ADHD - Adults

Author
Discussion

Hugo Stiglitz

37,176 posts

212 months

Friday 7th July 2023
quotequote all
So I've had real issues with elvanse AND coffee.

It spiked my blood pressure. Really spiked it. I was trying to give a few hours before taking Elvanse.

Now whenever I have one caffienated coffee it boosts my blood pressure. Anyone else stupidly mixed the two on the same days?

pherlopolus

2,088 posts

159 months

Friday 7th July 2023
quotequote all
I find I don't need caffeine if the meds are working, however if I don't take my lunchtime top up I need some by about 3pm.

Wierdly I get some buzz from decaff too if I have mid morning. I swapped for earl grey tea in hotels but found that sent me a bit hyper - then I found out the caffeine content is not to different to coffee!

I don't routinely check BP (white coat hypertension applies at home too!) But my blood pressure has dropped from needing 20 mins and a lie down to get to 130/72, to being able to sit for 2 mins at get it below 130. I am on blood pressure meds, and wonder how much the ADHD was raising it.

Elvanse and caffeine work in roughly the same way, so it's no surprise your BP is higher when you have both in your system.

sparkyhx

4,152 posts

205 months

Friday 7th July 2023
quotequote all
Hugo Stiglitz said:
So I've had real issues with elvanse AND coffee.

It spiked my blood pressure. Really spiked it. I was trying to give a few hours before taking Elvanse.

Now whenever I have one caffienated coffee it boosts my blood pressure. Anyone else stupidly mixed the two on the same days?
just started taking them - I'll look out for that

how quickly does it happen?

Hugo Stiglitz

37,176 posts

212 months

Saturday 8th July 2023
quotequote all
My Blood pressure hit 100/160. I felt dizzy. It's now back to normal without any meds intervention.


There is NO WAY I'd take Elvanse AND statins etc. That's insane.

I'm trialing taking Ginseng and Gingko bilbao to see how I fare on this instead of Elvanse.

If you are middle aged be very careful of taking adhd meds and the potential health drawbacks v benefits of the meds. Sometimes you've got to love your special powers for who you are.

sparkyhx

4,152 posts

205 months

Saturday 8th July 2023
quotequote all
Hugo Stiglitz said:
There is NO WAY I'd take Elvanse AND statins etc. That's insane.

why? what's cholesterol got to do with it BP?

lifeboat22

46 posts

34 months

Tuesday 8th August 2023
quotequote all
Hugo Stiglitz said:
So I've had real issues with elvanse AND coffee.

It spiked my blood pressure. Really spiked it. I was trying to give a few hours before taking Elvanse.

Now whenever I have one caffienated coffee it boosts my blood pressure. Anyone else stupidly mixed the two on the same days?
Caffeine of any sort sends me into crushing anxiety when on Concerta. Even a decaff tea/piece of chocolate.

Blood pressure not affected, strangely.

KTMsm

26,905 posts

264 months

Tuesday 8th August 2023
quotequote all
If it raises my blood pressure I might try it - mines always been low giving me cold hands and feet

TheBinarySheep

1,131 posts

52 months

Tuesday 8th August 2023
quotequote all
I was given a positive diagnosis at the weekend. Waiting for a letter to be sent to my GP so I can get an ECG done before any medication can be prescribed.

Sslink

101 posts

42 months

Tuesday 8th August 2023
quotequote all
I've also been diagnosed, need to get my blood pressure, pulse and weight checked by a pharmacist or GP to submit to my psych (no requirement for an ECG thankfully)

My GP practice has provision to allow a shared care agreement, however, it still needs to be signed off by a GP each month.

I've been fortunate to be able to use Private Medical Insurance (via work) to skip the NHS queue, however, it only covers up to and including diagnosis; no medication or follow ups unfortunately. The amount billed to date is around £1400 (2 Private GP appointments for referral, initial Psych consultation, full psych evaluation). So I can definitely sympathise with those unable to progress privately and stuck on multiple year waiting lists.

I will still have to pay for the meds out of pocket and the follow ups until I'm titrated and stable, so could be another £xxx. Hopefully the proposed 30mg Elvanse will do the job and I'll only require a follow up with the Psychiatrist annually.

I didn't get the same "gut-punch" feeling as others in this thread though, more just a sense of relief.

Motoring12345

615 posts

51 months

Tuesday 8th August 2023
quotequote all
Has anyone self-medicated here?

I'm in a bit of a desperate situation and only 2 months into the 2 year waiting list. I need to find a solution until then.

PlywoodPascal

4,232 posts

22 months

Tuesday 8th August 2023
quotequote all
If you can't get prescription medication the best options are probably:

- omega 3 supplement every day
- higher protein breakfasts
- exercise first thing every day (cardio type best, more intense is good, flat out not really necessary)
- get really good sleep (easily written)
- caffeine!

Motoring12345

615 posts

51 months

Tuesday 8th August 2023
quotequote all
PlywoodPascal said:
If you can't get prescription medication the best options are probably:

- omega 3 supplement every day
- higher protein breakfasts
- exercise first thing every day (cardio type best, more intense is good, flat out not really necessary)
- get really good sleep (easily written)
- caffeine!
I have access to modafinil but it's hit and miss for me. I either do amazing on them and am hyperfocous or do really badly and end up cleaning my room like a madman. Plus I tend to become a dhead towards my family and gf so I've tried to keep it for extremely desprate situations.

I'll try the Omeage 3 though. The rest I have pretty much incorporated in my daily routine.

lifeboat22

46 posts

34 months

Tuesday 8th August 2023
quotequote all
Anyone on here with Psymplicity?

I am. There are in the high court today for a winding up order.

shirt

22,619 posts

202 months

Wednesday 9th August 2023
quotequote all
Hugo Stiglitz said:
I think if you have it. You know that you have it.
i'm not sure. i am inattentive type which i think creates a vastly different set of issues from hyper/impulsive. for me this created alternative depression and anxiety. i was being unsuccessfully treated for GAD when the ADHD assessment was performed. Genuinely never considered it, but the diagnosis was spot on.

Hugo Stiglitz

37,176 posts

212 months

Wednesday 9th August 2023
quotequote all
PlywoodPascal said:
If you can't get prescription medication the best options are probably:

- omega 3 supplement every day
- higher protein breakfasts
- exercise first thing every day (cardio type best, more intense is good, flat out not really necessary)
- get really good sleep (easily written)
- caffeine!
I have two table spoons every morning of cod liver oil

TheBinarySheep

1,131 posts

52 months

Wednesday 9th August 2023
quotequote all
shirt said:
i'm not sure. i am inattentive type which i think creates a vastly different set of issues from hyper/impulsive. for me this created alternative depression and anxiety. i was being unsuccessfully treated for GAD when the ADHD assessment was performed. Genuinely never considered it, but the diagnosis was spot on.
Mines the inattentive type as well. For me I just always assumed I was an unorganised person that god bored quickly. I always kept looking for ways to improve, but any method I tried to implement only lasted a 2-3 weeks before I got bored or forgot about it.

It was my wife (who works in education) who pointed out that I might have ADHD, did some research and everything I read was me. I hit 40 and felt like something had been holding me back, which resulted in a lot of frustration and depression.

I've gone private. I'm self employed, so for me I'm hoping the benefits of medication help me be more productive so I can earn the cost of treatment back.

Phunk

1,977 posts

172 months

Tuesday 15th August 2023
quotequote all
After a 2 year wait, had my NHS diagnosis last week.

Mid-level inattentive ADHD, which came as no surprise as I had the same private diagnosis approx 12 months ago.

They’ll take on the prescribing which’ll save £150/month plus they’ve also invited me to some weekly sessions with other ADHD’rs.

PlywoodPascal

4,232 posts

22 months

Tuesday 15th August 2023
quotequote all
don't forget to go smile

pherlopolus

2,088 posts

159 months

Tuesday 15th August 2023
quotequote all
I would right the day off if they were afternoon sessions

Woodrow Wilson

342 posts

161 months

Tuesday 15th August 2023
quotequote all
Phunk said:
After a 2 year wait, had my NHS diagnosis last week.

Mid-level inattentive ADHD, which came as no surprise as I had the same private diagnosis approx 12 months ago.

They’ll take on the prescribing which’ll save £150/month plus they’ve also invited me to some weekly sessions with other ADHD’rs.
Before getting a proper diagnosis, I met up with some people a few times at a local/county group that I found by looking on www.

It was actually very useful to meet and talk to people who had similar experiences to me. There were a few men like me.

Some of the people appeared to have had much more difficulty in life, though, especially some of the women.

l, erm, suspect that my wife(/manager) keeps me on the straight and narrow to some extent (but I try not to admit that to her)