (who was in her 90's and had no quality of life) rather than my father who died very suddenly of a heart attack at 68.

These situations are never easy.



theboss

6,922 posts

220 months

Tuesday 31st July 2018
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FocusRS3 said:
Not good to hear im once again very sorry for the news.

Not sure how you prepare for the meeting with the consultant, i guess just being there and holding his hand is all you can do.

My grandmother outlived my father and that seemed very wrong.
I remember my mother struggling to come to terms with that and almost wishing it was her (who was in her 90's and had no quality of life) rather than my father who died very suddenly of a heart attack at 68.

These situations are never easy.
The situation has worsened rapidly... the formal prognosis was 6 months but it feels like we'll be lucky to have him for 6 weeks. Family are visiting from the US in August conscious it will probably be the last time. I made a call last week to tell others scheduling a trip for Christmas that it will almost certainly be too late.

AJB88

12,466 posts

172 months

Tuesday 31st July 2018
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FocusRS3 said:
My grandmother outlived my father and that seemed very wrong.
I can only imagine its very hard, My granddad has found it very hard as he approaches his 80th Birthday to have buried my dad this year aged 54.


FocusRS3

3,411 posts

92 months

Tuesday 31st July 2018
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AJB88 said:
I can only imagine its very hard, My granddad has found it very hard as he approaches his 80th Birthday to have buried my dad this year aged 54.
That’s so wrong and from your grandfathers point of view just awful .
I’d want my son to bury me not the other way round.

We are making changes in our life’s now to relieve stress as my family record of big heart attack’s isnt good

FocusRS3

3,411 posts

92 months

Tuesday 31st July 2018
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theboss said:
The situation has worsened rapidly... the formal prognosis was 6 months but it feels like we'll be lucky to have him for 6 weeks. Family are visiting from the US in August conscious it will probably be the last time. I made a call last week to tell others scheduling a trip for Christmas that it will almost certainly be too late.
Really sorry to hear .
I did the same with my aunt circa 20yrs ago who I idolised as a child and leaving her I knew it was the last time I’d see her .

She was such a part of my life as a kid and the memories live on.
It’s never easy

AJB88

12,466 posts

172 months

Tuesday 31st July 2018
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AJB88 said:
Just send my swabs off for DKMS
Going slightly off topic anybody who has done DKMS did you get an email or letter or anything? I got an email to say they had received the samples and that was it, nothing else.

Dan_1981

17,408 posts

200 months

Wednesday 1st August 2018
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AJB88 said:
AJB88 said:
Just send my swabs off for DKMS
Going slightly off topic anybody who has done DKMS did you get an email or letter or anything? I got an email to say they had received the samples and that was it, nothing else.
If I remember rightly they issue a membership fob or similar.

However they only do the run twice a year or something so you might not get it for a while.

AJB88

12,466 posts

172 months

Wednesday 1st August 2018
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Oh that makes sense then!!

marky911

4,417 posts

220 months

Thursday 2nd August 2018
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Some heart breaking stories in here. My thoughts go out to anyone affected by it.

I've had two stage one melanomas, left calve then right thigh, in 2015, 2017.
Consultant spotted a swollen lymph node in my right side groin during Mondays check up.
I'm waiting for a date for a scan to see what's going on. Praying it's nothing but obviously your mind runs away with you sometimes.
It's the bloody waiting that's the worst. Can't concentrate on much this week.
I've had a weird knee problem (right knee) since January which the knee team haven't got to the bottom of yet. I'm hoping it isn't related as it's had at least 6 months to develop if it is.
Consultant thinks not.

Anyway, it's small fry compared to some experiences on here, so I feel guilty for even bringing it up. I remembered this thread that's all.

Good luck everyone and all the best to you and your loved ones.

johnxjsc1985

15,948 posts

165 months

Thursday 2nd August 2018
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I cant believe how many friends and relatives are dealing with various cancer treatments at the moment none of them particularly old.
It feels very much a case of their for the grace of god …..

My Brother in law just 56 just failed to make his early retirement by a few short weeks . I have seen people simply breeze through treatment and others well lets say they suffered terribly.

The title of this thread is quite apt isn't it and thoughts go out to all those who are currently facing this on a daily basis it is an effing effer

FocusRS3

3,411 posts

92 months

Thursday 2nd August 2018
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johnxjsc1985 said:
I cant believe how many friends and relatives are dealing with various cancer treatments at the moment none of them particularly old.
It feels very much a case of their for the grace of god …..

My Brother in law just 56 just failed to make his early retirement by a few short weeks . I have seen people simply breeze through treatment and others well lets say they suffered terribly.

The title of this thread is quite apt isn't it and thoughts go out to all those who are currently facing this on a daily basis it is an effing effer
Sorry to hear of your loss simply no age

bexVN

14,682 posts

212 months

Thursday 2nd August 2018
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marky911 said:
Some heart breaking stories in here. My thoughts go out to anyone affected by it.

I've had two stage one melanomas, left calve then right thigh, in 2015, 2017.
Consultant spotted a swollen lymph node in my right side groin during Mondays check up.
I'm waiting for a date for a scan to see what's going on. Praying it's nothing but obviously your mind runs away with you sometimes.
It's the bloody waiting that's the worst. Can't concentrate on much this week.
I've had a weird knee problem (right knee) since January which the knee team haven't got to the bottom of yet. I'm hoping it isn't related as it's had at least 6 months to develop if it is.
Consultant thinks not.

Anyway, it's small fry compared to some experiences on here, so I feel guilty for even bringing it up. I remembered this thread that's all.

Good luck everyone and all the best to you and your loved ones.
You have no need to feel guilty. I hope your tests are all clear.