Cerebral Palsy
Discussion
littlegreenfairy said:
At the moment, your baby is your baby - not a condition, an illness or a statistic - but a little bundle of joy.
Perfectly put. A friend of mine has a 15 year old boy with CP, and I love him to bits. And I'm a crabby old bugger with no patience for any other b
d.First of all, congratulations on your new family member!
Not quite the same, but my Nephew has downs syndrome. He's 7 now and does really well, goes to a normal school, just has a teaching assitant with him. It's more time consuming doing every day things with him, but in turn you're rewarded with the love they show.
We've recently had a little boy in September, so it's all very new for us too, just the best thing ever. Enjoy your new baby girl!
EFA.
Not quite the same, but my Nephew has downs syndrome. He's 7 now and does really well, goes to a normal school, just has a teaching assitant with him. It's more time consuming doing every day things with him, but in turn you're rewarded with the love they show.
We've recently had a little boy in September, so it's all very new for us too, just the best thing ever. Enjoy your new baby girl!
EFA.
Edited by Aubrey on Monday 5th January 00:05
I have cerebal palsy.
Im not 100% sure on the details, but i too was staved of oxygen when i was born, resulting in brain damage.
24 years on, ive been quite lucky. It doesnt affect me too badly. i cant walk long distances. Take le mans. Once ive walked from the Dunlop Bridge to the pits, ive gotta stop and have a break. Whilst thats annoying, i do relise just how lucky I am. CP affects arms / legs and my arms are fine. I walk a bit crooked (imagine a ski'er just about to leave the start line down a slalom. See how they stand with legs slightly crooked? thats how i stand and walk normally). I have to say though, I dont have a chip on my shoulder like some people with CP ive met, the world owes me nothing, and i just get the hell on with life.
I do everything a normal person does (hell ive even owned a westfield for a short while, but did get rid in the end), i have a caravan and enjoy le mans every year, despite my difficulty in getting around.
If you want to email me or know anything else, drop me a message
James
/edit, ive just gone back to read the thread now, having posted this reply first, and read this first post:
Im not 100% sure on the details, but i too was staved of oxygen when i was born, resulting in brain damage.
24 years on, ive been quite lucky. It doesnt affect me too badly. i cant walk long distances. Take le mans. Once ive walked from the Dunlop Bridge to the pits, ive gotta stop and have a break. Whilst thats annoying, i do relise just how lucky I am. CP affects arms / legs and my arms are fine. I walk a bit crooked (imagine a ski'er just about to leave the start line down a slalom. See how they stand with legs slightly crooked? thats how i stand and walk normally). I have to say though, I dont have a chip on my shoulder like some people with CP ive met, the world owes me nothing, and i just get the hell on with life.
I do everything a normal person does (hell ive even owned a westfield for a short while, but did get rid in the end), i have a caravan and enjoy le mans every year, despite my difficulty in getting around.
If you want to email me or know anything else, drop me a message
James
/edit, ive just gone back to read the thread now, having posted this reply first, and read this first post:
arryb said:
My youngest brother has cerebral palsy - as you probably know, there are many different forms, my brother can't do walk, talk or control his limbs properly, however, he's always smiling and you can tell he's switched on when he laughs at things like Michael Mcintyres new DVD 
He'll always require care but he's awesome 
Reading that makes me relise how lucky i am that im able to do 90% of every day things, and makes me relise, that in reality, im only affected in a minor way. He'll always require care but he's awesome Edited by James_N on Monday 5th January 00:32
Look after her & best of luck Congratulations on your new baby.
My son has CP, he is 18 in May and is the absolute light of my(our) life, along with my other two able bodied children of course. He was born after a very difficult birth, cord wrapped around his neck a couple of times and whisked away very quickly. Initially APGAR was about 4 and was 8 after about 10 mins. He was formally diagnosed when he was 8 months old, we knew there was something wrong, he didn't sit up when he should have and he wasn't developing properly. We were initially upset and shocked but then, we just got on with life, had two more children and adapted.
He doesn't walk and is quadraplegic - although he does have better use of his arms/hands than his legs, has communication difficulties...but he is still our son and we love him dearly. He is now active in his electric and manual wheelchair, is brilliant on computers, attend a special needs school and enjoys life immensely. He is funny and clever.
I know these are difficult times, but I can assure you there are great times ahead, it is no picnic but children never are.
Good luck and very best wishes.
My son has CP, he is 18 in May and is the absolute light of my(our) life, along with my other two able bodied children of course. He was born after a very difficult birth, cord wrapped around his neck a couple of times and whisked away very quickly. Initially APGAR was about 4 and was 8 after about 10 mins. He was formally diagnosed when he was 8 months old, we knew there was something wrong, he didn't sit up when he should have and he wasn't developing properly. We were initially upset and shocked but then, we just got on with life, had two more children and adapted.
He doesn't walk and is quadraplegic - although he does have better use of his arms/hands than his legs, has communication difficulties...but he is still our son and we love him dearly. He is now active in his electric and manual wheelchair, is brilliant on computers, attend a special needs school and enjoys life immensely. He is funny and clever.
I know these are difficult times, but I can assure you there are great times ahead, it is no picnic but children never are.
Good luck and very best wishes.
littlegreenfairy said:
James_N said:
i have a caravan
I'm so sorry to hear that 
Anything we can do to help, just shout. 
To the OP - how's your daughter doing today?
She is fed through a drip at the moment as it looks like she has not quite got the hang of sucking yet, although we are working on this and she is responding well.
To my untrained eye she looks and is acting as a normal healthy baby.
mr brightside said:
littlegreenfairy said:
James_N said:
i have a caravan
I'm so sorry to hear that Anything we can do to help, just shout. To the OP - how's your daughter doing today?
She is fed through a drip at the moment as it looks like she has not quite got the hang of sucking yet, although we are working on this and she is responding well.
To my untrained eye she looks and is acting as a normal healthy baby.
love her whatever! Our eldest has CP. He's 19 years old now. We spent the first 6 months of his life at Great Ormond Street Hospital which is a wonderous place that taught me that no matter how bad you think things are for you, there is always someone much worse off.
Chin up, it's going to be a bumpy ride but the most important thing is the well being of your daughter. My best wishes to you all.
Chin up, it's going to be a bumpy ride but the most important thing is the well being of your daughter. My best wishes to you all.
My mates brother has Cerebal Palsy meaning that for him his left hand isn't that great.
He's 9 now and has just gotten on with everything, he's a keen footballer and, most endeering of all, he's learning to play guitar hero left handed as he has the ability to make a strumming motion with his left hand.
He's 9 now and has just gotten on with everything, he's a keen footballer and, most endeering of all, he's learning to play guitar hero left handed as he has the ability to make a strumming motion with his left hand.
Sorry to hear about your babies condition.When my son was born he was a twin and was very premature (his ears had'nt formed yet and he fitted in the palm of my hand),he was in icu for about 4 weeks and the doctor said he stopped breathing for a few minutes but they did some tests on him and they said he was fine!
He was a bit slow learning to walk and fell over alot,we took him to the doctor when he was 3 and he said he was flat footed!we asked for a second opinion and a another doctor asked us to sit down and asked me & my wife that he had cerebal palsy!I was completely gob smacked and ran out to the car park and cried and screamed.............she said he would have to wear splints to correct his foot turning in.
He will be 10 in a few days and he is the most loving (but stubborn,takes everything that you say literally and is brilliant on the computer)boy anyone could ask for.
Me and my wife just accept his condition for what it is and the most important thing for us is that he is happy.
His twin sister is completely normal and fight with each other like any other brother and sister.
Hope everything turns out allright for you.
He was a bit slow learning to walk and fell over alot,we took him to the doctor when he was 3 and he said he was flat footed!we asked for a second opinion and a another doctor asked us to sit down and asked me & my wife that he had cerebal palsy!I was completely gob smacked and ran out to the car park and cried and screamed.............she said he would have to wear splints to correct his foot turning in.
He will be 10 in a few days and he is the most loving (but stubborn,takes everything that you say literally and is brilliant on the computer)boy anyone could ask for.
Me and my wife just accept his condition for what it is and the most important thing for us is that he is happy.
His twin sister is completely normal and fight with each other like any other brother and sister.
Hope everything turns out allright for you.
I was going through some of my old posts and saw this, and as there were many kind thoughts I would give a quick update.
Well, what a monkey she is.
Wants to try to walk everywhere, and can walk with a stroller more or less ok. Feeds her self ok but doesn't grip things as well as 'normal kids' (I hate referring to her like that).
Into everything and very nosey.
So it looks like we have been very lucky and is certainly a million miles away from anything that was expected of her.
The main thing I want to say is that your kids health and happiness is the most important thing i guess, never take it for granted.
Well, what a monkey she is.
Wants to try to walk everywhere, and can walk with a stroller more or less ok. Feeds her self ok but doesn't grip things as well as 'normal kids' (I hate referring to her like that).
Into everything and very nosey.
So it looks like we have been very lucky and is certainly a million miles away from anything that was expected of her.
The main thing I want to say is that your kids health and happiness is the most important thing i guess, never take it for granted.
mr brightside said:
I was going through some of my old posts and saw this, and as there were many kind thoughts I would give a quick update.
Well, what a monkey she is.
Wants to try to walk everywhere, and can walk with a stroller more or less ok. Feeds her self ok but doesn't grip things as well as 'normal kids' (I hate referring to her like that).
Into everything and very nosey.
So it looks like we have been very lucky and is certainly a million miles away from anything that was expected of her.
The main thing I want to say is that your kids health and happiness is the most important thing i guess, never take it for granted.
i never saw this thread originally. However after reading your OP and then seeing this post, it's brilliant news!Well, what a monkey she is.
Wants to try to walk everywhere, and can walk with a stroller more or less ok. Feeds her self ok but doesn't grip things as well as 'normal kids' (I hate referring to her like that).
Into everything and very nosey.
So it looks like we have been very lucky and is certainly a million miles away from anything that was expected of her.
The main thing I want to say is that your kids health and happiness is the most important thing i guess, never take it for granted.
Congrats!
I met Francesca Martinez (not the model) once and I have to admit I was quite taken by her! She's such a nice person and really strong willed and bloody funny. The fact she has CP didn't even enter my head until the OP started this thread and I remembered it.
I did ask her out for a drink but she jokingly said she'd probably throw it over me but not purpose.
http://en.wikipedia.org/wiki/Francesca_Martinez
I guess what I'm saying is don't fret too much, if the worst should happen you know it'll be ok.
I met Francesca Martinez (not the model) once and I have to admit I was quite taken by her! She's such a nice person and really strong willed and bloody funny. The fact she has CP didn't even enter my head until the OP started this thread and I remembered it.
I did ask her out for a drink but she jokingly said she'd probably throw it over me but not purpose.
http://en.wikipedia.org/wiki/Francesca_Martinez
I guess what I'm saying is don't fret too much, if the worst should happen you know it'll be ok.
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