What's wrong with me?!
Discussion
was going to ask for update yesterday but got distracted..
Vladimir said:
That must be pretty rare? Hope it's not long term but good they've finally nailed it.
I imagine you might have lost weight (if that's possible?!) with all that throwing up?
It's the same type of problem as gastro-oespophageal reflux except instead of the opening INTO the stomach it's the bone exiting it, which I think is rarer. Not weighed myself but probably have put on weight, I'm eating a good amount but not exercising and I only ever vomit bile on an empty stomach. I imagine you might have lost weight (if that's possible?!) with all that throwing up?
Cheers Vladimir.
Picked up prescription of sucralfate which I'll start tomorrow. I've been generally feeling better the last 2 weeks (not better better, but an improvement) so I'm almost tempted to avoid the meds to see what happens but think I'll give them a go. They're pretty big tablets and 1 gram of active ingredient per tablet.... 3 per day!
Well, for anyone remotely interested....
I FINALLY have found the cause for this problem which, since April, continued to get progressively worse (admittedly slowly) and is currently the worst it has ever been.
I had an MRI brain scan last Saturday, phone call Monday late morning asking me to go for another one this week, but this time with a contrast dye. This was arranged (and done) Friday just gone. Tuesday following the initial MRI scan I get a call from my GP requesting me to see him that day. I said I was very busy at work but could cancel my clinic and see him if it was urgent. He simply replied "I think that it is and you should come in today". I think you can see where this is going....
Basically, I have a 3.5-4cm brain tumour in an extremely rare location near my 4th ventricle and cerebellum (hence I occasionally get dizzy). 4th ventricle tumours are relatively easy to operate on but there's something different about mine and its location and they are not yet sure what they can do at this stage.
My 2nd scan has been sent to Southampton neuro department and all the consultants there will be meeting Tuesday and my case is one hey'll be discussing to see where to go from here.
Apparently, it's amazing I'm still walking. I'm getting properly fed up with this problem now and want it going away. It's not great when they say they aren't sure if they can do anything, and that if left untreated it would EVENTUALLY be, well, the end of me....
I await a phone call Wednesday/Thursday time I believe.
What a f
ker.
I FINALLY have found the cause for this problem which, since April, continued to get progressively worse (admittedly slowly) and is currently the worst it has ever been.
I had an MRI brain scan last Saturday, phone call Monday late morning asking me to go for another one this week, but this time with a contrast dye. This was arranged (and done) Friday just gone. Tuesday following the initial MRI scan I get a call from my GP requesting me to see him that day. I said I was very busy at work but could cancel my clinic and see him if it was urgent. He simply replied "I think that it is and you should come in today". I think you can see where this is going....
Basically, I have a 3.5-4cm brain tumour in an extremely rare location near my 4th ventricle and cerebellum (hence I occasionally get dizzy). 4th ventricle tumours are relatively easy to operate on but there's something different about mine and its location and they are not yet sure what they can do at this stage.
My 2nd scan has been sent to Southampton neuro department and all the consultants there will be meeting Tuesday and my case is one hey'll be discussing to see where to go from here.
Apparently, it's amazing I'm still walking. I'm getting properly fed up with this problem now and want it going away. It's not great when they say they aren't sure if they can do anything, and that if left untreated it would EVENTUALLY be, well, the end of me....
I await a phone call Wednesday/Thursday time I believe.
What a f
ker.
Ross, my thoughts & prayers are with youI don't usually post in this neck of the woods but have followed your thread OP, all i can say is I'm glad they have found the root cause and wish you the very best of luck in whatever treatment the Docs come up with. For what it's worth from a complete stranger, chin up and all the best mate.
I too had a large tumour(haemangeoblastoma) on my cerebellum. After an 'anxious' time it turned out - post op (because they couldn't perform a biopsy) - to be benign. Neurosurgeons do hundreds of these type of operations every month. If you're interested to see exactly how casual they are about these things they actually post some operations on Youtube.
goldblum said:
I too had a large tumour(haemangeoblastoma) on my cerebellum. After an 'anxious' time it turned out - post op (because they couldn't perform a biopsy) - to be benign. Neurosurgeons do hundreds of these type of operations every month. If you're interested to see exactly how casual they are about these things they actually post some operations on Youtube.
Very true, but the neurosurgeon I spoke to said they couldn't be sure.... But I'm sure they'll figure something out. Most brain tumours are benign, they are dangerous because they are in an enclosed space and can press on some important stuff.
I am remaining positive, and will keep this thread updated.
Gassing Station | Health Matters | Top of Page | What's New | My Stuff