T1 diabetics thread
Discussion
Chilly for June said:
Had my worst hypo experience ever last night. Luckily the wife spotted it due to the amount of sweat coming off me and apparently I was convulsing.
I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
sI have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
t, not a nice experience for you or your wife. How was it treated eventually? I had a T1 mate who I lived with. I knew when she was hypo, when she started effing and blinding at me threatening violence whilst I wanted to do a BS. The only way we could calm her down was phoning an ambulance.....Was there any assignable cause?
Conversely, I feel crap today (cold, flu like symptoms - very snotty, sneezes, coughing etc) but my blood sugar's have been amazingly good (99% in target). I think my lad brought it back from school, not really seen anyone else.
Best of luck...
mike9009 said:
Chilly for June said:
Had my worst hypo experience ever last night. Luckily the wife spotted it due to the amount of sweat coming off me and apparently I was convulsing.
I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
sI have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
t, not a nice experience for you or your wife. How was it treated eventually? I had a T1 mate who I lived with. I knew when she was hypo, when she started effing and blinding at me threatening violence whilst I wanted to do a BS. The only way we could calm her down was phoning an ambulance.....Was there any assignable cause?
Conversely, I feel crap today (cold, flu like symptoms - very snotty, sneezes, coughing etc) but my blood sugar's have been amazingly good (99% in target). I think my lad brought it back from school, not really seen anyone else.
Best of luck...
She said I came round pretty quickly after that. Then it was a good few haribos as no lucozade!
I think I just took too much insulin as I was frustrated at my blood being high at the previous check. Then it's all kicked in when I went to bed!
Hope your cold goes away quickly. At least it isn't messing with your blood sugar so far as that is annoying to say the least.
Chilly for June said:
Had my worst hypo experience ever last night. Luckily the wife spotted it due to the amount of sweat coming off me and apparently I was convulsing.
I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
Scary, glad you came out ok. I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
Do you have a glucagon kit in the fridge/does your wife know how to use it?
Obviously it's a dire situation but if someone isn't waking up you don't want to be putting anything in their mouth if you can avoid it.
Brainpox said:
Chilly for June said:
Had my worst hypo experience ever last night. Luckily the wife spotted it due to the amount of sweat coming off me and apparently I was convulsing.
I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
Scary, glad you came out ok. I have no memory of anything except not wanting to wake up when she was shouting at me and then me physically unable to wake up (if that makes sense)
All good this morning but scary at the times.
Do you have a glucagon kit in the fridge/does your wife know how to use it?
Obviously it's a dire situation but if someone isn't waking up you don't want to be putting anything in their mouth if you can avoid it.
I've been using the omnipod for a few days now. Another huge step forward after my CGM revelation.
The ease of administering a dose as opposed to up to 8 injections a day is a fantastic, tiny amounts too. Sometimes the machine recommends bolus adjustments of just 0.15u! It informs you of insulin on board (bolus still in the system) and takes account in the calc. You can ask it to split and delay a bolus for tricky meals (pizza)
The really big thing is the basal rate, it used to take me days to assess changes. Now it's immediate, different basal at different times of the day, reduce basal for exercise or low BS, increase basal for buffets or lazy days, sick days.
A number of basal programmes can be set up for different activities too.
ie work, weekends, holidays, traveling or whatever. Plus temporary short basal programmes so a few hours at the gym? No probs click the preset.
The ease of administering a dose as opposed to up to 8 injections a day is a fantastic, tiny amounts too. Sometimes the machine recommends bolus adjustments of just 0.15u! It informs you of insulin on board (bolus still in the system) and takes account in the calc. You can ask it to split and delay a bolus for tricky meals (pizza)
The really big thing is the basal rate, it used to take me days to assess changes. Now it's immediate, different basal at different times of the day, reduce basal for exercise or low BS, increase basal for buffets or lazy days, sick days.
A number of basal programmes can be set up for different activities too.
ie work, weekends, holidays, traveling or whatever. Plus temporary short basal programmes so a few hours at the gym? No probs click the preset.
PositronicRay said:
I've been using the omnipod for a few days now. Another huge step forward after my CGM revelation.
The ease of administering a dose as opposed to up to 8 injections a day is a fantastic, tiny amounts too. Sometimes the machine recommends bolus adjustments of just 0.15u! It informs you of insulin on board (bolus still in the system) and takes account in the calc. You can ask it to split and delay a bolus for tricky meals (pizza)
The really big thing is the basal rate, it used to take me days to assess changes. Now it's immediate, different basal at different times of the day, reduce basal for exercise or low BS, increase basal for buffets or lazy days, sick days.
A number of basal programmes can be set up for different activities too.
ie work, weekends, holidays, traveling or whatever. Plus temporary short basal programmes so a few hours at the gym? No probs click the preset.
Sounds really good, I have not even looked into them.The ease of administering a dose as opposed to up to 8 injections a day is a fantastic, tiny amounts too. Sometimes the machine recommends bolus adjustments of just 0.15u! It informs you of insulin on board (bolus still in the system) and takes account in the calc. You can ask it to split and delay a bolus for tricky meals (pizza)
The really big thing is the basal rate, it used to take me days to assess changes. Now it's immediate, different basal at different times of the day, reduce basal for exercise or low BS, increase basal for buffets or lazy days, sick days.
A number of basal programmes can be set up for different activities too.
ie work, weekends, holidays, traveling or whatever. Plus temporary short basal programmes so a few hours at the gym? No probs click the preset.
Mike
It's another great game changer.
There are different types and manufacturers of insulin pumps. I opted for the omnipod, tubeless, simple and neat. About the size of a match box, mines on my abdomen for now but other sites can be used. The pod gets replaced every 3 days (you fill it with your regular fast acting insulin) controlled with a smart phone size PDM via bluetooth.
NHS funded. It doesn't talk to the libre, you enter BS readings, it'll calculate a recommended dose and administer. Surprisingly accurate with corrections too.
Initial set up takes a while, 2 hour video conference. I'm still in the tweaking phase. No injections since Wednesday!
I'm using humalog but can see this working really well with a very fast insulin like Fiasp. The next stage will be when pumps and cgm are seamlessly integrated.
I understand there is a pump/cgm system that automatically adjusts the basal rate. And I here stories of loopers, software hacks to get, closed loop, functionality from the omnipod/libre/miao miao.
ETA, to give you an idea of functionality.
I checked my BS an hour after breakfast, slightly high entered figure into PDM. It advised me of 'insulin on board' and recommended another 0.25u, which it then delivered. (you have to click OK to authorise any bolus)
We do some long continental drives when allowed, often my sugars run high, I hate risking lows on these trips. However my wife can now check my sugar and administer a correction (bolus or fruit pastille) whilst I'm at the wheel.
How neat is that!
There are different types and manufacturers of insulin pumps. I opted for the omnipod, tubeless, simple and neat. About the size of a match box, mines on my abdomen for now but other sites can be used. The pod gets replaced every 3 days (you fill it with your regular fast acting insulin) controlled with a smart phone size PDM via bluetooth.
NHS funded. It doesn't talk to the libre, you enter BS readings, it'll calculate a recommended dose and administer. Surprisingly accurate with corrections too.
Initial set up takes a while, 2 hour video conference. I'm still in the tweaking phase. No injections since Wednesday!
I'm using humalog but can see this working really well with a very fast insulin like Fiasp. The next stage will be when pumps and cgm are seamlessly integrated.
I understand there is a pump/cgm system that automatically adjusts the basal rate. And I here stories of loopers, software hacks to get, closed loop, functionality from the omnipod/libre/miao miao.
ETA, to give you an idea of functionality.
I checked my BS an hour after breakfast, slightly high entered figure into PDM. It advised me of 'insulin on board' and recommended another 0.25u, which it then delivered. (you have to click OK to authorise any bolus)
We do some long continental drives when allowed, often my sugars run high, I hate risking lows on these trips. However my wife can now check my sugar and administer a correction (bolus or fruit pastille) whilst I'm at the wheel.
How neat is that!
Edited by PositronicRay on Monday 2nd November 09:10
Sounds great, regarding the NHS funding, was it a battle to get the pump? My son has been diagnosed a couple of months ago and the DN mentioned that even getting a Freestyle Libra was difficult never mind a pump. I was thinking of self funding a dexcon or Libra but obviously better on the NHS.
Casa1862 said:
Sounds great, regarding the NHS funding, was it a battle to get the pump? My son has been diagnosed a couple of months ago and the DN mentioned that even getting a Freestyle Libra was difficult never mind a pump. I was thinking of self funding a dexcon or Libra but obviously better on the NHS.
My specialist suggested it, they'll follow a Nice criteria I imagine. PositronicRay said:
My specialist suggested it, they'll follow a Nice criteria I imagine.
I am being lazy but what is the NICE criteria for the pump? Why do you think it was recommended for you?Is it comfortable to wear? Really surprised the CGM and omnipod can't talk to each other, surely this is a 'simple' software integration? Do you tell it what you are about to eat too?? What about exercise? Maybe they could link it to a Fitbit too??
Thanks again....
mike9009 said:
PositronicRay said:
My specialist suggested it, they'll follow a Nice criteria I imagine.
I am being lazy but what is the NICE criteria for the pump? Why do you think it was recommended for you?Is it comfortable to wear? Really surprised the CGM and omnipod can't talk to each other, surely this is a 'simple' software integration? Do you tell it what you are about to eat too?? What about exercise? Maybe they could link it to a Fitbit too??
Thanks again....
Input BS and carbs, it suggests a dose from parameters previously entered. ie carb to insulin ratio, correction over x etc. If I want a correction at odd times its easier than fiddling around with pens, plus the PDM logs exactly what's been done, when and how much insulin is still active.
You can temporarily suspend, increase or decrease insulin, so exercise is easy. Like the libre you don't notice it too much.
I'm not sure of the nice criteria, apparently I didn't hit it but some discretion was exercised.
PositronicRay said:
I think the talking to will come, guessing they'll want it to be pretty robust 1st
Input BS and carbs, it suggests a dose from parameters previously entered. ie carb to insulin ratio, correction over x etc. If I want a correction at odd times its easier than fiddling around with pens, plus the PDM logs exactly what's been done, when and how much insulin is still active.
You can temporarily suspend, increase or decrease insulin, so exercise is easy. Like the libre you don't notice it too much.
I'm not sure of the nice criteria, apparently I didn't hit it but some discretion was exercised.
How are you getting along with it now? Hope it is still working for you.Input BS and carbs, it suggests a dose from parameters previously entered. ie carb to insulin ratio, correction over x etc. If I want a correction at odd times its easier than fiddling around with pens, plus the PDM logs exactly what's been done, when and how much insulin is still active.
You can temporarily suspend, increase or decrease insulin, so exercise is easy. Like the libre you don't notice it too much.
I'm not sure of the nice criteria, apparently I didn't hit it but some discretion was exercised.
I have an appointment in the next month. I must do some more research into this before then to see if it would work for me.
mike9009 said:
PositronicRay said:
I think the talking to will come, guessing they'll want it to be pretty robust 1st
Input BS and carbs, it suggests a dose from parameters previously entered. ie carb to insulin ratio, correction over x etc. If I want a correction at odd times its easier than fiddling around with pens, plus the PDM logs exactly what's been done, when and how much insulin is still active.
You can temporarily suspend, increase or decrease insulin, so exercise is easy. Like the libre you don't notice it too much.
I'm not sure of the nice criteria, apparently I didn't hit it but some discretion was exercised.
How are you getting along with it now? Hope it is still working for you.Input BS and carbs, it suggests a dose from parameters previously entered. ie carb to insulin ratio, correction over x etc. If I want a correction at odd times its easier than fiddling around with pens, plus the PDM logs exactly what's been done, when and how much insulin is still active.
You can temporarily suspend, increase or decrease insulin, so exercise is easy. Like the libre you don't notice it too much.
I'm not sure of the nice criteria, apparently I didn't hit it but some discretion was exercised.
I have an appointment in the next month. I must do some more research into this before then to see if it would work for me.
It makes life so easy. e. g. Yesterday I was a little low before lunch, eat lunch, no bolus and take dog for a walk. 20mins in BS starting to come up, a click on the PDM and 1.6u boius administered. I didn't even break step.
Because basal is adjustable it gives you another adjustment choice. Eg a little high at bedtime? Increase basal x 30% for 4hrs.
Exercise? Decrease basal by 25% for 3hrs.
Pizza? Split bolus over 3 hours.
Still learning and tweaking but honestly its the dogs danglies.
A little update after five months with Libre. My HBA1C is 51 which I am absolutely chuffed with. For the past 40years I have been hovering around 68, so a massive improvement.
There is still some improvements to make. I think I need to make some dietary changes and maybe inject another ten minutes before meals. I'll see what the specialist says at my review in a few weeks.....
There is still some improvements to make. I think I need to make some dietary changes and maybe inject another ten minutes before meals. I'll see what the specialist says at my review in a few weeks.....
mike9009 said:
A little update after five months with Libre. My HBA1C is 51 which I am absolutely chuffed with. For the past 40years I have been hovering around 68, so a massive improvement.
There is still some improvements to make. I think I need to make some dietary changes and maybe inject another ten minutes before meals. I'll see what the specialist says at my review in a few weeks.....
Good result. There is still some improvements to make. I think I need to make some dietary changes and maybe inject another ten minutes before meals. I'll see what the specialist says at my review in a few weeks.....
Mine was similar fron a worst of 67 down to 53 with Libre.
Since starting the omnipod insulin pump, 4weeks ago. I think my results are slightly worse, but not missing MDI and still getting used to it.
Is anyone else experiencing delays in getting insulin? Specifically Humalog seems to be taking a couple of weeks to come through the last couple of times I have needed it....
I am using Tesco pharmacy at the moment after my doctor's advised not to use Lloyds during COVID...( It is small and pokey!)
Thanks
I am using Tesco pharmacy at the moment after my doctor's advised not to use Lloyds during COVID...( It is small and pokey!)
Thanks
mike9009 said:
Is anyone else experiencing delays in getting insulin? Specifically Humalog seems to be taking a couple of weeks to come through the last couple of times I have needed it....
I am using Tesco pharmacy at the moment after my doctor's advised not to use Lloyds during COVID...( It is small and pokey!)
Thanks
Not noticed, but it's months between insulin scripts for me. I am using Tesco pharmacy at the moment after my doctor's advised not to use Lloyds during COVID...( It is small and pokey!)
Thanks
I've been put on a Libre 2, on a starter pack at the moment but should be put on repeat early next week.
What a game changer. Being able to scan directly to your phone is so convenient. Lots of options in app too.
It's going to be much easier managing when we're allowed out to play again. The finger pricks never bothered me but carrying the machine plus spare batteries around did...
What a game changer. Being able to scan directly to your phone is so convenient. Lots of options in app too.
It's going to be much easier managing when we're allowed out to play again. The finger pricks never bothered me but carrying the machine plus spare batteries around did...
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