Effing cancer is an effing effer, frankly
Discussion
As I arrived at the local clinic to have the pre admission blood tests my phone rang . It was the hospital to inform me that my op was cancelled.
I am relieved as I was not happy with being in hospital anyway but certainly not in the current situation.
It's some consolation that they consider that I am not in too much danger of something nasty .
I am relieved as I was not happy with being in hospital anyway but certainly not in the current situation.
It's some consolation that they consider that I am not in too much danger of something nasty .
Pinkie15 said:
Well that went quick, just been told my uncle died an hour ago.
Just absolutely pants; my dad didn't even get the chance to go see his brother cos of covid-19; don't even know what, if anything, we can do as a family for funeral, even whether we can even have one.
Clearly never a nice time to have this awful affliction, but with this virus it's even worse.
So sorry for you and your family's loss. It's bad enough losing somebody to cancer, I can't imagine how it must have been with this bloody virus around and not being able to see him. Just absolutely pants; my dad didn't even get the chance to go see his brother cos of covid-19; don't even know what, if anything, we can do as a family for funeral, even whether we can even have one.
Clearly never a nice time to have this awful affliction, but with this virus it's even worse.
I understand funerals are going ahead, but limited as to how many people can attend but everything is changing daily. Awful situation and I truly hope all goes as well as it can.
grumpy52 said:
I went to have the camera inspection of my bladder but it didn't happen because of a stricture in my urethra . Probably scar tissue from having a catheter in the past .
The next step is an operation to dilate the urethra. ...
Takes me back. They went to catheterise me before my op to remove a brain tumour and I told them about my stricture. The nurse didn't listen/take me seriously and they went ahead. I nearly hit the roof but they got it into me. I woke in ICU a number of hours later in the middle of the night, sheets completely soaked red with blood. Emanating from my groin. I then had a number of pain killing injections at the opening and inside my urethra to kill the pain.Now when I'm in hospital for anything I make sure the nurse has completely understood everything I've said. Craniotomy went well though The next step is an operation to dilate the urethra. ...
Thanks garyhun and carlove
There maybe a funeral, not sure a 800-odd mile round trip for me to attend counts as 'essential' travel (mixed emotions /thoughts on that one). Would almost certainly have to travel up day before, so then there's trying to find somewhere to stay
Guess there'll be no chance of a wake though until the covid situation is resolved. Might well be will have to wait for that at some point in the future
Best wishes to all fighting this illness at the moment, and your families too.
There maybe a funeral, not sure a 800-odd mile round trip for me to attend counts as 'essential' travel (mixed emotions /thoughts on that one). Would almost certainly have to travel up day before, so then there's trying to find somewhere to stay
Guess there'll be no chance of a wake though until the covid situation is resolved. Might well be will have to wait for that at some point in the future
Best wishes to all fighting this illness at the moment, and your families too.
popeyewhite said:
grumpy52 said:
I went to have the camera inspection of my bladder but it didn't happen because of a stricture in my urethra . Probably scar tissue from having a catheter in the past .
The next step is an operation to dilate the urethra. ...
Takes me back. They went to catheterise me before my op to remove a brain tumour and I told them about my stricture. The nurse didn't listen/take me seriously and they went ahead. I nearly hit the roof but they got it into me. I woke in ICU a number of hours later in the middle of the night, sheets completely soaked red with blood. Emanating from my groin. I then had a number of pain killing injections at the opening and inside my urethra to kill the pain.Now when I'm in hospital for anything I make sure the nurse has completely understood everything I've said. Craniotomy went well though The next step is an operation to dilate the urethra. ...
motco said:
popeyewhite said:
grumpy52 said:
I went to have the camera inspection of my bladder but it didn't happen because of a stricture in my urethra . Probably scar tissue from having a catheter in the past .
The next step is an operation to dilate the urethra. ...
Takes me back. They went to catheterise me before my op to remove a brain tumour and I told them about my stricture. The nurse didn't listen/take me seriously and they went ahead. I nearly hit the roof but they got it into me. I woke in ICU a number of hours later in the middle of the night, sheets completely soaked red with blood. Emanating from my groin. I then had a number of pain killing injections at the opening and inside my urethra to kill the pain.Now when I'm in hospital for anything I make sure the nurse has completely understood everything I've said. Craniotomy went well though The next step is an operation to dilate the urethra. ...
I'm afraid I can only add to the woes on this thread. Its back - cancer's always been a 
, but now its a with poor timing. Can just fk off.
My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
, but now its a with poor timing. Can just fk off.My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
Been an interesting spell as an occasional contributor to this thread, firstly with my sister’s sudden brain tumour and then my dad who died on her funeral service day. Mum and sister were like peas in a pod, so she died soon thereafter, more likely of a broken heart than cancer.
Anyway, roll on a few years and have been feeling pretty grim with a whole host of back, leg, muscle Issues, and unbearable pain. Finding it difficult to drive the 911, got a 944 Turbo to restore, never mind Ducati, Aprilia and MV Augusta bikes to drool over 😋
And then, along comes lockdown and some fabulous weather and I can potentially use vehicles to collect prescriptions - except that I don’t. I’m always tired and in considerable pain.
Really struggled to get out of bed, move around and walk, so got home GP appointment who arranged me to fly out to our largest hospital nearby - Aberdeen.
Several complications, but it looks like multiple myeloma. It’s a very strange feeling having family members affected by it, but an even stranger one knowing you have the dreaded Big C.
I’m a positive kind of fellow so it won’t be long before I turn my time and efforts to friends and family, and good deed in particular.
Wish me luck!
Anyway, roll on a few years and have been feeling pretty grim with a whole host of back, leg, muscle Issues, and unbearable pain. Finding it difficult to drive the 911, got a 944 Turbo to restore, never mind Ducati, Aprilia and MV Augusta bikes to drool over 😋
And then, along comes lockdown and some fabulous weather and I can potentially use vehicles to collect prescriptions - except that I don’t. I’m always tired and in considerable pain.
Really struggled to get out of bed, move around and walk, so got home GP appointment who arranged me to fly out to our largest hospital nearby - Aberdeen.
Several complications, but it looks like multiple myeloma. It’s a very strange feeling having family members affected by it, but an even stranger one knowing you have the dreaded Big C.
I’m a positive kind of fellow so it won’t be long before I turn my time and efforts to friends and family, and good deed in particular.
Wish me luck!
mellowman said:
Been an interesting spell as an occasional contributor to this thread, firstly with my sister’s sudden brain tumour and then my dad who died on her funeral service day. Mum and sister were like peas in a pod, so she died soon thereafter, more likely of a broken heart than cancer.
Anyway, roll on a few years and have been feeling pretty grim with a whole host of back, leg, muscle Issues, and unbearable pain. Finding it difficult to drive the 911, got a 944 Turbo to restore, never mind Ducati, Aprilia and MV Augusta bikes to drool over ??
And then, along comes lockdown and some fabulous weather and I can potentially use vehicles to collect prescriptions - except that I don’t. I’m always tired and in considerable pain.
Really struggled to get out of bed, move around and walk, so got home GP appointment who arranged me to fly out to our largest hospital nearby - Aberdeen.
Several complications, but it looks like multiple myeloma. It’s a very strange feeling having family members affected by it, but an even stranger one knowing you have the dreaded Big C.
I’m a positive kind of fellow so it won’t be long before I turn my time and efforts to friends and family, and good deed in particular.
Wish me luck!
Keep us updated mate, always here to help.Anyway, roll on a few years and have been feeling pretty grim with a whole host of back, leg, muscle Issues, and unbearable pain. Finding it difficult to drive the 911, got a 944 Turbo to restore, never mind Ducati, Aprilia and MV Augusta bikes to drool over ??
And then, along comes lockdown and some fabulous weather and I can potentially use vehicles to collect prescriptions - except that I don’t. I’m always tired and in considerable pain.
Really struggled to get out of bed, move around and walk, so got home GP appointment who arranged me to fly out to our largest hospital nearby - Aberdeen.
Several complications, but it looks like multiple myeloma. It’s a very strange feeling having family members affected by it, but an even stranger one knowing you have the dreaded Big C.
I’m a positive kind of fellow so it won’t be long before I turn my time and efforts to friends and family, and good deed in particular.
Wish me luck!
PomBstard said:
I'm afraid I can only add to the woes on this thread. Its back - cancer's always been a , but now its a with poor timing. Can just fk off.
My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
Haven't got any advice but hope all works out well., but now its a with poor timing. Can just fk off.My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
i4got said:
PomBstard said:
I'm afraid I can only add to the woes on this thread. Its back - cancer's always been a , but now its a with poor timing. Can just fk off.
My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
Haven't got any advice but hope all works out well., but now its a with poor timing. Can just fk off.My mum was diagnosed with, treated for, and beat cancer that was eventually found in one of he Fallopian tubes about four years ago. I got a call last night to say a scan has shown a small spot on her bowel, spleen and liver.
She was admitted to hospital almost immediately and chemo starts tomorrow. But this is going to be so much harder going than previous. When she was with us only four weeks ago, she was already showing signs of being much more frail - we suspected something wasn't right but she flew home and went to her own doctor.
With the current situation in the UK, we've no idea what the care plan will look like. She lives on her own, was very unsteady for a few days post-chemo last time, and will only be more so this time. People stayed overnight with her last time, can't do this now.
Does anyone have any insight as to what might happen? MrsPB has done a long time in the aged care industry and knows very well how sick, elderly people can be care for, but we're not sure what happens if everyone is supposed to be isolated/quarantined?
And as much as a care plan will look after her physically, I've fears for her mental health now. We've got a network of friends that can help, but restrictions limit what they can do. Bit frustrating not being able to get there and help someway directly. All and any advice gratefully received.
Whilst the chemo seems to be working and the response is good, a meeting with the Oncology Consultant yesterday confirmed further spots have appeared and it doesn't seem to be curable this time. The plan is now for palliative care.
Part of that plan is to get Mum well enough to be able to both manage a stronger chemo, which she had last time, and also to become an outpatient, living in her own home. Apparently a home nurse will provide assistance, but I'm not sure how this will work out. The next round of chemo is next week, and I think she'll stay until that's done, but after that is almost anyone's guess.
Anyway, the summary seems to be that we're now on the home straight. We don't know how far the finish line is away, and experience says it could be weeks, months or years. Quality of life is all important now.
I don't think I'll ever be in the same room as her again. We'll see each other on the phone, but with the current travel restrictions and costs of travel are going to make anything else really f
king difficult.However, she was out here only a month or so ago, so we have had time together very recently, and that was good - I'm going to stick with that bit.
millik said:
Mrs had her diagnosis 31st Jan last year, gone through the opp; chemo; radio etc and all was going well.
Had the results of the final CAT scan today, what we thought was going to be “all good, see you for a check up in 4 months”, instead we found that another lymph node is now enlarged. Now waiting for a PET scan to find out exactly if it is the effing ‘C’ again or not.
At the moment I’m not sure if I want to rant; cry or punch a wall. Trying to remain positive as they are being super cautious and the node could be swollen due to a cold or anything else. Really not sure if I’ll cope with her going through this again, and then feeling guilty as her not me that will have to go through it
Just to give an update on this. Has been a bit of a roller coaster to tell the truth. PET scan showed that it had come back, initial plan was for SABR treatment, but that was ruled out due to the node being too close to the area she’s already had targeted by radiotherapy.Had the results of the final CAT scan today, what we thought was going to be “all good, see you for a check up in 4 months”, instead we found that another lymph node is now enlarged. Now waiting for a PET scan to find out exactly if it is the effing ‘C’ again or not.
At the moment I’m not sure if I want to rant; cry or punch a wall. Trying to remain positive as they are being super cautious and the node could be swollen due to a cold or anything else. Really not sure if I’ll cope with her going through this again, and then feeling guilty as her not me that will have to go through it
Next option was to be surgery to remove the node. This was the beginning of March, then due to Coronavirus this was delayed by 3 months as there would be a shortage of ICU’s. She was put on hormone tablets to try and control it until they could operate.
With things now easing up on the CV front the operation was back on and she had another scan a couple of weeks ago. Then the end of last week we had the results, the node has shrunk, (from around 1cm to 2mm), so they will not be operating, just keeping an eye on it, keeping on the hormone tablets, with another scan in around 3 months.
We had changed the diet a little bit, trying to cut out processed carbs, cutting down on carbs in general and trying intermittent fasting, having 13-14 hrs ‘food free’ overnight. Not sure if that had helped or not but it’s something that has become normal now so will be carrying on with it and hopefully things will continue to improve.
My thoughts with all of you dealing with the effing ‘C” at this time.
I know this isn't the thread for delivering good news, and that reading it can be hard work, but I for one find it helpful to read about others, and cathartic just to write here.
Mum's time in hospital is coming to an end. The medical team is putting together a plan to enable her to go home, and no further chemo sessions are scheduled. We don't know when this will be, though expect it to be sometime in the next week.
She had a transfusion a few days ago to help with an infection that wasn't improving quick enough with antibiotics, and seems to sound much brighter for it.
And she's really looking forward to being back in her own place, seeing her friends, even if they're not allowed to visit her. To which I think she'll make whatever decision she thinks best for her.
We don't yet know how long things will remain this way, or if they'll take a turn for the worst or best. Being the other side of the planet is not helping, and we've always planned for this. Its the not being able to travel for which we never planned.
Anyway, until we know more, its hard to plan for anything, so just rolling with it for now. Mum's friends nearby can help and so too my sister in law - my brother remains a useless tw@ of the highest order and Mum wants nothing to do with him.
fking hell - its all a bit st really
Mum's time in hospital is coming to an end. The medical team is putting together a plan to enable her to go home, and no further chemo sessions are scheduled. We don't know when this will be, though expect it to be sometime in the next week.
She had a transfusion a few days ago to help with an infection that wasn't improving quick enough with antibiotics, and seems to sound much brighter for it.
And she's really looking forward to being back in her own place, seeing her friends, even if they're not allowed to visit her. To which I think she'll make whatever decision she thinks best for her.
We don't yet know how long things will remain this way, or if they'll take a turn for the worst or best. Being the other side of the planet is not helping, and we've always planned for this. Its the not being able to travel for which we never planned.
Anyway, until we know more, its hard to plan for anything, so just rolling with it for now. Mum's friends nearby can help and so too my sister in law - my brother remains a useless tw@ of the highest order and Mum wants nothing to do with him.
f
king hell - its all a bit st reallyPomBstard said:
I know this isn't the thread for delivering good news, and that reading it can be hard work, but I for one find it helpful to read about others, and cathartic just to write here.
Mum's time in hospital is coming to an end. The medical team is putting together a plan to enable her to go home, and no further chemo sessions are scheduled. We don't know when this will be, though expect it to be sometime in the next week.
She had a transfusion a few days ago to help with an infection that wasn't improving quick enough with antibiotics, and seems to sound much brighter for it.
And she's really looking forward to being back in her own place, seeing her friends, even if they're not allowed to visit her. To which I think she'll make whatever decision she thinks best for her.
We don't yet know how long things will remain this way, or if they'll take a turn for the worst or best. Being the other side of the planet is not helping, and we've always planned for this. Its the not being able to travel for which we never planned.
Anyway, until we know more, its hard to plan for anything, so just rolling with it for now. Mum's friends nearby can help and so too my sister in law - my brother remains a useless tw@ of the highest order and Mum wants nothing to do with him.
fking hell - its all a bit st really
Terribly sorry to read this . Lets hope your mum gets to see family soon .Mum's time in hospital is coming to an end. The medical team is putting together a plan to enable her to go home, and no further chemo sessions are scheduled. We don't know when this will be, though expect it to be sometime in the next week.
She had a transfusion a few days ago to help with an infection that wasn't improving quick enough with antibiotics, and seems to sound much brighter for it.
And she's really looking forward to being back in her own place, seeing her friends, even if they're not allowed to visit her. To which I think she'll make whatever decision she thinks best for her.
We don't yet know how long things will remain this way, or if they'll take a turn for the worst or best. Being the other side of the planet is not helping, and we've always planned for this. Its the not being able to travel for which we never planned.
Anyway, until we know more, its hard to plan for anything, so just rolling with it for now. Mum's friends nearby can help and so too my sister in law - my brother remains a useless tw@ of the highest order and Mum wants nothing to do with him.
f
king hell - its all a bit st reallyYou didnt mention her age or what form of cancer she has been suffering from ?
I have an aunt that in fairness is 93 and now is having a rather undignified ending to her life.
For a woman that was always so beautiful and 'with it' its just horrendous to know even though she has gotten to a great age she will be taken to cancer
Two weeks on from the seemingly positive news that antibiotics would lead to going home, Mum hasn't responded as expected and all treatment has stopped. Painkillers and comfort only, with just days being the expectation. In fact the speed of the deterioration over the past two days could mean hours.
The hospital has been letting in two visitors a day, and this has lifted her spirits, but she's now finding it hard to speak and is just in and out of this world. There was a plan to get her home, but that might not be reached as the level of care is now quite high.
So, that's less than two months from being diagnosed, albeit there was something noticeable happening about 3-4 months ago. She's 72.
fk
The hospital has been letting in two visitors a day, and this has lifted her spirits, but she's now finding it hard to speak and is just in and out of this world. There was a plan to get her home, but that might not be reached as the level of care is now quite high.
So, that's less than two months from being diagnosed, albeit there was something noticeable happening about 3-4 months ago. She's 72.
f
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