Effing cancer is an effing effer, frankly
Discussion
smifffymoto said:
Well more s
t news for our family.
My mum’s husband was diagnosed with throat cancer about 4 months ago,spread to his lungs.
He was given about 6 months.
February is going to be a short month for him.
Give him my heart felt regards. t news for our family.My mum’s husband was diagnosed with throat cancer about 4 months ago,spread to his lungs.
He was given about 6 months.
February is going to be a short month for him.
That's exactly what got my uncle. In March 2022.
Imagine how my mum felt when my dad was diagnosed with cancer on his vocal cords in April 2022.
Lucky it has stayed contained, but whilst he had radio therapy, they couldn't give him chemo (due to other things he has and his age), so I'm pretty sure that the all clear isn't a permanent all clear and it will get him eventually.
Go in next 8 weeks for a robotic partial nephrectomy ( removal of tumour on my kidney ) , they said it was small / medium but looked big to me .
All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
Gas1883 said:
Go in next 8 weeks for a robotic partial nephrectomy ( removal of tumour on my kidney ) , they said it was small / medium but looked big to me .
All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
Also my over riding thought, care less about me and more about those watching me go through it.All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
Scan last Thursday, results Wednesday where we'll see if the the last 3 months rollercoaster has been worth it 🤞
Bernie_78 said:
Gas1883 said:
Go in next 8 weeks for a robotic partial nephrectomy ( removal of tumour on my kidney ) , they said it was small / medium but looked big to me .
All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
Also my over riding thought, care less about me and more about those watching me go through it.All dependent on 2 day ago prostrate biopsy , they will decide what is more important to operate on , kidney / prostrate , if biopsy shows I do need an operation .
I’m staying positive , everything sounds treatable , but seeing wife / my girl in bits is hard .
Scan last Thursday, results Wednesday where we'll see if the the last 3 months rollercoaster has been worth it ??
On that score, he's stopped the treatment (stage 4 liver cancer) and is seeing out as much time as possible at home. He's understandably very weak and suffering with sores from lying down too much, itching and rashes, and needs fluid draining from his abdomen. He's not really in a good way at all but at least he tries to retain a semblance of humour, although mentally he's not really all there now.
And also I found out last week a good mate of mine died in his 50s of cancer.
So yeah, cancer is a
.
no words just sending love to you all, never thought i would be part of this forum until a surprise masectomy last october, was told that would catch it all, then some nodes positive, thought i would be back to some normality by christmas, then advised i would be on 6 cycles of chemo, then radiotherapy, work have been so supportive, did 3 x ec chemo, after 3rd one, had 2 big seizures at home hours later, dont remember a lot, thank god husband was here, ambulance to a&e, then another seizure where husband was ushered out of the room. worst night in the ic ward, blood taken every 2 hours, so now the good left arm wont stretch fully, canala has done some damage. Also constant pins and needles, numbness in right arm the side of the masectomy.
the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
Mexican cuties said:
no words just sending love to you all, never thought i would be part of this forum until a surprise masectomy last october, was told that would catch it all, then some nodes positive, thought i would be back to some normality by christmas, then advised i would be on 6 cycles of chemo, then radiotherapy, work have been so supportive, did 3 x ec chemo, after 3rd one, had 2 big seizures at home hours later, dont remember a lot, thank god husband was here, ambulance to a&e, then another seizure where husband was ushered out of the room. worst night in the ic ward, blood taken every 2 hours, so now the good left arm wont stretch fully, canala has done some damage. Also constant pins and needles, numbness in right arm the side of the masectomy.
the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
Very sorry to hear that and it doesn't read like a rant btw. I would agree the mental side is the toughest battle you will fight. Pop in here anytime, there are lots of us who are all happy to listen the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
Edited by Siko on Friday 23 February 10:59
Had kidney pre-op a week ago which was ok bar blood pressure which they said see doctor about , said they will not proceed with kidney op until they’ve looked at prostrate biopsy ( which was 14 days ago now ) .
Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
Mexican cuties said:
no words just sending love to you all, never thought i would be part of this forum until a surprise masectomy last october, was told that would catch it all, then some nodes positive, thought i would be back to some normality by christmas, then advised i would be on 6 cycles of chemo, then radiotherapy, work have been so supportive, did 3 x ec chemo, after 3rd one, had 2 big seizures at home hours later, dont remember a lot, thank god husband was here, ambulance to a&e, then another seizure where husband was ushered out of the room. worst night in the ic ward, blood taken every 2 hours, so now the good left arm wont stretch fully, canala has done some damage. Also constant pins and needles, numbness in right arm the side of the masectomy.
the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
All my love , hope you get there eventually , thoughts with you the surgery was nothing compared to the mental side, oncologist stopped other 3 cycles of chemo, straight to hormone therapy tablets for 5 years, then 2 years of oral chemo after radiotherapy. god love the husband, been carer, verbal punch bag, and my rock, no kids, hardly any family, which we dont see anyway, all the specialist think the seizures are down to my levels, issue with calcium, parathyroid and low cortisol levels. finally seen letter from cancer oncologist asking for urgent referal to the endo team. just want to know what was the actual cause of the seizures, 5 weeks since the seizures but still terrified to go out on my own, not driving currently, of course, on seizure tablets as well as all the others. its like ground hog day, each day, with crying, anxiety and anger, christ never felt anything like it. trying so hard to be positive that i am still here, but was so close to say, stop it all, its not worth what its doing mentally and physically. Still going to persevere, christ wish the car show season would hurry up and this rain would stop
sorry to rant , so aware there are people much worse off than us
Had kidney pre-op a week ago which was ok bar blood pressure which they said see doctor about , said they will not proceed with kidney op until they’ve looked at prostrate biopsy ( which was 14 days ago now ) .
Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
First time for me posting in this thread I guess like many I never came into this thread before but here I am.
I found out on Friday my mum has breast cancer, I only have a small family anyway and no real experience of anyone I’m close to having cancer other than a good friend who died of it a few years ago at a young age.
So my mum got the news on Friday and told me the same day. This is all new to me and my parents. All I know so far is that she is going for an op on the 19th March to have the lump removed after which they will properly examine it and decide then on what is required, hoping that it hasn’t spread anywhere else.
It’s a horrible time and my thoughts go out to all the others dealing with it too.
I found out on Friday my mum has breast cancer, I only have a small family anyway and no real experience of anyone I’m close to having cancer other than a good friend who died of it a few years ago at a young age.
So my mum got the news on Friday and told me the same day. This is all new to me and my parents. All I know so far is that she is going for an op on the 19th March to have the lump removed after which they will properly examine it and decide then on what is required, hoping that it hasn’t spread anywhere else.
It’s a horrible time and my thoughts go out to all the others dealing with it too.
Jamescrs said:
First time for me posting in this thread I guess like many I never came into this thread before but here I am.
I found out on Friday my mum has breast cancer, I only have a small family anyway and no real experience of anyone I’m close to having cancer other than a good friend who died of it a few years ago at a young age.
So my mum got the news on Friday and told me the same day. This is all new to me and my parents. All I know so far is that she is going for an op on the 19th March to have the lump removed after which they will properly examine it and decide then on what is required, hoping that it hasn’t spread anywhere else.
It’s a horrible time and my thoughts go out to all the others dealing with it too.
James, sorry to hear your news. My father was diagnosed last year, it was a shock for the whole family. Look after your mum, but dont forget to look after yourself as well. Fingers crossed for your mum.I found out on Friday my mum has breast cancer, I only have a small family anyway and no real experience of anyone I’m close to having cancer other than a good friend who died of it a few years ago at a young age.
So my mum got the news on Friday and told me the same day. This is all new to me and my parents. All I know so far is that she is going for an op on the 19th March to have the lump removed after which they will properly examine it and decide then on what is required, hoping that it hasn’t spread anywhere else.
It’s a horrible time and my thoughts go out to all the others dealing with it too.
Gas1883 said:
Had kidney pre-op a week ago which was ok bar blood pressure which they said see doctor about , said they will not proceed with kidney op until they’ve looked at prostrate biopsy ( which was 14 days ago now ) .
Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
Don't worry about the robot side of it - I've had chunks of lung removed by VATS (Video Assisted Thoracic Surgery) and RATS (Robot Assisted etc) and the only real difference for me was that instead of one cut about 4" long and a hole for a drain for the former, I had 6 small incisions and a hole for a drain for the latter (they took a bigger chunk the 2nd time). They mention it because it sounds high tech and they reckon most people prefer the idea of a machine doing the op than an actual surgeon!Be nice to move on with kidney as obviously I’m thinking it’s getting bigger all the time , though they did say it was slow growing , they said 2-5 days in hospital , 4 weeks not driving , 8 weeks off work , 5 yrs of regular checks .
Just robot has me worried , wasn’t worried until consultant said don’t worry consultant controls it , which worried me as I thought why did he bring it up in the first place .
All the best to everyone going through it .
The benefit of the robot surgery is precision - the surgeon tells it where to go and what to do, but because the robot is using sensors it'll actually be more accurate when it cuts and staples stuff than a bloke/bloke-ess looking at an image on a screen and manipulating arms through weird motions and hopefully not missing!
Good luck with the surgery - I'm sure you'll be fine. The advice about time off is very much 'one size fits all'. I've generally been driving after a week for my smaller ops (largely because I've needed to get to a post-op appt for stitch removal and needed to get there under my own steam!). I'd also expect to be out of hospital pretty quickly. I've spent time in intensive care after each of 3 ops - still out in 4 days. The smaller stuff and they'll be looking to have you out after 1-2 days. Time off work - depends what you do and how long you want to be off. I've take 8 weeks if I'm still getting paid. You'll be feeling pretty good after 4 weeks but the extra time to build back strength and deal with the mental side of things is time well spent
I'm coming up due my 4 month post-op checks after op #6 - still brick it every time, but at least it was a year between #5 and #6 so all I can hope is they've finally managed to get all the bloody cancer out of my body......feel fine really and signed up to do the London to Brighton off-road ride to raise some money for cancer charities in September, so I'll be pretty pissed off if they find anything that stops me doing that!
I've just got off the phone to my mother, my dad (terminal liver cancer) is now bed bound and has basically stopped eating and drinking. From what I have read, this means he's now at the end of life and may pass within days or up to a couple of weeks. At this point it would probably be merciful for it to happen fairly quickly as nobody wants any more suffering and he's had no quality of life for months now.
TameRacingDriver said:
I've just got off the phone to my mother, my dad (terminal liver cancer) is now bed bound and has basically stopped eating and drinking. From what I have read, this means he's now at the end of life and may pass within days or up to a couple of weeks. At this point it would probably be merciful for it to happen fairly quickly as nobody wants any more suffering and he's had no quality of life for months now.
Sorry to hear that. Are you able to spend some time with him?
james - the breast care nurses are amazing, and have good correct information, as well as the oncologist that will be treating your mum, dont google too much - wait for tests and results, it really helped that my husband came to every appointment, and treatment, as he took in so much more info than i did, still feels like a blur, good forum with workshops, "look good feel better" have various workshops from cold capping, and looking after your hair and skin, to make up and nail workshops, really gives informative tips. Will be so much for you all to take in, so dont feel bad if you go to appointments with a list of questions, we learnt to do this after the first one. Everyone says its the waiting that is the worst, and we can deffo agree on that statement!!
xx
xx
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