Discussion
GT3Manthey said:
The wife had all the Covid symptoms back in march and went from running 7 miles a day to out of breath walking a flight of stairs.
She seemed to recover but various tests have now shown her to have a damaged left artery to the heart and scarring to her left lung.
She is also still breathless climbing two flights of stairs, has brain fog at times along occasional chest pains.
We are now 6 months in thinking that the symptoms of Long Covid would disappear after 10 weeks.
Anyone else going through this just so i can try and make sense of what the long term - if any- complications could be
We have a close friend who also possibly had it (necer tested in early stages) in March and has been persistently ill since then. She is breathless even talking let alone going up and down stairs . It takes her 2 attempts at going up a flight.She seemed to recover but various tests have now shown her to have a damaged left artery to the heart and scarring to her left lung.
She is also still breathless climbing two flights of stairs, has brain fog at times along occasional chest pains.
We are now 6 months in thinking that the symptoms of Long Covid would disappear after 10 weeks.
Anyone else going through this just so i can try and make sense of what the long term - if any- complications could be
for a while nobody would see her as she had never been diagnosed and therefore NOT 'long covid' . Only in October (8 months later) are they treating her as 'Long Covid'. ATM she is to all intents disabled.
I had what the hospital thought at the time was a TIA back in may.
Tests/scans have found nothing amiss.Saw a young bloke on the news this week who described his long covid symptoms,numbness in limbs, fatigue,chest pains to name but 3,all symptoms I have/had.....maybe I had covid and have long covid now.There's no actual way of knowing for sure is there ? They can only test for antibodies.
I think it's a case of ruling out all the obvious illnesses and being left with 'it must be long covid'
Tests/scans have found nothing amiss.Saw a young bloke on the news this week who described his long covid symptoms,numbness in limbs, fatigue,chest pains to name but 3,all symptoms I have/had.....maybe I had covid and have long covid now.There's no actual way of knowing for sure is there ? They can only test for antibodies.
I think it's a case of ruling out all the obvious illnesses and being left with 'it must be long covid'
thetapeworm said:
Bit of a bump I know but there doesn't seem to be a more active topic on this one.
I just wondered if any of you (or those you know) have noticed tinnitus type symptoms appear unannounced as part of this?.
I had covid in October, then a mild cold a few weeks later and had tinnitus since, have had ear problems in the past and had mild tinitus for decades but it’s kicked up in volume now. Have read a few people had it after covid and I noticed the Zoe app added it as a symptom a few months ago. I’m booked to see a specialist in the new year, but not sure they can do much.I just wondered if any of you (or those you know) have noticed tinnitus type symptoms appear unannounced as part of this?.
wombleh said:
I had covid in October, then a mild cold a few weeks later and had tinnitus since, have had ear problems in the past and had mild tinitus for decades but it’s kicked up in volume now. Have read a few people had it after covid and I noticed the Zoe app added it as a symptom a few months ago. I’m booked to see a specialist in the new year, but not sure they can do much.
Cheers, it was seeing it on ZOE that made me think more about it, for months I thought it was just a noise outside the house somewhere as I only really hear it when it's totally silent upstairs at night. I eventually asked my wife if she could hear "it" but apparently it's just me.If you fill it in on the app as a "symptom" it triggers their "get a test" email
I think I had COVID back in Feb.
Didn't think it was at the time as everywhere was saying it wasn't in the UK until March, but then later in the year reports that it may have been about from last Christmas make me think it was. I also travelled by train through Oxford and back, so a Uni town!, just the day before.
Started with 'Flu' like symptoms, sore throat, massively tired, really aching muscles, indigestion, bad headache for a day or two (although I tend to have them anyway), loss of taste and smell, and wife tells me I was coughing as well.
Lasted around a week, although I felt knackered for a few weeks after, like riding my bike, which I do regulary.
So anyway, reason I am posting is wondering if anyone had experienced the same as me afterwards. Since I've been ill, I keep getting what feels like 'sprained' muscles, but which lasts for a month or two. For example I did some digging and was throwing soil, and my chest muscles felt 'sprained' for almost a couple of months. Then had it in my neck after sleeping. Then another location in my back. And now, about 8 months later, twisted my arm back working on my car, and its still feeling strained 2 months later!
I'd also had some weird chest pains and palpitations, which my overactive mind had worried had been heart problems, but a check with the doctor luckily found to have nothing wrong with me.
Didn't think it was at the time as everywhere was saying it wasn't in the UK until March, but then later in the year reports that it may have been about from last Christmas make me think it was. I also travelled by train through Oxford and back, so a Uni town!, just the day before.
Started with 'Flu' like symptoms, sore throat, massively tired, really aching muscles, indigestion, bad headache for a day or two (although I tend to have them anyway), loss of taste and smell, and wife tells me I was coughing as well.
Lasted around a week, although I felt knackered for a few weeks after, like riding my bike, which I do regulary.
So anyway, reason I am posting is wondering if anyone had experienced the same as me afterwards. Since I've been ill, I keep getting what feels like 'sprained' muscles, but which lasts for a month or two. For example I did some digging and was throwing soil, and my chest muscles felt 'sprained' for almost a couple of months. Then had it in my neck after sleeping. Then another location in my back. And now, about 8 months later, twisted my arm back working on my car, and its still feeling strained 2 months later!
I'd also had some weird chest pains and palpitations, which my overactive mind had worried had been heart problems, but a check with the doctor luckily found to have nothing wrong with me.
Ladders said:
I think I had COVID back in Feb.
Didn't think it was at the time as everywhere was saying it wasn't in the UK until March, but then later in the year reports that it may have been about from last Christmas make me think it was. I also travelled by train through Oxford and back, so a Uni town!, just the day before.
Started with 'Flu' like symptoms, sore throat, massively tired, really aching muscles, indigestion, bad headache for a day or two (although I tend to have them anyway), loss of taste and smell, and wife tells me I was coughing as well.
Lasted around a week, although I felt knackered for a few weeks after, like riding my bike, which I do regulary.
So anyway, reason I am posting is wondering if anyone had experienced the same as me afterwards. Since I've been ill, I keep getting what feels like 'sprained' muscles, but which lasts for a month or two. For example I did some digging and was throwing soil, and my chest muscles felt 'sprained' for almost a couple of months. Then had it in my neck after sleeping. Then another location in my back. And now, about 8 months later, twisted my arm back working on my car, and its still feeling strained 2 months later!
I'd also had some weird chest pains and palpitations, which my overactive mind had worried had been heart problems, but a check with the doctor luckily found to have nothing wrong with me.
After some fairly lengthy investigations with scans and mri's my wife was told she has long covid. Didn't think it was at the time as everywhere was saying it wasn't in the UK until March, but then later in the year reports that it may have been about from last Christmas make me think it was. I also travelled by train through Oxford and back, so a Uni town!, just the day before.
Started with 'Flu' like symptoms, sore throat, massively tired, really aching muscles, indigestion, bad headache for a day or two (although I tend to have them anyway), loss of taste and smell, and wife tells me I was coughing as well.
Lasted around a week, although I felt knackered for a few weeks after, like riding my bike, which I do regulary.
So anyway, reason I am posting is wondering if anyone had experienced the same as me afterwards. Since I've been ill, I keep getting what feels like 'sprained' muscles, but which lasts for a month or two. For example I did some digging and was throwing soil, and my chest muscles felt 'sprained' for almost a couple of months. Then had it in my neck after sleeping. Then another location in my back. And now, about 8 months later, twisted my arm back working on my car, and its still feeling strained 2 months later!
I'd also had some weird chest pains and palpitations, which my overactive mind had worried had been heart problems, but a check with the doctor luckily found to have nothing wrong with me.
She has a damaged left lung and damage to her heart which we have been told is unlikely to heal.
She still gets huge heart palpitations where for no reason her BPM can go as high as 200BPM.
She tried going for a jog today and within 300 yrds BOOM 190BPM.
We have no idea how all this will end up.....
Had covid in October, still sitting with a horrible burnt smell in nose, some days worse than others, do not taste some things like I used to, and can have ridiculous sweats for little reason. I can go to the gym and train fine then the next day eat a meal and have to change my t shirt because of the sweats!! Still get days where I feel foggy and struggle to remember simple words. Weird after effects I have never previously had!!
biggbn said:
Had covid in October, still sitting with a horrible burnt smell in nose, some days worse than others, do not taste some things like I used to, and can have ridiculous sweats for little reason. I can go to the gym and train fine then the next day eat a meal and have to change my t shirt because of the sweats!! Still get days where I feel foggy and struggle to remember simple words. Weird after effects I have never previously had!!
Brain fog and breathlessness both seem to form part of the long covid symptoms as does the taste issues. I’m sure it’ll be many more years before they understand why these symptoms have occurred.
GT3Manthey said:
anonymous said:
[redacted]
I have looked into this previously but will give it another go.We originally thought she had AF but the consultant disagreed.
Him having not prescribed any medication has not left us with much confidence.
Tks for the heads up mate
https://www.mumsnet.com/Talk/coronavirus/4112307-l...
Personally I'd be wary of public forums and anecdotes from Joe Public as a reference for the symptoms of long covid.
I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times. So you to understand that evidence made on forums etc. is anecdotal, and not necessarily representative of the bigger picture, which we've yet to see.
If that makes sense...
I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times. So you to understand that evidence made on forums etc. is anecdotal, and not necessarily representative of the bigger picture, which we've yet to see.
If that makes sense...
Prof Prolapse said:
Personally I'd be wary of public forums and anecdotes from Joe Public as a reference for the symptoms of long covid.
I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times.
If that makes sense...
Yes it does and many tks on the well wishes.I'm a bit concerned that there's often a real reluctance of the public to consider the effect of the psychological aspects of the lockdown on their health and it's making it hard to isolate the cause of illness is indeed long covid; job loss, loss of purpose, bereavement, being in a confined space, even dealing with kids 24/7, and the resultant pressures on a body, seems to be overlooked in favour of some mystery illness. Anyone can suffer from mental health issues, and they're not always overt.
Same goes for the usual standard, "viral fatigue", which we all accept is a real occurrence, but seems to need a special classification when it comes to COVID-19.
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances, and the described above is clearly terrifying, I really do hope she shows some improvement.
I just think in the mean time, a lot of people will, understably, equate any symptoms to "long Covid" but the reality is likely to be a combination of long covid and several other factors caused by living in such strange times.
If that makes sense...
Quite alarming being told that the damage is unlikely to ever reverse and of course not knowing the long term, if any, effects.
Will try to keep the thread updated with any changes if and when they occur
anonymous said:
[redacted]
Many tks for checking.My wife had the full works with Scans, MRI's and ECG so most bases covered i'd say.
Interesting he got the same steer on 'monitoring' and no meds.
One thing we maybe need to keep an eye on is cholesterol although we know prior to Covid she was all that in that regard.
Once again tks for help
Prof Prolapse said:
Don't get me wrong however, I'm not a denier at all, there's clearly direct damage done here in some instances,
Our daughter got Covid very early on but never tested positive. However her GP was certain she'd had it, and when her lungs were x-rayed they said they were certain too.As seems to be typical with the NHS, if there isn't an obvious fix they just shrug. Like taking your car to a dealer and they're stuffed if it doesn't have a fault code logged.
What should scare people is it seems even those who are asymptomatic can suffer a degree of organ damage.
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