Effing cancer is an effing effer, frankly
Discussion
GT3Manthey said:
ClaphamGT3 said:
Found out today that one of my partners at work has just been diagnosed with colon cancer. 48 with two young children. Bugger.
Fuk...sorry to hear this ..... hopefully treatment can get underway sharpish Colon cancer is slow moving , so time is not a big worry.
Have had it twice.
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
So sorry to hear that...I hope the call comes quickly, and that you are ready to enjoy life together after her recovery, which hopefully will coincide with the end of the pandemic.Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Fingers crossed for you.Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
I do know how you feel and wouldn't wish it on anybody.
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Sorry to hear that. Best wishes to her for a full recovery.Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Very sorry to hear this. Is she looking at an auto- or allo-(donor) transplant, I think either are used for multiple myeloma? For what it's worth I had a donor stem cell transplant 5 years ago for relapsed AML and am doing good. It is a tough gig, and the pre-transplant talk is pretty heavy, but the centres that offer these have absolutely fantastic teams. Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Do feel free to PM if I can answer any questions, also Blood Cancer UK https://bloodcancer.org.uk/ have some really good information and a patient forum that may be of help.
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Very sorry to hear this. Is she looking at an auto- or allo-(donor) transplant, I think either are used for multiple myeloma? For what it's worth I had a donor stem cell transplant 5 years ago for relapsed AML and am doing good. It is a tough gig, and the pre-transplant talk is pretty heavy, but the centres that offer these have absolutely fantastic teams. Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Do feel free to PM if I can answer any questions, also Blood Cancer UK https://bloodcancer.org.uk/ have some really good information and a patient forum that may be of help.
Hi. They have harvested her own cells to use following the chemo dose. I agree about the pre-transplant talk, it was pretty brutal. The thought of her going through it alone horrifies me.
The thing that’s really troubling her is the thought of losing her hair. She’s coping with all the talk of post transplant infection and stomach/throat issues, but the hair loss is what’s a really affected her.
The steroids she’s on at the moment are really screwing her up, so we’re hoping for better times once she’s gets some strength back in the coming months
The thing that’s really troubling her is the thought of losing her hair. She’s coping with all the talk of post transplant infection and stomach/throat issues, but the hair loss is what’s a really affected her.
The steroids she’s on at the moment are really screwing her up, so we’re hoping for better times once she’s gets some strength back in the coming months
So sorry to hear of the situation, your talk of stem cells made me remember what we did for mini-me...
When born his umbilical code was harvested of some of the precious newborn blood for its stem cells, this has been frozen and kept as a kind of cancer insurance, only he can use it unless he gives permission for the OH to use it if she gets cancer.
We figured it was expensive, but we would be kicking ourselves if we didnt do it and he needs it later and just hope its money down the drain instead.
When born his umbilical code was harvested of some of the precious newborn blood for its stem cells, this has been frozen and kept as a kind of cancer insurance, only he can use it unless he gives permission for the OH to use it if she gets cancer.
We figured it was expensive, but we would be kicking ourselves if we didnt do it and he needs it later and just hope its money down the drain instead.
Elroy Blue said:
My fit, 47yr old wife was diagnosed with multiple myeloma a year ago. No symptoms other than constant indigestion and hot flushes. She though ‘menopause’ and went to the doctors. As she hadn’t had a blood test for over 20 years, Dr did a ‘well woman’ routine check. Her protein levels came back off the scale and they had no idea how she was walking and talking.
Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
Sorry to read this, my wife went through the same back at the end of 16. Routine Blood test showed markers off the scale, zero symptoms' at the time. 6 months high dose Chemo to get it down, then Stem Cell transplant back in July 17, 6 weeks in Hospital for this. The side effects of the drugs were very hard. But today she does 5 mile dog walks, Yoga, MTB rides all no problem. Feel free to PM with any questions.Sitting in the consultants office getting the ‘you’ve got cancer’ talk was the most numbing experiences of my life.
Straight into chemo (and subsequent loss of her business) for five months and she was supposed to have a stem cell transplant in April.
Then COVID hit. All treatment suspended. Myeloma seriously impacts the immune system and they just wouldn’t entertain anything. After months of pumping her full of various drugs, which impacted her health massively, she’s deteriorated to a point where she’s on an ‘immediate’ list for a transplant. Bags are packed and we are waiting for the call. What’s worse is that she has to spend all the weeks in hospital alone as we are not allowed to visit. We’ve never spent more than a few days apart in nearly 30 years. I can’t describe how that feels.
It will never be cured, but we’re hoping there’s a few quality years ahead. It really does make you value what you have
APOLO1 said:
Sorry to read this, my wife went through the same back at the end of 16. Routine Blood test showed markers off the scale, zero symptoms' at the time. 6 months high dose Chemo to get it down, then Stem Cell transplant back in July 17, 6 weeks in Hospital for this. The side effects of the drugs were very hard. But today she does 5 mile dog walks, Yoga, MTB rides all no problem. Feel free to PM with any questions.
Cheers. Still waiting for the call. They’ve forecast 3-4 weeks in hospital, but all dependent on post transplant infection. The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
Elroy Blue said:
APOLO1 said:
Sorry to read this, my wife went through the same back at the end of 16. Routine Blood test showed markers off the scale, zero symptoms' at the time. 6 months high dose Chemo to get it down, then Stem Cell transplant back in July 17, 6 weeks in Hospital for this. The side effects of the drugs were very hard. But today she does 5 mile dog walks, Yoga, MTB rides all no problem. Feel free to PM with any questions.
Cheers. Still waiting for the call. They’ve forecast 3-4 weeks in hospital, but all dependent on post transplant infection. The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
Elroy Blue said:
Cheers. Still waiting for the call. They’ve forecast 3-4 weeks in hospital, but all dependent on post transplant infection.
The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
I know the drugs that they use to keep the myeloma at 80% reduced can be very aggressive. They had to tailor my wife’s to suit, at the time it was picked up she was clinical Dir for a large NHS Trust so we knew what to expect. We had about 4 weeks rest before the very high dose that they give before they give back the stem cells. Whist there in no cure for myeloma it can be managed, lots depend on how early it’s picked up. Good luck hope it all goes well.The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
Elroy Blue said:
Cheers. Still waiting for the call. They’ve forecast 3-4 weeks in hospital, but all dependent on post transplant infection.
The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
Good luck with everything going forward.The steroids she’s on are really making her hill. Hopefully there will no longer be a need for them after the op
My partner was diagnosed with AML in May last year and underwent an allogeneic stem cell transplant just over a year ago, her "1st" birthday was last friday.
She had a very different experience with the transplant, she was at UCLH and it was sort of given as an outpatient, she went in had the transplant, they monitored her that day and then she stayed at their hotel near by, a specialist unit akin to a 4 star hotel for those undergoing treatment so that they can have partners or parents stay with them. She would have daily visits to the hospital and would have a mobile pump that was setup each day for the required drugs, any problems and the hospital was always on the phone to help. It made it much easier on her and I do hope more hospitals offer this in future, a close friend of mine who went through AML 10 years ago had full on isolation at hospital.
She was also worried about the hair loss beforehand and was fitted for a wig but when it came to it she decided to just own it and deal with any of the stares she may get, hard to know how it will be until you do get to it.
All the best to you.
I had that dreaded phone call today to tell me that my baby sister ( 8 years younger) has throat cancer .
I feel so useless, being the big brother I have always been on hand to do all the physical things to help out over the years and a bit of financial support for her and her hubby.
Fffffing cancer can ffffff right off !
We should know the treatment plan by the weekend and then the fight begins.
I feel so useless, being the big brother I have always been on hand to do all the physical things to help out over the years and a bit of financial support for her and her hubby.
Fffffing cancer can ffffff right off !
We should know the treatment plan by the weekend and then the fight begins.
This thread has somewhat given me some solace, not because I enjoy looking at other people’s tragedies, but because it helps me cope with what I’m going through right now.
My mother who’s 58 got diagnosed with liver cancer yesterday morning, she’s been unwell for the past couple of weeks, unable to keep anything down and she felt a lump in her liver area, we managed to convince her to go A&E on Friday and she was out yesterday after lots of checks. No idea on the prognosis or anything yet as all the doctors are getting together on Friday and they’ll give her a call.
It’s extremely difficult as not only do I have to hold back my tears for her sake and to remain positive as no mother wants to see her children in pain, I also have to suffer on her behalf as she is in pain while trying to act normal, I can’t imagine what she must be going through, faced with what I imagine is late stage liver cancer as the lump is bulging out of her body.
In my 27 years, I never thought a pain like this could exist without anything physically happening to me, I’ve never felt this way before. Tragedies do happen, I’ve got friends who’s parents have past away unexpectedly and my girlfriend witnessed her father die of a heart attack, there are multiple posters here who have faced maybe worse than I have. I was listening to a podcast earlier about cancer that was published in 2018, it’s a BBC one called the Big C, one of the hosts had cancer and had also passed away.
I can make peace with her passing but I cannot make peace with what she is going through personally, being told you have something that you won’t make it through and having to put on a happy face for your children and grandchildren....it f
king breaks my heart.
I’m sorry if I have upset anyone or have reminded them of losing loved ones but I just can’t talk about this with my friends or family as I just break down and become hysterical, It’s easier for me to say it here
My mother who’s 58 got diagnosed with liver cancer yesterday morning, she’s been unwell for the past couple of weeks, unable to keep anything down and she felt a lump in her liver area, we managed to convince her to go A&E on Friday and she was out yesterday after lots of checks. No idea on the prognosis or anything yet as all the doctors are getting together on Friday and they’ll give her a call.
It’s extremely difficult as not only do I have to hold back my tears for her sake and to remain positive as no mother wants to see her children in pain, I also have to suffer on her behalf as she is in pain while trying to act normal, I can’t imagine what she must be going through, faced with what I imagine is late stage liver cancer as the lump is bulging out of her body.
In my 27 years, I never thought a pain like this could exist without anything physically happening to me, I’ve never felt this way before. Tragedies do happen, I’ve got friends who’s parents have past away unexpectedly and my girlfriend witnessed her father die of a heart attack, there are multiple posters here who have faced maybe worse than I have. I was listening to a podcast earlier about cancer that was published in 2018, it’s a BBC one called the Big C, one of the hosts had cancer and had also passed away.
I can make peace with her passing but I cannot make peace with what she is going through personally, being told you have something that you won’t make it through and having to put on a happy face for your children and grandchildren....it f
king breaks my heart.I’m sorry if I have upset anyone or have reminded them of losing loved ones but I just can’t talk about this with my friends or family as I just break down and become hysterical, It’s easier for me to say it here
Thoughts are with you and your family, fingers crossed for a reasonable prognosis on Friday.
Don’t feel bad about posting here.
When my dad died of cancer (was the day after diagnosis so didn’t have chance to take the diagnosis in) it was of great help posting here, even if just to get it off your chest. I tried (and eventually failed) to stay strong for my family.
I’m 26 (24 when he died) and one problem I found is none of my friends knew the pain I was feeling, one of them compared to their recent break up, not his fault he just hasn’t lost a parent. That’s one of the reasons I found posting in here was of great help, people knew how I was feeling.
Don’t feel bad about posting here.
When my dad died of cancer (was the day after diagnosis so didn’t have chance to take the diagnosis in) it was of great help posting here, even if just to get it off your chest. I tried (and eventually failed) to stay strong for my family.
I’m 26 (24 when he died) and one problem I found is none of my friends knew the pain I was feeling, one of them compared to their recent break up, not his fault he just hasn’t lost a parent. That’s one of the reasons I found posting in here was of great help, people knew how I was feeling.
carlove said:
Thoughts are with you and your family, fingers crossed for a reasonable prognosis on Friday.
Don’t feel bad about posting here.
When my dad died of cancer (was the day after diagnosis so didn’t have chance to take the diagnosis in) it was of great help posting here, even if just to get it off your chest. I tried (and eventually failed) to stay strong for my family.
I’m 26 (24 when he died) and one problem I found is none of my friends knew the pain I was feeling, one of them compared to their recent break up, not his fault he just hasn’t lost a parent. That’s one of the reasons I found posting in here was of great help, people knew how I was feeling.
Thank you, I’m sorry you went through that and although it’s only a 3 year difference, I imagine it must have felt worse, I was a different person at 24, I understand things more now and still struggle Don’t feel bad about posting here.
When my dad died of cancer (was the day after diagnosis so didn’t have chance to take the diagnosis in) it was of great help posting here, even if just to get it off your chest. I tried (and eventually failed) to stay strong for my family.
I’m 26 (24 when he died) and one problem I found is none of my friends knew the pain I was feeling, one of them compared to their recent break up, not his fault he just hasn’t lost a parent. That’s one of the reasons I found posting in here was of great help, people knew how I was feeling.
Chestrockwell said:
This thread has somewhat given me some solace, not because I enjoy looking at other people’s tragedies, but because it helps me cope with what I’m going through right now.
My mother who’s 58 got diagnosed with liver cancer yesterday morning, she’s been unwell for the past couple of weeks, unable to keep anything down and she felt a lump in her liver area, we managed to convince her to go A&E on Friday and she was out yesterday after lots of checks. No idea on the prognosis or anything yet as all the doctors are getting together on Friday and they’ll give her a call.
It’s extremely difficult as not only do I have to hold back my tears for her sake and to remain positive as no mother wants to see her children in pain, I also have to suffer on her behalf as she is in pain while trying to act normal, I can’t imagine what she must be going through, faced with what I imagine is late stage liver cancer as the lump is bulging out of her body.
In my 27 years, I never thought a pain like this could exist without anything physically happening to me, I’ve never felt this way before. Tragedies do happen, I’ve got friends who’s parents have past away unexpectedly and my girlfriend witnessed her father die of a heart attack, there are multiple posters here who have faced maybe worse than I have. I was listening to a podcast earlier about cancer that was published in 2018, it’s a BBC one called the Big C, one of the hosts had cancer and had also passed away.
I can make peace with her passing but I cannot make peace with what she is going through personally, being told you have something that you won’t make it through and having to put on a happy face for your children and grandchildren....it fking breaks my heart.
I’m sorry if I have upset anyone or have reminded them of losing loved ones but I just can’t talk about this with my friends or family as I just break down and become hysterical, It’s easier for me to say it here
So sorry to hear your story. We're a little further down the line with our mother (75). She had her prognosis last week and the oncologist has given her a few months at best. There were no symptoms over the summer, she was very active if a little tired, but nothing unusual given the Covid situation. A few weeks ago we noticed her skin had a yellow tinge and it all snowballed from there to the diagnosis of bile cancer which has moved into her liver (a 9.5cm tumour) plus smaller ones throughout the liver and is inoperable. One side effect of this cancer is water retention in her abdomen (like 9mths pregnant) which makes her extremely uncomfortable and affects her appetite and she won't be strong enough for chemo unless we feed her up - she's now painfully thin. She was admitted last week to drain the fluid (several litres) and she felt much better but less than a week later the fluid is returning. I had hoped that we'd be given advice on nutrition, organisations that could help etc, but it feels like she's been labelled as a hopeless case and yet a couple of months ago she had so much to live for. This evening I decided to have a scroll through this forum and this is the first thread I came across. Writing down her story and reading all the posts has helped a lot. My mother who’s 58 got diagnosed with liver cancer yesterday morning, she’s been unwell for the past couple of weeks, unable to keep anything down and she felt a lump in her liver area, we managed to convince her to go A&E on Friday and she was out yesterday after lots of checks. No idea on the prognosis or anything yet as all the doctors are getting together on Friday and they’ll give her a call.
It’s extremely difficult as not only do I have to hold back my tears for her sake and to remain positive as no mother wants to see her children in pain, I also have to suffer on her behalf as she is in pain while trying to act normal, I can’t imagine what she must be going through, faced with what I imagine is late stage liver cancer as the lump is bulging out of her body.
In my 27 years, I never thought a pain like this could exist without anything physically happening to me, I’ve never felt this way before. Tragedies do happen, I’ve got friends who’s parents have past away unexpectedly and my girlfriend witnessed her father die of a heart attack, there are multiple posters here who have faced maybe worse than I have. I was listening to a podcast earlier about cancer that was published in 2018, it’s a BBC one called the Big C, one of the hosts had cancer and had also passed away.
I can make peace with her passing but I cannot make peace with what she is going through personally, being told you have something that you won’t make it through and having to put on a happy face for your children and grandchildren....it f
king breaks my heart.I’m sorry if I have upset anyone or have reminded them of losing loved ones but I just can’t talk about this with my friends or family as I just break down and become hysterical, It’s easier for me to say it here
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