SIRVA - i have it....

Author
Discussion

TB993tt

2,032 posts

241 months

Tuesday 29th June 2021
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Bill said:
Well, that's now three professionals saying it could be a coincidence. smile

Given what you've described about your scans etc and both shoulders being affected, coincidence has to be a possibility doesn't it? Not least because SIRVA is thought to be caused by direct trauma to a bursa, so what is the mechanism for other side kicking off? Why not one of the multitude of other bursae in the body?
thumbup

dubopp

3 posts

34 months

Wednesday 30th June 2021
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Jane123

1 posts

33 months

Tuesday 13th July 2021
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rider73 said:
great post - thanks for that and taking the time to post it here!

Lucky19

1 posts

33 months

Tuesday 27th July 2021
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I have SIRVA and I can not believe it is so common with so many people suffering. I am cursing myself for taking the vaccine now. I have become partially disabled. I am a single mother, have two kids. I can not function properly. I am scared I will never get better. How can the NHS do this and get these inexperienced people to administer the vaccine. I am so angry. I am in constant pain and can't sleep. Its been three and half months. I took my jab on 14th April.

Stevet341

1 posts

31 months

Tuesday 7th September 2021
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I have this also, had my covid jab 7 weeks ago, about 2 days later my shoulder started hurting and has got worse, even small things like putting on shirt or coat are excruciating, totally caused by the jab as was fine before, also my arm goes numb and have pins and needles shooting down to my hand, I'm at the docs next week so will report what he says - feel like I'm going to get fobbed off and told to take painkillers - which I have done and don't work. I didn't know this was a thing until I started researching my pain, never heard of it before.

maco1982

1 posts

31 months

Monday 13th September 2021
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Hi Everyone ...glad i have found this post, i had my first covid vaccine in march 21 and about 2 days later was suffering with my shoulder, very painful, put it down to just being sore from the jab, but it got worse, unable to lift my arm above my head, cant reach round to my back, sleepless nights from the pain ect. i finally got in to see my gp at the beginning of August, i told her i had been like this since receiving my vaccine, she was adamant that it was just a coincidence (even though i have never had any shoulder problems) she diagnosed shoulder impingement just by looking at me and told me to look on you tube for eccentric shoulder exercises, i did these for 3 weeks very painful daily and made no difference so got to see a physio first week in September, he diagnosed degenerative shoulder and again said nothing to do with the vaccine? .. and told me to do completely different exercises from what my gp said....i wasn't happy so paid for a private scan, i have had this and it the sonographer told me my bursa is thickened this normally happens through injury. being as i have not injured my shoulder it has to be SIRVA, the thing is its getting worse and being miss diagnosed and told different exercises by different so called professional's is not good for us as we could be making things worse...There is currently a group on facebook called (Vaccine administration injury SIRVA support UK) it has over 200 members so far with exact same symptoms as i have been reading on here and as myself.
I have reported it on the yellow card system and also contacted my local ccg waiting for a reply from them. this does need to get out in the media as there are too many people suffering and no help or support for us.
I am in the process of contacting my local MP to raise awareness too (doubt it will help)..also trying to see my gp again (if i can get an appointment) to be referred to musculoskeletal clinic..i will update on my progress and if you haven't yet reported on the yellow card scheme please do as there is a section for it on there for shoulder injury. there is also compensation you can apply for from the government site but have to be classed as 60% disabled? to qualify for the 120 thousand pound pay out.

Sorry for the long post but so frustrating and painful also not being able to do normal daily tasks without excruciating pain and an arm that is useless.

Mattjamesgrice

1 posts

29 months

Thursday 4th November 2021
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Hi can you send me SIRVA solicitor phone number please

AichBee

2 posts

29 months

Monday 15th November 2021
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maco1982 said:
There is currently a group on facebook called (Vaccine administration injury SIRVA support UK) it has over 200 members so far with exact same symptoms as i have been reading on here and as myself.
Thanks to maco1982 for info about the facebook group - they have over 340 members now and lots of useful info and support, including stuff you can print out to show your doctor. Well worth a look!

Bluedeer

8 posts

39 months

Wednesday 16th February 2022
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Hi everyone,

I sustained SIRVA in December 2019 and it took six months to recover and use my arm normally. But even now in 2022 I still get niggly irritation in that shoulder when I perform certain movements.

There's a HUGE amount of people being affected by this and it must stop happening.

I've started a sirva petition. I submitted a post here a few weeks ago to tell you all about it and how you can access it but Pistonheads removed my comment and wouldn't allow me to publicise it. So I'm just letting you know that it's out there. But I also wanted to update you on my my sirva injury and recovery journey.

Anyone who's currently suffering, please keep seeking help in the way of ultrasound or MRI to get a formal diagnosis, and physio for rehabilitation. Some sirva injuries may require an injection (oh, the irony) or even surgery in extreme cases. It's dependent on what part of your shoulder anatomy has been hit - shoulder capsule, bursa, nerves or even bone.

Don't lose hope, report the negligence (which is what SIRVA is) and let other people know about it. I just so happened to mention it to someone I know vaguely and he instantly told me that his wife AND his friend are both suffering from pain and mobility issues after receiving vaccines. He'd never heard of SIRVA and was anxious to write down any info that I could give him.

All the best!

rider73

Original Poster:

3,042 posts

77 months

Thursday 17th February 2022
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Bluedeer said:
Hi everyone,

I sustained SIRVA in December 2019 and it took six months to recover and use my arm normally. But even now in 2022 I still get niggly irritation in that shoulder when I perform certain movements.

There's a HUGE amount of people being affected by this and it must stop happening.

I've started a sirva petition. I submitted a post here a few weeks ago to tell you all about it and how you can access it but Pistonheads removed my comment and wouldn't allow me to publicise it. So I'm just letting you know that it's out there. But I also wanted to update you on my my sirva injury and recovery journey.

Anyone who's currently suffering, please keep seeking help in the way of ultrasound or MRI to get a formal diagnosis, and physio for rehabilitation. Some sirva injuries may require an injection (oh, the irony) or even surgery in extreme cases. It's dependent on what part of your shoulder anatomy has been hit - shoulder capsule, bursa, nerves or even bone.

Don't lose hope, report the negligence (which is what SIRVA is) and let other people know about it. I just so happened to mention it to someone I know vaguely and he instantly told me that his wife AND his friend are both suffering from pain and mobility issues after receiving vaccines. He'd never heard of SIRVA and was anxious to write down any info that I could give him.

All the best!
Great - well done - there is now a large facebook community and group based of this original thread and its pretty active.

Blackpuddin

16,525 posts

205 months

Wednesday 2nd November 2022
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Thread reboot! Just to say you can get this from the flu jab as well. I've got it in both shoulders now, in my left from the Covid booster last November ('21) and now it feels very much like I've got it in the right arm from the flu jab a month or so ago.

Waynester

6,339 posts

250 months

Wednesday 2nd November 2022
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Interesting comments - I have never heard of SIRVA before!

I am due to have my 5th Covid booster & flu jab this weekend. This will be my first flu jab as I have now turned 50.

The thing is, every Covid jab has left me feeling rough for a few days, including very sore shoulder. I have also not had Covid yet!

And the last time I had flu was as a kid.. So I am considering skipping this double jab…

FreeLitres

6,049 posts

177 months

Wednesday 2nd November 2022
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Having read this thread early on, I always make an effort to wear a relatively tight t-shirt when I go for a jab. It seems like SIRVA might happen when they aim quite high up the shoulder where there isn't much flesh in front of the joint. If they can only access the side of the shoulder, they can't go too wrong.

Cactusblob

1 posts

16 months

Tuesday 27th December 2022
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I had my covid booster and flu jab at my local pharmacy on 31st October 2022. One jab in each arm.
Thought nothing of it having had countless injections in my arms over the years with not even a sore shoulder as a result.
I began to experience pain in both arms after about 48 hours.
Within a week I was in nightly agony whenever I tried to move in bed.
Turning resulted in me screaming in pain and I was soon unable to sleep at all. Nor was my partner!
I tried every sleeping position and ended up changing from flat in bed to reclined in a garden chair to flat on a sofa with my arm hanging down.
Daytime was manageable as long as I left my arms limp by my side with no sideways or lifting motion.
Dressing was impossible both pulling up my underwear or pulling down my shirt or jumper led to searing pain in my shoulders.
My GP refered me to a physio and she identified the pain to be originating in my to Birsas and referred me for a cortisone injection.
The cortisone injections took away 80 % of the pain and I am getting sleep between turning.
I am still severely debilitated and the pain relief from the cortisone is diminishing.
I have been trying to get a follow up cortisone injection and am trying and failing to get a referral to a shoulder specialist. to try and access an mri or ultrasound scan.
The gps and physios have been sympathetic but in denial of the underlying cause and I am thus struggling to access an accurate diagnosis and treatment.
Finding this site has helped in knowing that my symptoms are not unique and others are struggling to access the correct treatment.

Blackpuddin

16,525 posts

205 months

Tuesday 27th December 2022
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When I mentioned SIRVA to the Covid 2nd injector he was rudely dismissive. I've got it in both shoulders, one Covid the other flu.

Feirny

2,519 posts

147 months

Tuesday 27th December 2022
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I think this thread may have just solved the mystery that has plagued me for 3 years.

My shoulders are so bad I can barely put a coat on, and it hurts to drive. As well as trying to look after my 2 young children.

I have a physio appt tomorrow so I’m going to mention this.

ReverendCounter

6,087 posts

176 months

Saturday 31st December 2022
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I had my flu booster in September/Oct 2022 and shortly afterward (24/48hrs or so?) I developed discomfort in the injection site - at the top of my arm, deep under the muscle tissue.

Now I can't sleep without being woken from the discomfort in that site, and some movements are no longer possible without pain and a real difficulty in completing the movement.

I understood some people were suffering this from covid jabs, but not from flu boosters.

I definitely did not suffer from discomfort in that joint prior to this. I'm now reluctant to get a covid booster in case it makes things even worse.

Can the covid booster jab site be elsewhere that these deep shoulder sites?

Calimero410

2 posts

6 months

Tuesday 3rd October 2023
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Hi!
Can you please send me the details of your solicitor. I urgently need one because I have SIRVA and have been messed around by the surgery where I was vaccinated.
Best regards,
Antonia

Bluedeer said:
I have also sustained an injury (SIRVA) - from my flu jab in December. I've now had pain and restricted movement for a month and have to be careful when I use my arm. I've heard of another person this year too, local to me, who has gone back to her GP with the same thing: ongoing pain and mobility issues post vaccination.

I have had to fight to get access to an ultrasound and orthopaedic appointment for diagnosis. My diagnosis is Subacromial bursitis and Rotator cuff impingement - both can be caused by trauma/injury and are among the conditions recognised as being outcomes of SIRVA. There are many other issues caused by SIRVA too such as bone and nerve damage! I'm now waiting for physio and if that doesn't work, a steroid injection. I read that these conditions often get better with treatment but there is a possibility of long-term issues, meaning long-term treatment.

I have been researching SIRVA and apparently it's rare - and often goes undiagnosed. However, it appears to me that it could be more common than is stated possibly due to the fact that it's difficult to prove that it was caused by the administration of the injection perhaps(?).

My experience was that the pharmacist at my GP practice seemed to inject higher on my arm and it certainly felt deeper. She also momentarily held the needle in, whereas my previous jabs (given by the practice nurses) were over in a flash. This time the jab was painful too. I had symptoms of pain and throbbing in my shoulder and arm (which went over the bicep to the crook of my elbow) within an hour. The initial throbbing subsided but I have been left with ongoing pain and restricted mobility.

GP's kept saying "it might not be due to the flu jab" but I know it is - when I walked into their surgery I was pain free and had full mobility (and have been this way for as long as I can remember) but I left with pain which worsened and restricted my mobility. I hadn't done anything to cause the injury, I hadn't exerted myself or done repetitive powerful overhead movements, nothing. I was fit and healthy. My problems occured immediately after the jab.

I'm hoping to be able to contact other people that have had the same experience because I found I really had to push my GP's in order to gain access to a diagnosis. They weren't willing to refer me. They told me they had never heard of SIRVA and tried to fob me off, no wonder SIRVA often goes undiagnosed. Don't give up trying to get access to a firm diagnosis, the more people that do this the more it will become recognised as a serious (and more common than they thought) issue and won't be ignored. I hope you have received treatment and are becoming fit again. Please feel free to reply to me as I'm on a sort of mission to find others that have been injured due to poor vaccination technique as I'm guessing there are probably people suffering with this that aren't being diagnosed and treated. Our NHS is there for us - and these SIRVA injuries are due to no fault of our own.