Kidney Stones

Author
Discussion

zeDuffMan

4,055 posts

151 months

Tuesday 30th May 2017
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R8Steve said:
If you have proper kidney stones you wouldn't be posting on here. wink
Kidney stones vary a lot. The worst ones have jagged edges and cause blockages. You can have more rounded ones that don't obstruct so much which don't hurt nearly as badly.

xjay1337

15,966 posts

118 months

Tuesday 30th May 2017
quotequote all
dr_gn said:
Update - had the CT scan, which showed another stone on the other side. The consultant said it wouldn't be wise to travel, becasue if they moved, it would be an emergency admission to the nearest hospital. So, I've had to cancel my summer holiday (which was this week).

Got an appointment on 9th June for laser treatment to break them both up. Not looking forward to it, since it's supposed to be a GA. I've requested a spinal instead, but am now wondering whether it's the best idea. Will talk to the consulatant on the day I think.

Will be 8 weeks since first being in A&E. Two months feeling crap may be trivial compared with what many people have to put up with, but god I'm fed up with it now! No pain, but constant nausea and weakness.
That's proper ste mate. Hopefully you get better soon.

dudleybloke

19,824 posts

186 months

Tuesday 30th May 2017
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We need you to get better, those paper boats don't build themselves you know!

dr_gn

Original Poster:

16,163 posts

184 months

Tuesday 30th May 2017
quotequote all
dudleybloke said:
We need you to get better, those paper boats don't build themselves you know!
Ha ha - that's the least of it! I hate TV at the best of times, but I'm now an expert on Salvage Hunters, Top Gear and Life Below bloody Zero. Not done any models - can't concentrate.

dr_gn

Original Poster:

16,163 posts

184 months

Tuesday 30th May 2017
quotequote all
xjay1337 said:
dr_gn said:
Update - had the CT scan, which showed another stone on the other side. The consultant said it wouldn't be wise to travel, becasue if they moved, it would be an emergency admission to the nearest hospital. So, I've had to cancel my summer holiday (which was this week).

Got an appointment on 9th June for laser treatment to break them both up. Not looking forward to it, since it's supposed to be a GA. I've requested a spinal instead, but am now wondering whether it's the best idea. Will talk to the consulatant on the day I think.

Will be 8 weeks since first being in A&E. Two months feeling crap may be trivial compared with what many people have to put up with, but god I'm fed up with it now! No pain, but constant nausea and weakness.
That's proper ste mate. Hopefully you get better soon.
Thanks! Pissed off about my holiday (Pembrokeshire), we look forward to it all year. Re-booked for August. At least the weather appears to be crap down there this week.

Chris Type R

8,028 posts

249 months

Sunday 4th June 2017
quotequote all
R8Steve said:
If you have proper kidney stones you wouldn't be posting on here. wink
You were right, turned out to be an infection in the end. Lots of poking and prodding and *two* prostate examinations in one day !

dr_gn

Original Poster:

16,163 posts

184 months

Sunday 4th June 2017
quotequote all
Chris Type R said:
R8Steve said:
If you have proper kidney stones you wouldn't be posting on here. wink
You were right, turned out to be an infection in the end. Lots of poking and prodding and *two* prostate examinations in one day !
By the end of this week (due to go in for laser treatment on Friday), in the past 2 months since being admitted to A&E, I'll have had every bodily orifice penetrated at least once by a medical professional. irked

M42L

43 posts

112 months

Saturday 17th June 2017
quotequote all
Checked into the kidney stone club today for the second time in 4 years. The first one took 7 days to appear, gave me a horrendous infection prompting a weird sort of half dream that I met God.
Today the hottest day of the year and I spend it in A&E. Was woken up by a pain that by lunchtime had me throwing up, in tears curled up on the bathroom floor. So A&E it is. Eventually passed a minuscule amount of pee, had the usual pill up the bum, had a more satisfying pee and passed a stone. Got scanned and I still have a 6mm one stuck. Up shot is 9hrs in A&E but feeling so much better and googling what torture the urologist has in store to remove it.

dr_gn

Original Poster:

16,163 posts

184 months

Monday 19th June 2017
quotequote all
M42L said:
Checked into the kidney stone club today for the second time in 4 years. The first one took 7 days to appear, gave me a horrendous infection prompting a weird sort of half dream that I met God.
Today the hottest day of the year and I spend it in A&E. Was woken up by a pain that by lunchtime had me throwing up, in tears curled up on the bathroom floor. So A&E it is. Eventually passed a minuscule amount of pee, had the usual pill up the bum, had a more satisfying pee and passed a stone. Got scanned and I still have a 6mm one stuck. Up shot is 9hrs in A&E but feeling so much better and googling what torture the urologist has in store to remove it.
I had laser stone removal Friday before last. They could only remove on side, so now got stents in both kidney pipes.Discharged (with catheter) on the same day, then agonizing pain again on Saturday night. Spent all last week in hospital with a kidney infection....and another catheter. Home now, getting over the effects of all this.

As soon as I've recovered, I've got to go through it all again to get the other side done.

Not my idea of what a "day patient" was!

M42L

43 posts

112 months

Monday 3rd July 2017
quotequote all
Well, got a prompt referral to see consultant slap bang in the middle of my holiday. I'm taking the risk of going as it's UK based and as the first episode happened whilst away I know I can make the journey back to our A&E.
Not sure OH is happy at a fast journey home in a 1+1 and another black bucket purchase from B&Q.

dr_gn

Original Poster:

16,163 posts

184 months

Tuesday 4th July 2017
quotequote all
So Im back in tomorrow for the other side. I hope the stents and medication have dilated the tubes a bit so that they can get to the stone.

The stents are hopeless - you feel full all the time, even after pissing like a racehorse, and have had them in now since 9th June.

Hopefully this time I wont have stage 3 AKI after the operation...

Wish me luck!

Vantagemech

5,728 posts

215 months

Monday 17th July 2017
quotequote all
Currently having a few days off recovering after having an 8mm stone removed from my urethra.
I had the same op 20 years ago and was in bloody agony after the op, the drugs wore off at 2:00am and I woke up like someone had my left kidney in a vice.
Ive a few stones lodged in both kidneys, one being a cluster of the bds in a complex cyst. No pain, just a bugger knowing theyre there. Ive another stuck to the top of the left kidney, they were going to do keyhole but failed to get it loose so left it there.
Had the usual signs, frequent visits to the loo, not passing much, dull pain from the side down to the groin area. Went to my GP and said this is what it is, did a urine test and referred me there and then. Pain was not as bad as 20 years ago, but then I was drinking 3 or 4 nights a week. Apparently the pain is caused as all the nerve endings meet up by the neck of the bladder.
Still took 3 months to get the op, though if the stone blocks the passageway it can cause damage to the kidney.
Thankfully the dull pain has gone and considering I was let out Thursday lunchtime I should be back in later this week. Not taken pain killers for 2 days but drinking the litres of water a day is tricky!

As for cause Im still waiting for the results. Dr said theres no evidence to suggest diet and my grandmother suffered with them also so more than likely hereditary.

There is a drug that helps dilate the tubes, worth it if the stone is in the neck or past the bladder. I can find out what it is as it also releives some of the discomfort as well.

dr_gn

Original Poster:

16,163 posts

184 months

Monday 17th July 2017
quotequote all
Vantagemech said:
Currently having a few days off recovering after having an 8mm stone removed from my urethra.
I had the same op 20 years ago and was in bloody agony after the op, the drugs wore off at 2:00am and I woke up like someone had my left kidney in a vice.
Ive a few stones lodged in both kidneys, one being a cluster of the bds in a complex cyst. No pain, just a bugger knowing theyre there. Ive another stuck to the top of the left kidney, they were going to do keyhole but failed to get it loose so left it there.
Had the usual signs, frequent visits to the loo, not passing much, dull pain from the side down to the groin area. Went to my GP and said this is what it is, did a urine test and referred me there and then. Pain was not as bad as 20 years ago, but then I was drinking 3 or 4 nights a week. Apparently the pain is caused as all the nerve endings meet up by the neck of the bladder.
Still took 3 months to get the op, though if the stone blocks the passageway it can cause damage to the kidney.
Thankfully the dull pain has gone and considering I was let out Thursday lunchtime I should be back in later this week. Not taken pain killers for 2 days but drinking the litres of water a day is tricky!

As for cause Im still waiting for the results. Dr said theres no evidence to suggest diet and my grandmother suffered with them also so more than likely hereditary.

There is a drug that helps dilate the tubes, worth it if the stone is in the neck or past the bladder. I can find out what it is as it also releives some of the discomfort as well.
Probably Tamsulosin? I've been on the full range of medication during my kidney stone removal/kidney failure.

Went in to A&E, and was diagnosed with a stone on 18th April. Turned out to be 2 stones. Had the last stent removed today. Felt like having the QE2 pulled through my knob, but at least I can cough/laugh/take a deep breath without a little bit of wee coming out. Just hope the blood in urine clears up in the next few days then that's hopefully me done with hospitals for 3 months 'till the next check.





Vantagemech

5,728 posts

215 months

Tuesday 18th July 2017
quotequote all
dr_gn said:
Probably Tamsulosin? I've been on the full range of medication during my kidney stone removal/kidney failure.

Went in to A&E, and was diagnosed with a stone on 18th April. Turned out to be 2 stones. Had the last stent removed today. Felt like having the QE2 pulled through my knob, but at least I can cough/laugh/take a deep breath without a little bit of wee coming out. Just hope the blood in urine clears up in the next few days then that's hopefully me done with hospitals for 3 months 'till the next check.
Wow, I had it easy then! Apart from getting over the anaesthetic and the worst case of constipation I've ever had (Seriously, the pain was worse than the bloody stones / first piss after the op!) honestly though I was going to st my ring inside out. smile I stopped taking the co-codomol the day after being released.

I've to go back for more checks, at least the surgeon put my mind at rest that the cyst isn't serious.
However, I've not had a drink for 12 days, think I may drop in to the local micro brewery Friday and make up for that!

FiF

44,081 posts

251 months

Tuesday 18th July 2017
quotequote all
Vantagemech said:
dr_gn said:
Probably Tamsulosin? I've been on the full range of medication during my kidney stone removal/kidney failure.

Went in to A&E, and was diagnosed with a stone on 18th April. Turned out to be 2 stones. Had the last stent removed today. Felt like having the QE2 pulled through my knob, but at least I can cough/laugh/take a deep breath without a little bit of wee coming out. Just hope the blood in urine clears up in the next few days then that's hopefully me done with hospitals for 3 months 'till the next check.
Wow, I had it easy then! Apart from getting over the anaesthetic and the worst case of constipation I've ever had (Seriously, the pain was worse than the bloody stones / first piss after the op!) honestly though I was going to st my ring inside out. smile I stopped taking the co-codomol the day after being released.

I've to go back for more checks, at least the surgeon put my mind at rest that the cyst isn't serious.
However, I've not had a drink for 12 days, think I may drop in to the local micro brewery Friday and make up for that!
Re the constipation from co-codomol, lactulose syrup from pharmacy will sort you very effectively.

wobert

5,052 posts

222 months

Tuesday 18th July 2017
quotequote all
Sorry to hear of anyone suffering kidney stones, they are an absolute bugger, and as my consultant pointed out, once you've had them, you are predisposed to them recurring until you meet your maker.....

This is my account of kidney stones from 2015.....

"Up to the 23rd June I was cycling c75 miles a week.

On the 24th June I started getting kidney pain during the morning, by lunchtime I was vomiting and the pain was getting worse. My next door neighbour who is a practising nurse thought it was appendicitis, and ran me to A&E.

I was wheeled in, in a wheelchair as I was unable to walk. More vomiting, and I had a diagnosis of a water infection and was prescribed anti biotics and Co-codamol.

The pain never went away, constant 24/7, it affected my appetite and I didn't eat for 9 days. I lost 8 kg in this time.

After a week I revisited my GP who decided it was a kidney stone and arranged a CT scan.

The following week the pain disapated, and my appetite returned, fortunately as I was then away for a week after in Ibiza.

I had my CT scan on my return and the GP called me to inform me I had an 11mm stone lodged in my ureter (the tube that links the kidney to the bladder).

The consultant Urologist called me the following evening an stated it needed urgent treatment due to the risk to my kidney function. I was booked into his clinic the following Monday, where I was told I would need two operations to resolve the issue.

Two days later I went in to have a stent fitted under GA, and told not to lift anything heavy or do any exercise.

Six weeks later I returned to have the stone blasted with a laser and this time to have a temporary threaded stent fitted again under GA.

They access the kidney from the normal route out, there are some rather unpleasant side effects with the surgery, peeing rose wine is the least worst side effect!

Three days later the temporary stent was removed, a gentle pull on the thread by the nurse pulled a foot long length of tube from my gentlemen's sausage."

In December I had my follow up appointment to determine the stone composition. It was calcium based meaning I don't drink enough. Consultant advised drinking 3l of liquid a day, easier said than done when you spend your life travelling....

Once you've had them, your predisposition to them recurring is raised by 50%. The doctor mentioned it was likely he see me again at least twice before he retires......great!

Anyone who suffers them has my full sympathy."

I too suffered constipation from the co-codamol, utter bunged up and felt I was going to explode......As with other Ducolax was my friend, although the the toilet resembled the scene from a World War One mortar hit afterwards.....


dr_gn

Original Poster:

16,163 posts

184 months

Tuesday 18th July 2017
quotequote all
wobert said:
Sorry to hear of anyone suffering kidney stones, they are an absolute bugger, and as my consultant pointed out, once you've had them, you are predisposed to them recurring until you meet your maker.....

This is my account of kidney stones from 2015.....

"Up to the 23rd June I was cycling c75 miles a week.

On the 24th June I started getting kidney pain during the morning, by lunchtime I was vomiting and the pain was getting worse. My next door neighbour who is a practising nurse thought it was appendicitis, and ran me to A&E.

I was wheeled in, in a wheelchair as I was unable to walk. More vomiting, and I had a diagnosis of a water infection and was prescribed anti biotics and Co-codamol.

The pain never went away, constant 24/7, it affected my appetite and I didn't eat for 9 days. I lost 8 kg in this time.

After a week I revisited my GP who decided it was a kidney stone and arranged a CT scan.

The following week the pain disapated, and my appetite returned, fortunately as I was then away for a week after in Ibiza.

I had my CT scan on my return and the GP called me to inform me I had an 11mm stone lodged in my ureter (the tube that links the kidney to the bladder).

The consultant Urologist called me the following evening an stated it needed urgent treatment due to the risk to my kidney function. I was booked into his clinic the following Monday, where I was told I would need two operations to resolve the issue.

Two days later I went in to have a stent fitted under GA, and told not to lift anything heavy or do any exercise.

Six weeks later I returned to have the stone blasted with a laser and this time to have a temporary threaded stent fitted again under GA.

They access the kidney from the normal route out, there are some rather unpleasant side effects with the surgery, peeing rose wine is the least worst side effect!

Three days later the temporary stent was removed, a gentle pull on the thread by the nurse pulled a foot long length of tube from my gentlemen's sausage."

In December I had my follow up appointment to determine the stone composition. It was calcium based meaning I don't drink enough. Consultant advised drinking 3l of liquid a day, easier said than done when you spend your life travelling....

Once you've had them, your predisposition to them recurring is raised by 50%. The doctor mentioned it was likely he see me again at least twice before he retires......great!

Anyone who suffers them has my full sympathy."

I too suffered constipation from the co-codamol, utter bunged up and felt I was going to explode......As with other Ducolax was my friend, although the the toilet resembled the scene from a World War One mortar hit afterwards.....
Various suppositories...check. I too am ashamed of what I did to the hospital toilet after two of those and a dose of lactulose (this after a week of constipation after the first op).



(the morphine version was the only thing that got me through the first trip to A&E).

Pissing red wine afer the first laser treatment...check.



Pissing other weird stuff during kidney failure (stage 3 AKI)...check





Strong medication and walking around the hospital with a drip and a urine bag...check. BTW, having catheters, and especially having them removed is NOT fun. The stub on the pipe is for them to inflate and deflate a bulb on the bladder end to hold it in place...and believe me, when they remove it, I'm sure they sometimes don't fully deflate...



Final stent removal yesterday...check.



So much for a "day case"!

Might seem strange to have taken pictures, but when you're in hospital it gets very boring/disorientating/strange, especially if they put you in a side room. Strange like...talking to people outside the main entrance who are in a dressing gown, on a drip, using a nebuliser AND smoking! Another example, before admission, I hated Gordon Ramsey, but during the week I watched very episode of Kitchen Nightmares on my phone, and now quite like him. No idea where that randomness came from, must have been the medication. It's all very odd.

The NHS sometimes gets a hard time in the news, but the staff at the hospital were absolutely fantastic, from the consultants to the cleaners.

Anyway, I don't want to tempt fate here, but since the stones are gone, and the last stent (and associated discomfort/pain/constant wanting to piss) was removed yesterday, I've not felt so well in years. I had another issue with undiagnosed groin pain for the past 4 years which has now gone. Looking back, a whole load of symptoms and associated GP visits were probably caused by these stones forming. I *thought* I could see a change in urine colour a year or so ago...and had two supposed UTI's. It seems common for a GP to mis-diagnose stones as an infection. Even when I went to the GP the afternoon before the A&E visit, she said it was just an infection, despite nothing showing in a urine sample, and the sample looking like Coca Cola. I wish I'd insisted on a CT scan four years ago with the groin issue, insted of messing about with pointless physios and the like - I knew it wasn't a physio thing, but they insisted it was.

Moral of the story - drink lots of water folks!




wobert

5,052 posts

222 months

Tuesday 18th July 2017
quotequote all
The one equaliser in hospital is you can always find somebody worse off than yourself....

My "Edward Woodward" was a guy I got chatting to pre-op the second time around, kidney cancer and a bladder stone....the size of a satsuma apparently.....

dr_gn

Original Poster:

16,163 posts

184 months

Tuesday 18th July 2017
quotequote all
wobert said:
The one equaliser in hospital is you can always find somebody worse off than yourself....

My "Edward Woodward" was a guy I got chatting to pre-op the second time around, kidney cancer and a bladder stone....the size of a satsuma apparently.....
Very true. Some great folks in there.

Piginapoke

4,760 posts

185 months

Wednesday 19th July 2017
quotequote all
Jesus. Get well soon dr_gn.

Are you kidneys now working?