That was a sh*t day!
Discussion
mattyn1 said:
Hi all.
Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a t
t not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.
All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
It wont be the first or last time you're overcome with emotion or the enormity of it all. My son was the same, he just got on with it I think me and his mother found it more stressful than him. Just role with the emotional breakdowns, mine would happen when out shopping, getting something to eat in a Pub, or at his bedside I didn't care its what I needed to do.Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a t
t not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
mattyn1 said:
Hi all.
Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a tt not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.
All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
Matt,Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a t
t not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
My heart goes out to you - having had a poorly (now recovered!) child I know something of how hard it can be.
Just a thought, but if your lad is into motorsport, I'm the FD at a Formula E team and when he's feeling better, I could organise for him to have a look around our offices and workshop (with cars) if he's interested. I can get him a go in the simulator too, so long as I don't tell everyone!!!
Drop me a PM if you feel its of interest and when he's up to it I can sort something out.
In the meantime, keep up the fight!
Cheers
Rob
mattyn1 said:
Hi all.
Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a tt not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.
All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
Never apologies for your emotions its totally normal and i think in a way helpful. Apologies for breaking off comms for a few days but things have progressed quite quickly. We are currently in Southampton Genera in the TYA. Chemo starts this afternoon .... Jack is still the most positive and focussed person I have ever met... determined fully to just get this done as quickly as possible.
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected asmspirits so far have been positive and high. I guess the enormity of it all and sudden realisation of the reality..... I feel a bit of a t
t not keeping not together but Christ this is hard enough for me...... for Jack it must be unbearable.All family told at the weekend, and that went better than expected. My sister was obviously devastated and Jack has now received a barrage of texts and messages wishing him well.
Anyway we start today on the six month road.....
Shortly after my son was born he had a bowel problem and was taken from our local hospital to Whitechapel in London by Ambulance after they told us he needed an emergency operation and pulled myself and my wife into a room and said they could not guarantee the outcome.
I'd never ever imagined myself being in a room and being given this kind of news by a doctor who looked at us with such a grave face. Its what you see on the TV right?
We did our best to follow the ambulance to London and the pair of us understandably were blubbering wrecks.
By the time we got there we had cried all our tears and went into the hospital with a positive attitude.
As they wheeled him in (he was 4 months old) they told us he had poo'd on the way which was the most unbelievable news.
he spent a week in a single room recovering from what turned out to be Roto Virus whuch totally dehydrates the body.
I'll never forget the look on his face that week, poor lad was totally drained.
He fortunately made a full recovery and now at 15.5 is playing american football, doing his mocks and looking forward to taking his bike test on his 16th.
Keep positive matey is all i can say.
Thoughts with you all
Robscim said:
Matt,
My heart goes out to you - having had a poorly (now recovered!) child I know something of how hard it can be.
Just a thought, but if your lad is into motorsport, I'm the FD at a Formula E team and when he's feeling better, I could organise for him to have a look around our offices and workshop (with cars) if he's interested. I can get him a go in the simulator too, so long as I don't tell everyone!!!
Drop me a PM if you feel its of interest and when he's up to it I can sort something out.
In the meantime, keep up the fight!
Cheers
Rob
RobMy heart goes out to you - having had a poorly (now recovered!) child I know something of how hard it can be.
Just a thought, but if your lad is into motorsport, I'm the FD at a Formula E team and when he's feeling better, I could organise for him to have a look around our offices and workshop (with cars) if he's interested. I can get him a go in the simulator too, so long as I don't tell everyone!!!
Drop me a PM if you feel its of interest and when he's up to it I can sort something out.
In the meantime, keep up the fight!
Cheers
Rob
He will absolutely love this. Thank you so so much for that offer. I will email you tonight. Awesome.
Matt
FocusRS3 said:
Never apologies for your emotions its totally normal and i think in a way helpful.
Shortly after my son was born he had a bowel problem and was taken from our local hospital to Whitechapel in London by Ambulance after they told us he needed an emergency operation and pulled myself and my wife into a room and said they could not guarantee the outcome.
I'd never ever imagined myself being in a room and being given this kind of news by a doctor who looked at us with such a grave face. Its what you see on the TV right?
We did our best to follow the ambulance to London and the pair of us understandably were blubbering wrecks.
By the time we got there we had cried all our tears and went into the hospital with a positive attitude.
As they wheeled him in (he was 4 months old) they told us he had poo'd on the way which was the most unbelievable news.
he spent a week in a single room recovering from what turned out to be Roto Virus whuch totally dehydrates the body.
I'll never forget the look on his face that week, poor lad was totally drained.
He fortunately made a full recovery and now at 15.5 is playing american football, doing his mocks and looking forward to taking his bike test on his 16th.
Keep positive matey is all i can say.
Thoughts with you all
I can relate to those feelings.... and the rush to hospital. My daughter was born with a hole in the heart and rushed from Truro to Bristol. She is as lively now 10 years later as any 10 yo. Shortly after my son was born he had a bowel problem and was taken from our local hospital to Whitechapel in London by Ambulance after they told us he needed an emergency operation and pulled myself and my wife into a room and said they could not guarantee the outcome.
I'd never ever imagined myself being in a room and being given this kind of news by a doctor who looked at us with such a grave face. Its what you see on the TV right?
We did our best to follow the ambulance to London and the pair of us understandably were blubbering wrecks.
By the time we got there we had cried all our tears and went into the hospital with a positive attitude.
As they wheeled him in (he was 4 months old) they told us he had poo'd on the way which was the most unbelievable news.
he spent a week in a single room recovering from what turned out to be Roto Virus whuch totally dehydrates the body.
I'll never forget the look on his face that week, poor lad was totally drained.
He fortunately made a full recovery and now at 15.5 is playing american football, doing his mocks and looking forward to taking his bike test on his 16th.
Keep positive matey is all i can say.
Thoughts with you all
What still surprises me and this has taken me back is when I entered intensive care with my daughter, and visited the chemo wards here at Southampton and Portsmouth hospitals, is how jolly the places are. Places I would expect to be grim and really dark were vibrant and so positive. Shows to me even though with all the money issues the NHS are frigging awesome.
I am pleased you have a happy ending. It’s a warming story especially for me now, and this week for everyone. Thank you.
Legacywr said:
I'm glad it's gotten going so quickly, will he be an inpatient?
As I said on the last page, you're in the best place in the country
Also, my dad found it much harder than I did... the tears in his eyes when the consultant told us, was the hardest thing for me
I used your story in convincing him this was the best place so thank you for relating it . I also spoke to his boss in the pub where he works, and it turns out she was treated for cancer her too some years ago. As I said on the last page, you're in the best place in the country
Also, my dad found it much harder than I did... the tears in his eyes when the consultant told us, was the hardest thing for me
We had a choice of location you see..... suffice to say I am happy he is here. Current plan is fortnightly as a day patient.
mattyn1 said:
FocusRS3 said:
Never apologies for your emotions its totally normal and i think in a way helpful.
Shortly after my son was born he had a bowel problem and was taken from our local hospital to Whitechapel in London by Ambulance after they told us he needed an emergency operation and pulled myself and my wife into a room and said they could not guarantee the outcome.
I'd never ever imagined myself being in a room and being given this kind of news by a doctor who looked at us with such a grave face. Its what you see on the TV right?
We did our best to follow the ambulance to London and the pair of us understandably were blubbering wrecks.
By the time we got there we had cried all our tears and went into the hospital with a positive attitude.
As they wheeled him in (he was 4 months old) they told us he had poo'd on the way which was the most unbelievable news.
he spent a week in a single room recovering from what turned out to be Roto Virus whuch totally dehydrates the body.
I'll never forget the look on his face that week, poor lad was totally drained.
He fortunately made a full recovery and now at 15.5 is playing american football, doing his mocks and looking forward to taking his bike test on his 16th.
Keep positive matey is all i can say.
Thoughts with you all
I can relate to those feelings.... and the rush to hospital. My daughter was born with a hole in the heart and rushed from Truro to Bristol. She is as lively now 10 years later as any 10 yo. Shortly after my son was born he had a bowel problem and was taken from our local hospital to Whitechapel in London by Ambulance after they told us he needed an emergency operation and pulled myself and my wife into a room and said they could not guarantee the outcome.
I'd never ever imagined myself being in a room and being given this kind of news by a doctor who looked at us with such a grave face. Its what you see on the TV right?
We did our best to follow the ambulance to London and the pair of us understandably were blubbering wrecks.
By the time we got there we had cried all our tears and went into the hospital with a positive attitude.
As they wheeled him in (he was 4 months old) they told us he had poo'd on the way which was the most unbelievable news.
he spent a week in a single room recovering from what turned out to be Roto Virus whuch totally dehydrates the body.
I'll never forget the look on his face that week, poor lad was totally drained.
He fortunately made a full recovery and now at 15.5 is playing american football, doing his mocks and looking forward to taking his bike test on his 16th.
Keep positive matey is all i can say.
Thoughts with you all
What still surprises me and this has taken me back is when I entered intensive care with my daughter, and visited the chemo wards here at Southampton and Portsmouth hospitals, is how jolly the places are. Places I would expect to be grim and really dark were vibrant and so positive. Shows to me even though with all the money issues the NHS are frigging awesome.
I am pleased you have a happy ending. It’s a warming story especially for me now, and this week for everyone. Thank you.
Can echo the hospital comments as I’m writing from the children’s ward in Frimley Park where we’ll be spending Christmas with our two year old in traction (femur very very broken). Nurses, play staff, all the porters even the cleaners and lunch guy are all fantastic and couldn’t do anything more.
Chin up all.
mattyn1 said:
The nurse arrived ten minutes ago to fit the first cannular ready for the treatment.... and all of a sudden I broke down.... completely unexpected as my spirits so far have been positive and high.
Of course you did - christ, it's only natural mate. I'm feeling choked and I've never met the lad!As already mentioned, he's in absolutely the best hands.
Keep us posted - the PH gang are totally supportive, as you've already seen.
Wednesday was a really st day. The chemo session took ages. Jack has opted initially to go with a cannula and because of nerves and a reluctance to drink, was dehydrated which in turn led to his vein collapsing. However the staff were again awesome and persevered... got the line in and all went well until the last bag which caused some irritation to his hand. This then meant a change of cannula, and additional issues like before.
We were in the hospital for about seven hours, but it was the first go and I have the mindset it will take as long as it takes. Jack was pretty threaders by the end.
Also it has battered him. He is not as sick as I was expecting, but is rather down and worn out, feeling generally ste. A lot of sleeping and not eating as normal. After Asda shopping, we went out for lunch yesterday and will go for a short walk later to get some fresh air. Hopefully tomorrow and on through Christmas he will be ok. He is off to Cornwall Thursday to spend some time with his mum. Next session 3 Jan.
Thursday morning I woke early, about 6AM. Emotion poured over me like a huge tidal wave and I broke down again. I woke the Mrs who again proved to be a massive strength to me. Trouble is I feel I need to hold us all together, and breaking down like that makes me feel inadequate. Daft I know as I know I have to let it out, but I must lead us through this. Natural feelings I assume. As mentioned earlier, probably won’t be the last.
Warming to read about Tumbler and his clear scan. This type of positive news is what we need.
t day. The chemo session took ages. Jack has opted initially to go with a cannula and because of nerves and a reluctance to drink, was dehydrated which in turn led to his vein collapsing. However the staff were again awesome and persevered... got the line in and all went well until the last bag which caused some irritation to his hand. This then meant a change of cannula, and additional issues like before. We were in the hospital for about seven hours, but it was the first go and I have the mindset it will take as long as it takes. Jack was pretty threaders by the end.
Also it has battered him. He is not as sick as I was expecting, but is rather down and worn out, feeling generally s
te. A lot of sleeping and not eating as normal. After Asda shopping, we went out for lunch yesterday and will go for a short walk later to get some fresh air. Hopefully tomorrow and on through Christmas he will be ok. He is off to Cornwall Thursday to spend some time with his mum. Next session 3 Jan.Thursday morning I woke early, about 6AM. Emotion poured over me like a huge tidal wave and I broke down again. I woke the Mrs who again proved to be a massive strength to me. Trouble is I feel I need to hold us all together, and breaking down like that makes me feel inadequate. Daft I know as I know I have to let it out, but I must lead us through this. Natural feelings I assume. As mentioned earlier, probably won’t be the last.
Warming to read about Tumbler and his clear scan. This type of positive news is what we need.
mattyn1 said:
Wednesday was a really st day. The chemo session took ages. Jack has opted initially to go with a cannula and because of nerves and a reluctance to drink, was dehydrated which in turn led to his vein collapsing. However the staff were again awesome and persevered... got the line in and all went well until the last bag which caused some irritation to his hand. This then meant a change of cannula, and additional issues like before.
We were in the hospital for about seven hours, but it was the first go and I have the mindset it will take as long as it takes. Jack was pretty threaders by the end.
Also it has battered him. He is not as sick as I was expecting, but is rather down and worn out, feeling generally ste. A lot of sleeping and not eating as normal. After Asda shopping, we went out for lunch yesterday and will go for a short walk later to get some fresh air. Hopefully tomorrow and on through Christmas he will be ok. He is off to Cornwall Thursday to spend some time with his mum. Next session 3 Jan.
Thursday morning I woke early, about 6AM. Emotion poured over me like a huge tidal wave and I broke down again. I woke the Mrs who again proved to be a massive strength to me. Trouble is I feel I need to hold us all together, and breaking down like that makes me feel inadequate. Daft I know as I know I have to let it out, but I must lead us through this. Natural feelings I assume. As mentioned earlier, probably won’t be the last.
Warming to read about Tumbler and his clear scan. This type of positive news is what we need.
Matt as previously mentioned all your emotions are entirely normal . In fact I don't think you'd be normal if these things didn't happen . t day. The chemo session took ages. Jack has opted initially to go with a cannula and because of nerves and a reluctance to drink, was dehydrated which in turn led to his vein collapsing. However the staff were again awesome and persevered... got the line in and all went well until the last bag which caused some irritation to his hand. This then meant a change of cannula, and additional issues like before. We were in the hospital for about seven hours, but it was the first go and I have the mindset it will take as long as it takes. Jack was pretty threaders by the end.
Also it has battered him. He is not as sick as I was expecting, but is rather down and worn out, feeling generally s
te. A lot of sleeping and not eating as normal. After Asda shopping, we went out for lunch yesterday and will go for a short walk later to get some fresh air. Hopefully tomorrow and on through Christmas he will be ok. He is off to Cornwall Thursday to spend some time with his mum. Next session 3 Jan.Thursday morning I woke early, about 6AM. Emotion poured over me like a huge tidal wave and I broke down again. I woke the Mrs who again proved to be a massive strength to me. Trouble is I feel I need to hold us all together, and breaking down like that makes me feel inadequate. Daft I know as I know I have to let it out, but I must lead us through this. Natural feelings I assume. As mentioned earlier, probably won’t be the last.
Warming to read about Tumbler and his clear scan. This type of positive news is what we need.
Everyone around you will understand as will the PH massive .
Praying for Jack's recovery mate and l hope he can at least enjoy parts of Xmas .
Thinking of you and tumbler, stay strong buddy and DO come on here and share your emotions anytime
Eating is probably the worst side effect of chemo, it screws your taste buds, and if you eat anything remotely tangy,you can actually feel it burning as it enters your stomach. it won't take too long until it reverses though.
I'm trying to remember what I ate during that period, but, I can't? I remember chocolate was awful though.
I'm trying to remember what I ate during that period, but, I can't? I remember chocolate was awful though.
Will they not put the cannula in his arm rather than his hand?
I've had some surgery recently and try to insist on them using my arm rather than hand - after repeated insertions my hand got a bit sore.
Miserable to be going through this chum and of course you're going to feel hollowed out by it all. We would all feel as upset, every one of us - it's a lot for you and his mother to go through.
I've had some surgery recently and try to insist on them using my arm rather than hand - after repeated insertions my hand got a bit sore.
Miserable to be going through this chum and of course you're going to feel hollowed out by it all. We would all feel as upset, every one of us - it's a lot for you and his mother to go through.
I don't post on here very often but have just read this thread, I work at Southampton General and if you ever need a few minutes away from the ward to gather your thoughts don't hesistate to message me and I will happily shout you a Costa.
Getting the news you've received is hard at any time of the year but think it's made harder at christmas as it's meant to be filled with such joy and laughter. As everyone has said, thinking of your son and all your family and sending positive thoughts for his journey into 2018.
Getting the news you've received is hard at any time of the year but think it's made harder at christmas as it's meant to be filled with such joy and laughter. As everyone has said, thinking of your son and all your family and sending positive thoughts for his journey into 2018.
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