That was a sh*t day!
Discussion
Treatment 2A today..... so third of twelve. All going good. The centre is a little quiet, but just as I type now, had to have a quiet word with one of the support staff.
The fourth bag is quite nasty stuff and heavily diluted on the drip with a saline bag. The saline bag ran out so Jack's arm was getting a trifle warm. We pressed the button for help .... this woman poked her head round the corner asking if it was us buzzing. When I said yes we need the nurse she started on telling us how often she hears the buzz but it is a false alarm!! “Stop talking and please get the nurse. We need her now!”
All sorted though! Jack just said it gets proper hot inside his vein! Must be a really odd feeling!!
The fourth bag is quite nasty stuff and heavily diluted on the drip with a saline bag. The saline bag ran out so Jack's arm was getting a trifle warm. We pressed the button for help .... this woman poked her head round the corner asking if it was us buzzing. When I said yes we need the nurse she started on telling us how often she hears the buzz but it is a false alarm!! “Stop talking and please get the nurse. We need her now!”
All sorted though! Jack just said it gets proper hot inside his vein! Must be a really odd feeling!!
Here we go again. Session 2D tomorrow - which on completion we should be 1/3 through it all. That is as long as the PET Scan goes as we hope. That is scheduled for the end of next week!
Thank you to those that have donated a bit to the CLIC Sargent appeal. Really - big thanks as they continue to do a wonderful job. Having my head shaved on Thursday in support of Jack - who is holding on to his hair remarkably well - it is quite thin but if you didn't know I doubt you would guess something was wrong! so anyway, head shave at work to hopefully get some more cash for CS.
Jack doing well - he has had a week or so back in Cornwall where he has loved texting me picture of the pasties he has been munching on! They are not the same in Hampshire!
And finally, everyone still remains chipper and cheerful. Jack's sense of humour still quite dark - but that beside, he seems to be maturing by the week. He said in the car at the weekend he wants to get more out of life than just educate & career. He wants to do things to remember - not necessarily dangerous (his words) but fulfilling too.
He hopes when we go to VMAX he can start with getting as close to 200mph as possible!
The continued words of encouragement, thoughts, and general best wishes continue to come in, so thank you.
Thank you to those that have donated a bit to the CLIC Sargent appeal. Really - big thanks as they continue to do a wonderful job. Having my head shaved on Thursday in support of Jack - who is holding on to his hair remarkably well - it is quite thin but if you didn't know I doubt you would guess something was wrong! so anyway, head shave at work to hopefully get some more cash for CS.
Jack doing well - he has had a week or so back in Cornwall where he has loved texting me picture of the pasties he has been munching on! They are not the same in Hampshire!
And finally, everyone still remains chipper and cheerful. Jack's sense of humour still quite dark - but that beside, he seems to be maturing by the week. He said in the car at the weekend he wants to get more out of life than just educate & career. He wants to do things to remember - not necessarily dangerous (his words) but fulfilling too.
He hopes when we go to VMAX he can start with getting as close to 200mph as possible!
The continued words of encouragement, thoughts, and general best wishes continue to come in, so thank you.
AB said:
Positive news and thoughts still with you.
No idea how I'd cope in the situation, I suspect not quite as well!
Morning and thank you! No idea how I'd cope in the situation, I suspect not quite as well!
I would have thought the same as you. But you just do what is needed. I have had many wobbles....still do. Jack is so strong though we lean on each other.
AB said:
Positive news and thoughts still with you.
No idea how I'd cope in the situation, I suspect not quite as well!
Totally with you on this . No idea how I'd cope in the situation, I suspect not quite as well!
The bond Matt and his son have is strong and I know there is some good that will come of this .
Thinking of you guys , Jacks certainly a strong person
Again fortunately Jack seems to have dodged a bullet with nausea - the high grade anti sickness tablets seem to be doing the job. Also the Dr does not seem concerned that he will be more susceptible to sickness as the treatment progresses. He said as we go through the treatment, the body will get used to it and fight it more and more. I was concerned the body would deteriorate and make sickness more likely.
Anyway all was good Tuesday, and yesterday as a recovery day was pretty straightforward. It does wear him out though but he is eating like a horse due to his steroids he is taking! So much so we went out last night for "all you can eat" ribs! I had a food hangover this morning!
And today is the day my hair comes off! Family are coming in to rattle the buckets - my stylist is coming in to give me the trendiest Grade 0 cut ever! And its freezing out there! wish me luck!
Anyway all was good Tuesday, and yesterday as a recovery day was pretty straightforward. It does wear him out though but he is eating like a horse due to his steroids he is taking! So much so we went out last night for "all you can eat" ribs! I had a food hangover this morning!
And today is the day my hair comes off! Family are coming in to rattle the buckets - my stylist is coming in to give me the trendiest Grade 0 cut ever! And its freezing out there! wish me luck!
Apart from the spelling mistakes, and the wrong name at the bottom......
https://www.royalnavy.mod.uk/news-and-latest-activ...
https://www.royalnavy.mod.uk/news-and-latest-activ...
Well here we are again .... the usual fortnightly treatment session. Though this one is significantly different.
The mid treatment PET scan was last Friday. This was to tell us whether the treatment is working ..... or more importantly if it is not working as expected, and may result in a more aggressive chemo treatment schedule.
The good news is, based on the scan results, jack is bang on as expected, with all traces of the cancer either diminished or diminishing. It also means that he can now have a reduced recipe.... down to three chemicals from the original four. We have dropped the one that can cause lung issues ...... the relief is indescribable (sic).
It has been a somewhat tricky weekend, not knowing results that could mean harsher and more aggressive treatment is a difficult thing to go through. But this result means we can now start to move forward. Jack knows it is even more likely he will be properly cured, and can plan his future with some commitment now. That means college is back in the agenda for September. That means we can plan the good stuff we have to plan (VMax, Formula E, etc).
I know the medics have done an outstanding job, and catching this early as we did in December means we are in the position we are today. But in addition, I firmly believe we can influence some things by a positive and strong outlook when things go bad. I have tried to do this, as head of the family, but it would not be possible without the positivity and wishes from everyone within PH.
My son is going to be ok, and for that, I thank you.
I am looking out of the window and ironically the weather is the greyest and most miserable it has been on these treatment days. But somehow it is bright.... it is a glorious view of the hospital bins!!!!!
The mid treatment PET scan was last Friday. This was to tell us whether the treatment is working ..... or more importantly if it is not working as expected, and may result in a more aggressive chemo treatment schedule.
The good news is, based on the scan results, jack is bang on as expected, with all traces of the cancer either diminished or diminishing. It also means that he can now have a reduced recipe.... down to three chemicals from the original four. We have dropped the one that can cause lung issues ...... the relief is indescribable (sic).
It has been a somewhat tricky weekend, not knowing results that could mean harsher and more aggressive treatment is a difficult thing to go through. But this result means we can now start to move forward. Jack knows it is even more likely he will be properly cured, and can plan his future with some commitment now. That means college is back in the agenda for September. That means we can plan the good stuff we have to plan (VMax, Formula E, etc).
I know the medics have done an outstanding job, and catching this early as we did in December means we are in the position we are today. But in addition, I firmly believe we can influence some things by a positive and strong outlook when things go bad. I have tried to do this, as head of the family, but it would not be possible without the positivity and wishes from everyone within PH.
My son is going to be ok, and for that, I thank you.
I am looking out of the window and ironically the weather is the greyest and most miserable it has been on these treatment days. But somehow it is bright.... it is a glorious view of the hospital bins!!!!!
Edited by mattyn1 on Tuesday 13th February 14:26
Edited by mattyn1 on Tuesday 13th February 15:28
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