That was a sh*t day!

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mattyn1

Original Poster:

5,756 posts

155 months

Tuesday 2nd January 2018
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Oh and almost forgot. In the post today was a Get Well card from Chelsea FC signed by the first team squad, along with half dozen signed photos!

Lovely surprise.

br d

8,400 posts

226 months

Tuesday 2nd January 2018
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Fantastic gesture by CFC!
Good luck with the ongoing treatment.

Gosport sounds like somewhere I should visit for a hoon when the weather breaks, I'm going to need a couple of locals to show me some decent routes though!

Edited by br d on Tuesday 2nd January 21:48

AndStilliRise

2,295 posts

116 months

Tuesday 2nd January 2018
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Sorry to hear. Unfortunately I don't have a flash car, yet, but would still like to wish you well for the future.

Legacywr

12,127 posts

188 months

Tuesday 2nd January 2018
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The last place you’re going to ‘hoon’.. is Gosport smile

mattyn1

Original Poster:

5,756 posts

155 months

Tuesday 2nd January 2018
quotequote all
br d said:
Fantastic gesture by CFC!
Good luck with the ongoing treatment.

Gospot sounds like somewhere I should visit for a hoon when the weather breaks, I'm going to need a couple of locals to show me some decent routes though!
That was all due to a letter my Mrs wrote to the club. Keeps his focus ready for the Leicester game on 13th..... did I mention Jack and his brother have got me a ticket too? We will be sat right behind the bench.

Gosport town is mighty busy..... better roads around the new forest, we often nip down to Lyndhurst for lunch and a bit of supercar spotting. The Ferrari dealer there is great allowing us mortals to fawn over the stock!

We need to have a drive up toward Farnborough and Goodwood.... not had chance yet as we have only been here since August and life has been a bit busy!



mattyn1

Original Poster:

5,756 posts

155 months

Wednesday 3rd January 2018
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Nearly Wednesday tea time and we are already back home. Today’s session went spectacularly well, still persevering with the cannula opposed to the recommended pic line. Jack is adamant he does not want the pic - he says it will make him realise he is ill and he does not want that. I do see his point.
Chatted to the mum of another patient today while the chemo was given. This is a lad, a little older than Jack, who is terminally ill. He is attending chemo every three weeks as maintenance. He has an outstanding outlook, and made me realise finally how lucky (in cancer terms) we are.
Two down, ten to go.

Legacywr

12,127 posts

188 months

Wednesday 3rd January 2018
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If you're in the hospital full time, you need a PIC line,as you're constantly haveing meds etc, but, I had to have 5, as they come out easily. So, good choice!

I like to think you're confident about it all now?

mattyn1

Original Poster:

5,756 posts

155 months

Wednesday 3rd January 2018
quotequote all
Legacywr said:
If you're in the hospital full time, you need a PIC line,as you're constantly haveing meds etc, but, I had to have 5, as they come out easily. So, good choice!

I like to think you're confident about it all now?
I understand what you are saying about the line..... but like I say Jack is adamant. While we are going on a day case basis then I don’t think he will be converted. Another matter however if we don’t get a positive result at the PET scan in a few weeks.

I am as confident as I dare to be. I am all too aware this may bite us in the arse any time!

FocusRS3

3,411 posts

91 months

Wednesday 3rd January 2018
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mattyn1 said:
I understand what you are saying about the line..... but like I say Jack is adamant. While we are going on a day case basis then I don’t think he will be converted. Another matter however if we don’t get a positive result at the PET scan in a few weeks.

I am as confident as I dare to be. I am all too aware this may bite us in the arse any time!
Keeping tabs on this thread Matt fingers crossed for you guys

Legacywr

12,127 posts

188 months

Wednesday 3rd January 2018
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How often is he having treatment?

I did find having the PIC line fitted very relaxing. I had a Hickman line fitted too... I also mangaged to pull that out too, totally my fault smile

mattyn1

Original Poster:

5,756 posts

155 months

Wednesday 3rd January 2018
quotequote all
FocusRS3 said:
Keeping tabs on this thread Matt fingers crossed for you guys
Thanks mate!

mattyn1

Original Poster:

5,756 posts

155 months

Wednesday 3rd January 2018
quotequote all
Legacywr said:
How often is he having treatment?

I did find having the PIC line fitted very relaxing. I had a Hickman line fitted too... I also mangaged to pull that out too, totally my fault smile
Fortnightly.

Everyone we have spoken to has recommended Pic. But as it is fortnightly and his veins recover, I or the staff can’t insist too much. We were just chatting about it during the football..... he feels really comfy doing this bit his way.
We had snags two weeks ago with the cannular. Today it went straight in and held up. That makes Jack feel good, and if he feels good, I feel good.
Even the last minute Arsenal goal has not dampened his spirits. We are expecting nausea tomorrow.... we shall wait and see.

HughG

3,547 posts

241 months

Wednesday 3rd January 2018
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Matt, I hadn’t seen this thread until this evening, thinking of you and Jack and I’m sure the chemo will do it’s thing.


Tumbler

1,432 posts

166 months

Wednesday 3rd January 2018
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mattyn1 said:
Fortnightly.

Everyone we have spoken to has recommended Pic. But as it is fortnightly and his veins recover, I or the staff can’t insist too much. We were just chatting about it during the football..... he feels really comfy doing this bit his way.
We had snags two weeks ago with the cannular. Today it went straight in and held up. That makes Jack feel good, and if he feels good, I feel good.
Even the last minute Arsenal goal has not dampened his spirits. We are expecting nausea tomorrow.... we shall wait and see.
A heat cuff/pack may help with the cannulation, I used it before and during after having various issues with my veins a couple of times.

mattyn1

Original Poster:

5,756 posts

155 months

Thursday 4th January 2018
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Tumbler said:
A heat cuff/pack may help with the cannulation, I used it before and during after having various issues with my veins a couple of times.
I forgot to add he has a heat pack for the last bag. Definitely helps.

mattyn1

Original Poster:

5,756 posts

155 months

Thursday 4th January 2018
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So here we are... in the barbers. Jack woke today and requested a bacon sandwich. He is feeling ok so the more powerful anti sickness tablets seem to be doing their job.

We were informed hair loss can happen any time after the second session. In his typically positive manner, the hair is coming off now. I admire this positiveness but it so emotional. Pride, worry, fear, some panic, realisation all rolled into one.

I say coming off.... as I type and watch he is having some styling done so we shall see what the final cut is like!

FocusRS3

3,411 posts

91 months

Thursday 4th January 2018
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mattyn1 said:
So here we are... in the barbers. Jack woke today and requested a bacon sandwich. He is feeling ok so the more powerful anti sickness tablets seem to be doing their job.

We were informed hair loss can happen any time after the second session. In his typically positive manner, the hair is coming off now. I admire this positiveness but it so emotional. Pride, worry, fear, some panic, realisation all rolled into one.

I say coming off.... as I type and watch he is having some styling done so we shall see what the final cut is like!
Amazing lad right there Matt. I can see why you're full of admiration for him and also why its so emotional.

Glad his appetite is still there , gotta be a good sign!

All the best buddy

FocusRS3

3,411 posts

91 months

Friday 5th January 2018
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Hows Jack today Matt?

mattyn1

Original Poster:

5,756 posts

155 months

Friday 5th January 2018
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He is sparkling today thank you.... he has taken his brother off shopping to West Quay!

Allows me to do some decorating.... the bathroom..... wish I had not started this!

FocusRS3

3,411 posts

91 months

Friday 5th January 2018
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mattyn1 said:
He is sparkling today thank you.... he has taken his brother off shopping to West Quay!

Allows me to do some decorating.... the bathroom..... wish I had not started this!
Amazing news have a top weekend !