Prostate cancer

Author
Discussion

crankedup5

9,692 posts

36 months

Monday 24th January 2022
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Derek Smith said:
crankedup5 said:
I enjoy reading your blog Derek, best wishes.
Thanks. I'm feeling pretty positive about it. My wife is more worried than I am.

I should tell her where I've hidden the gold.
Yes, I mentioned to my wife that I have two sacks of gold now, well near enough for a weak joke.

lost in espace

6,167 posts

208 months

Monday 24th January 2022
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Father in law just diagnosed with stage 4, he is going to Adenbrooks good to hear such positive feedback.

GT3Manthey

4,530 posts

50 months

Tuesday 25th January 2022
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lost in espace said:
Father in law just diagnosed with stage 4, he is going to Adenbrooks good to hear such positive feedback.
May I ask how old your father in law is ?

I’ve just been through blood checks after losing weight rapidly and thankfully all clear including prostate & now gaining weight again so can’t explain what happened .

It’s on my mind though….

lost in espace

6,167 posts

208 months

Tuesday 25th January 2022
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GT3Manthey said:
May I ask how old your father in law is ?

I’ve just been through blood checks after losing weight rapidly and thankfully all clear including prostate & now gaining weight again so can’t explain what happened .

It’s on my mind though….
Hi, he is 77. Had problems over the last year with big sores and scabs on his skin, couldn't get an appointment to actually see a consultant. Then bam, stage 4 diagnosis. I don't really know the ins and outs, he has been told to carry on as normal, golf, holidays (and they already have 4 booked this year thanks to them rolling up from the pandemic). Seems fine when I saw him at the weekend, best he has been in ages! On hormones now and some injection.

GT3Manthey

4,530 posts

50 months

Tuesday 25th January 2022
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lost in espace said:
Hi, he is 77. Had problems over the last year with big sores and scabs on his skin, couldn't get an appointment to actually see a consultant. Then bam, stage 4 diagnosis. I don't really know the ins and outs, he has been told to carry on as normal, golf, holidays (and they already have 4 booked this year thanks to them rolling up from the pandemic). Seems fine when I saw him at the weekend, best he has been in ages! On hormones now and some injection.
Ok Tks for the reply .

My father passed away at 68 with a big heart attack but they also found he had an enlarged prostate . Not sure if he was ever aware though.

Best of luck to your father in law .

don'tbesilly

13,939 posts

164 months

Tuesday 25th January 2022
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N7GTX said:
My hormone injections gave me breast swellings too. A novelty at first but after a month or two, walking down stairs became uncomfortable. Eventually they became painful when working on cars and pressing against them.
Consultant suggested the radiotherapy to the buds treatment to kill them off. It made no difference. Once the injections were over the swelling went down and all returned to normal after 3 months.
Quite a common complaint (breast swelling/discomfort) apparently amongst those going through hormone treatment. My oncologist prescribed Tamoxifen to alleviate the problem, which did actually help, I swerved the radiotherapy offered as I figured I'd had enough of that to last a lifetime!

I stopped my daily dose of Bicalutamide once I'd had my op three weeks ago, and rather bizarrely my manboobs are now as swollen and extremely sensitive as they ever were in the past, I'm hoping it will improve over the next few weeks or I'll raise it at my follow up.

CharlesdeGaulle

26,321 posts

181 months

Tuesday 25th January 2022
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Not so much cancer as enlarged, but does anyone have experience of long-term use of Tamsulosin? Any problems?

I've been on it for coming up to a year and am uncertain about whether I'm getting any real benefit. At worst I was only ever up once during (some, not all) nights and that doesn't really seem to have changed that much. I wonder if there is any disadvantage from being on it earlier than you 'have' to be? I'm not getting any of the side-effects.

rovermorris999

5,203 posts

190 months

Tuesday 25th January 2022
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My father-in-law, 83, has been taking Tamsulosin for around 10 years now with no ill effects. I've been on it for two years, again no ill effects.

Derek Smith

45,742 posts

249 months

Friday 28th January 2022
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I told my kids I was growing breasts. My elder daughter, who is in her late 40s, slim, and can still get into her wedding dress (which she reminds her husband of on occasion, mainly to keep him in check) asked me, when I go for my next injection, to save some for her.

Biggles111

458 posts

264 months

Wednesday 2nd February 2022
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CharlesdeGaulle said:
Not so much cancer as enlarged, but does anyone have experience of long-term use of Tamsulosin? Any problems?

I've been on it for coming up to a year and am uncertain about whether I'm getting any real benefit. At worst I was only ever up once during (some, not all) nights and that doesn't really seem to have changed that much. I wonder if there is any disadvantage from being on it earlier than you 'have' to be? I'm not getting any of the side-effects.
I've been on tamsulosin for about 6 years (from my mid-40s) after my BPH was noticed during treatment for another cancer. The one time I ran out of pills for a couple of days I did notice difficulty peeing. I've had no negative effects, and on the plus side I do get a regular prompt from the practice to have PSA tests.

CharlesdeGaulle

26,321 posts

181 months

Wednesday 2nd February 2022
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Biggles111 said:
I've been on tamsulosin for about 6 years (from my mid-40s) after my BPH was noticed during treatment for another cancer. The one time I ran out of pills for a couple of days I did notice difficulty peeing. I've had no negative effects, and on the plus side I do get a regular prompt from the practice to have PSA tests.
Thanks, that's reassuring.

lost in espace

6,167 posts

208 months

Tuesday 8th February 2022
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lost in espace said:
Hi, he is 77. Had problems over the last year with big sores and scabs on his skin, couldn't get an appointment to actually see a consultant. Then bam, stage 4 diagnosis. I don't really know the ins and outs, he has been told to carry on as normal, golf, holidays (and they already have 4 booked this year thanks to them rolling up from the pandemic). Seems fine when I saw him at the weekend, best he has been in ages! On hormones now and some injection.
Just to update, FIL has been to Addenbrookes for a bone scan and it came back clear, very good news.

However he has been diagnosed with Stage 4, which presumably means some spread. My wife gets the info from her mum about this, not sure if my wife is being told the full story but he seemed very well when I saw him at the weekend.

N7GTX

7,878 posts

144 months

Tuesday 8th February 2022
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Stage 4 means it has spread to other tissue outside the prostate or to another organ, often the lymph nodes. The team should tell you exactly where it is and what they are doing.

A clear bone scan is really good news.

crankedup5

9,692 posts

36 months

Monday 14th February 2022
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My radiotherapy treatment starts tomorrow 15/2/22, had the gold seed implants couple of weeks ago.
The hormone injections, i’ve had three thus far, will continue every three months for the next two years six months, unless doctor intervenes.
Feeling lack of energy now quite badly, no real enthusiasm either, apparently side effects for me from the injections. Wife tells me I still can do the hoovering around though laugh

don'tbesilly

13,939 posts

164 months

Monday 14th February 2022
quotequote all
crankedup5 said:
My radiotherapy treatment starts tomorrow 15/2/22, had the gold seed implants couple of weeks ago.
The hormone injections, i’ve had three thus far, will continue every three months for the next two years six months, unless doctor intervenes.
Feeling lack of energy now quite badly, no real enthusiasm either, apparently side effects for me from the injections.

Wife tells me I still can do the hoovering around though laugh
You'll find the radiotherapy far more draining than the injections!
That's what you need to be telling the wife on Wednesday wink

Best of luck Fella, I had 37 sessions, 20 is a walk in the park. thumbup

Unknown_User

7,150 posts

93 months

Monday 14th February 2022
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crankedup5 said:
My radiotherapy treatment starts tomorrow 15/2/22, had the gold seed implants couple of weeks ago.
The hormone injections, i’ve had three thus far, will continue every three months for the next two years six months, unless doctor intervenes.
Feeling lack of energy now quite badly, no real enthusiasm either, apparently side effects for me from the injections. Wife tells me I still can do the hoovering around though laugh
Judging by your continued tenacity in certain N,P& E threads, your energy & enthusiasm levels aren't doing that bad son! And regarding the vacuuming, I think the wonderful Mrs Crankedup5 has the measure of you! wink

Thanks for the update Crankie and good luck with the treatment.

crankedup5

9,692 posts

36 months

Monday 14th February 2022
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Thanks dbs, as you are a man of considerable experience getting through these treatment programs I have taken onboard your good advise. Wednesday morning then, tell wifey im cream crackered!!

UU, again thanks for your good wishes :thumbsup: appreciated.
The day I stop being the ‘fly in the brexit debate’ is the day I report to my Doc’ ‘somethings gone badly wrong’ laugh:

Derek Smith

45,742 posts

249 months

Tuesday 15th February 2022
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I'm getting very grumpy and short-tempered. I know it as well, but the enthusiasm for trying to stop being so is wearing thin. I have difficulty concentrating.

I have little problem coping with 'normal' side effects, but this is becoming wearing. I go out for exercise, and come back even worse. I sit around, and I fidget.

It's irritating. No reason to post other than I wanted to.

kevinon

816 posts

61 months

Tuesday 15th February 2022
quotequote all
Derek Smith said:
I'm getting very grumpy and short-tempered. I know it as well, but the enthusiasm for trying to stop being so is wearing thin. I have difficulty concentrating.

I have little problem coping with 'normal' side effects, but this is becoming wearing. I go out for exercise, and come back even worse. I sit around, and I fidget.

It's irritating. No reason to post other than I wanted to.
Your willingness to post is very welcome. Thank you.
Such thoughts make this thread valuable to me. It's good to know that if I were affected I would have a thread for honest discussion.

Wishing us all well, whatever our situation!

N7GTX

7,878 posts

144 months

Wednesday 16th February 2022
quotequote all
kevinon said:
Derek Smith said:
I'm getting very grumpy and short-tempered. I know it as well, but the enthusiasm for trying to stop being so is wearing thin. I have difficulty concentrating.

I have little problem coping with 'normal' side effects, but this is becoming wearing. I go out for exercise, and come back even worse. I sit around, and I fidget.

It's irritating. No reason to post other than I wanted to.
Your willingness to post is very welcome. Thank you.
Such thoughts make this thread valuable to me. It's good to know that if I were affected I would have a thread for honest discussion.

Wishing us all well, whatever our situation!
Yes its all good info. The treatment and its side effects really do affect everyone differently. Keep posting Mr Grumpy: we wont be offended you know.

wink