Tinnitus

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Discussion

Register1

Original Poster:

2,143 posts

95 months

Tuesday 30th January 2018
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Oh it's bad tonight.
Right ear is really quite unbearable.
Left ear about normal tinnitus level.

Wake up with it every morning
If I wake up in the middle of the night, then I have is so loud, I stay awake until time to get up for work.

Basically, it's 24/7

Don't know how much it takes to cope with it.

I have a hearing test at our local NHS in 2 weeks time.

can't carry on like its, it's just getting out of control.

Narcisus

8,081 posts

281 months

Tuesday 30th January 2018
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Not much fun is it :-( I have it in both ears. 3 Separate tones. Every so often it will increase in one ear about 150% then gradually fade away. It terrifies me to think one day it might not just fade away ....

Had a hearing test last year and both ears are perfectly fine even slight above average.

mikal83

5,340 posts

253 months

Tuesday 30th January 2018
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me too, started 4/5 yrs ago but prob earlier as I didnt "notice" it much. 2/3rds left side, 1/3rd right constant high pitch which occasionally, (every other day) will change pitch.....which is weird. Quite loud. Had a hearing test and confirmed I have a slight loss in hearing but imho, its got feck all to do with it.

Jasmine1

163 posts

84 months

Tuesday 30th January 2018
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Sorry to hear you are suffering.

I am guessing there is no cure? Can I ask how old you are?

I think I have it very slightly in one ear, I only notice it when getting sleep in bed and everything else is very quiet.

marksx

5,052 posts

191 months

Tuesday 30th January 2018
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Narcisus said:
Not much fun is it :-( I have it in both ears. 3 Separate tones. Every so often it will increase in one ear about 150% then gradually fade away. It terrifies me to think one day it might not just fade away ....

Had a hearing test last year and both ears are perfectly fine even slight above average.
I had a similar result a year or two ago. I thought I had poor hearing, and regularly have loud ringing, particularly in my left ear. The results showed that my hearing is very good!

Right now the ringing is very loud, though I have had a persistent mild infection for weeks.

Edit - to add, I get a wierd sensation every now and again, not sure if it's related to tinitus, where the volume seems to suddenly drop off in one ear, then slowly fades back in.

Edited by marksx on Tuesday 30th January 21:58

Johnnytheboy

24,498 posts

187 months

Tuesday 30th January 2018
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I have it badly.

There's nothing the medical profession can do, though the NHS offered me a counselling leaflet. laugh

Get used to it.

Captain Smerc

3,023 posts

117 months

Tuesday 30th January 2018
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It's grim indeed , 3 years for me , 24/7 non stop , just so fking loud . It's like the Terminator , can't be bargained with , can't be reasoned with irked

Opel-GT

584 posts

179 months

Tuesday 30th January 2018
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Johnnytheboy said:
I have it badly.

There's nothing the medical profession can do, though the NHS offered me a counselling leaflet. laugh

Get used to it.
^^^ this. I have suffered since the 80s

Armitage.Shanks

2,281 posts

86 months

Tuesday 30th January 2018
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I'm another in this camp. Mine appeared to come on after attending a stage concert where the female singers voice seemed to pierce the air.

I've always been sensible with hearing protection and not regularly subjected to loud noise/bangs.

It's the same in both ears and the 'white noise' seems to get worse in the evening probably when background distraction noises are few.

I'm wondering if there is anything in what we eat/drink that can exacerbate it and thereby cutting it out reduce it?

Overall though my hearing standard is normal for my age (50s) and just slightly down in the left ear. It's bloody annoying!

mr.man

511 posts

217 months

Wednesday 31st January 2018
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Accept the fact you can hear a noise called called tinnitus.
It is not going to hurt you.
You are safe
Stop listening to it !

Bob (friend of tinnitus for 35 years)

Brother D

3,727 posts

177 months

Wednesday 31st January 2018
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I guess I'm one of the 'lucky' ones and have always had it since I can remember - A friend suffered from it at uni after standing next to the speakers at too many raves and ended up almost institutionalized (although might have been the copious amounts of drugs that also had something to do with it).

I do find it hard to sleep in silent houses however as this is where it's most apparent. I usually sleep with a fan on at night to add a constant back ground noise (and to drown out traffic noise tbf).

Seems quite a few people get (temporary) relief from this method and can't hurt to try it:

https://www.reddit.com/r/videos/comments/3oauru/if...


Driller

8,310 posts

279 months

Wednesday 31st January 2018
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Register1 I have the same problem (standing in front of a drum kit at full chat in rehearsal rooms for years with no ear protection).

I put this on every night on the white noise sound and it works a treat:

https://www.youtube.com/watch?v=eV9jTcKfhFk

langtounlad

781 posts

172 months

Wednesday 31st January 2018
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Also have tinnitus in my left ear, fortunately at a constant low pitch so can live with it.
Occasionally it changes pitch and is quite loud and when that happens it's quite scary as that scenario would be harder to live with.
No suggestions unfortunately, just confirming that you are far from being alone.
I've had a hearing test and I'm missing certain higher frequencies in my left ear which I attribute to the problems that I have distinguishing individual voices in a group conversation or in a pub where there is a lot of background talking going on. One of our friends (female) talks at a particular pitch that means in a group conversation I just can't hear her at all. It does get very boring asking people to repeat themselves and sadly I find myself withdrawn in these group environments. I wish there was a solution and do wonder if a hearing aid would help but as I've 'lost' the frequencies I suspect that won't help.

Edited by langtounlad on Wednesday 31st January 10:49

WinstonWolf

72,857 posts

240 months

Wednesday 31st January 2018
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langtounlad said:
Alos have tinnitus in my left ear, fortunately at a constant low pitch so can live with it.
Occasionally it changes pitch and is quite loud and when that happens it's quite scary as that scenario would be harder to live with.
No suggestions unfortunately, just confirming that you are far from being alone.
I've had a hearing test and I'm missing certain higher frequencies in my left ear which I attribute to the problems that I have distinguishing individual voices in a group conversation or in a pub where there is a lot of background talking going on. One of our friends (female) talks at a particular pitch that means in a group conversation I just can't hear her at all. It does get very boring asking people to repeat themselves and sadly I find myself withdrawn in these group environments. I wish there was a solution and do wonder if a hearing aid would help but as I've 'lost' the frequencies I suspect that won't help.
Get yourself referred to an NHS audiologist via your GP. They will test your conductive and sensorineural (cochlea) hearing separately to see what frequencies you have available and how to boost them to help you get back into life. Don't bother with the high street chains, they don't have quiet rooms necessary for a good hearing test. NHS hearing aids are basic but come in the same package sizes as the paid ones.

I wear one, it's bloody brilliant.

Short story: tumour in one ear, I've got no bones and the prosthetic replacements failed. There's nothing to mechanically transfer sound from my eardrum to my cochlea but with my HA in I can fully hear over 90% of conversations even in noisy pubs with music playing.

Modern hearing aids are discrete, if your loss is small you can get one that fits completely in the ear canal so you can't see it (These are generally not available on the NHS unfortunately). They can take a bit of setting up, mine took six visits but I'm atypical due to the amount of hearing loss I have. Persist, you have to learn to use them, it's like getting a new pair of specs every time they alter it. It takes a few days for the brain to adjust to all the new sounds.

I have to wear the behind the ear type to give me the amplification I need but I don't care because of all the benefits I get from it.

Mine has been life-changing. It also cuts down on tinnitus dramatically, as soon as I switch mine off at night it comes back but at least I can have a rest from it during the day.

NHS audiology depts can also advise on devices to assist with the symptoms of tinnitus but not cure it. I've got a catalogue somewhere with loads of equipment in it.

TL;DR you can get devices to help with the symptoms of tinnitus but you can't generally cure it.

langtounlad

781 posts

172 months

Wednesday 31st January 2018
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WW, thank-you for the advice. I've followed your comments on the subject in the other hearing thread.
You may have just inspired me to revisit the topic with my GP and get a follow-up referral. My comments re. the extent of my hearing loss were from tests done a couple of years ago at the local NHS Hospital. The tests included an MRI scan to ensure that there was no cancer so I was impressed with the overall quality of service and care. At that time they didn't feel that hearing aids would help.

WinstonWolf

72,857 posts

240 months

Wednesday 31st January 2018
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You only need hearing up to about 4khz for speach, as long as you have something up to that frequency a HA can help. Chances are you can hear vowels but not consonants which means you know people are talking but you can’t make out what they’re actually saying.

I’ve got 90db of loss (a jet taking off, I can’t hear a smoke alarm if I’m stood under it and block my good ear) yet with my HA in I’m pretty much there in social situations.

Good luck! thumbup

bobmedley

85 posts

76 months

Wednesday 31st January 2018
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Had two tone high pitched whistling tinnitus for decades now, but have pretty much learned to cope with it.

Due to sinus problems I was prescribed Prednisolone steroid tablets & they actually damped down the tinnitus volume by a good 30% to 40%, and the effect seems to be permanent.

Might be worth investigation.

Register1

Original Poster:

2,143 posts

95 months

Wednesday 31st January 2018
quotequote all
Captain Smerc said:
It's grim indeed , 3 years for me , 24/7 non stop , just so fking loud . It's like the Terminator , can't be bargained with , can't be reasoned with irked
It really is bad, how come there is no treatment for it?

It must affect countless millions in UK alone.

R1

Captain Smerc

3,023 posts

117 months

Wednesday 31st January 2018
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Dunno , but someone could get rich if they crack it scratchchin

MitchT

15,883 posts

210 months

Wednesday 31st January 2018
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I've had it in my left ear for about three years. I just noticed it one day - no specific event happened to trigger it. After a few months I went to the doc's and they referred me to an audiologist. Had loads of tests - hearing exceptionally good in both ears and no other issues. I mentioned to the Prof. who examined me that it was aggravated by my OH's hairdryer and also by being in environments with loads of EMF, but he shrugged that off and trotted out some rhetoric about there being no research to suggest that EMF was a factor. Clearly no interest in carrying out some research himself ... the usual NHS line about "if we don't already know about it then it doesn't exist".