Turns out it wasn't the diet
Discussion
Seems like an opportune moment to update this as I have an hour to kill whilst having an iron infusion!
Drugs are working well, with the BCR-ABL level now being 0.0613 which, as it is below 0.1%, is defined as "major molecular response" which is good.
However the side effects are racking up. There's a suspicion that there are some gastric issues caused by the meds which are making me anaemic, hence the infusion as iron tablets didn't agree with me. My skin is also pretty crap. Likely to change to a new drug in January to see how that plays out - it will bring with it new side effects so may a bit of a frying pan / fire situation!
Many people in the Facebook group I'm in have never worked again since diagnosis so I feel the side effects are trivial in the grand scheme of things. In fact, I started a new job in November which brought with it a significant reduction in stress which was immediately reflected in reduced side effects.
Onwards and upwards!
Drugs are working well, with the BCR-ABL level now being 0.0613 which, as it is below 0.1%, is defined as "major molecular response" which is good.
However the side effects are racking up. There's a suspicion that there are some gastric issues caused by the meds which are making me anaemic, hence the infusion as iron tablets didn't agree with me. My skin is also pretty crap. Likely to change to a new drug in January to see how that plays out - it will bring with it new side effects so may a bit of a frying pan / fire situation!
Many people in the Facebook group I'm in have never worked again since diagnosis so I feel the side effects are trivial in the grand scheme of things. In fact, I started a new job in November which brought with it a significant reduction in stress which was immediately reflected in reduced side effects.
Onwards and upwards!
Hoofy said:
Glad to hear things are on the up for you.
Interesting to note the effect stress has on the side effects. Have you tried mindfulness? There's a link in the anxiety thread to a 45 minute workshop I ran. Can find it for you if you're interested.
Yes that would be great, thanks Interesting to note the effect stress has on the side effects. Have you tried mindfulness? There's a link in the anxiety thread to a 45 minute workshop I ran. Can find it for you if you're interested.
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