How do you opt out of the NHS Database?
Discussion
Albert75 said:
dave_s13 said:
Many primary care trusts and gps are moving over to electronic records. We have just started using systmone and it makes life much easier.
The keepers of 'the spine' will not lose anyones info on a the trip home. It's just not possible.
The benefit of a shared record far outweighs any perceived risks you have regarding your data. Stop being so paranoid!
........The NHS's new computer system has been beset with delays, security breeches and resentment from front line staff. The current system is so slow and full of glitches, that the promises of security are broken time and time again, every day, in every hospital across the land. ID cards are left in, for example, to avoid the time delay in switching users - some Trusts actually advocated this practice. ...... The keepers of 'the spine' will not lose anyones info on a the trip home. It's just not possible.
The benefit of a shared record far outweighs any perceived risks you have regarding your data. Stop being so paranoid!
dave_s13 said:
pies said:
Tinfoil hat nonsense....utter b0ll0xthebigoptout said:
Your medical records
There are various components to NHS Care Records:
* Personal Demographic Service - this comprises your name, address, date of birth, NHS number and GP details. These details will be available to everyone in the NHS unless you are ’stop-noted’ (your details are hidden). Even high street pharmacists will be able to access these details. You may request your data to be stop-noted if you are a victim of domestic violence or in a witness protection program, for example.
* Summary Care Record - this includes all your major illnesses, allergies, prescriptions, etc. Unless you specifically elect not to have these clinical details uploaded to the national database, you will be presumed to have consented to them being on the database (this is called “implicit consent”). Once again, these clinical details will be available nationally. High street pharmacists are arguing that they should have access to this record and be able to amend it.
* NHS Care Records - these include all your detailed medical records, i.e. all your GP consultations, all your hospital consultations, and everything you tell your GP or consultant in confidence. These records will stored around the country in regional shared hosting centres. Patients are completely unable to opt out of having their detailed NHS Care Records stored at these centres. Primary Care Trusts and Strategic Health Authorites all share these hosting centres and records.
* Sealed Envelopes - these are supposed to be under development so that patients can restrict access to their most sensitive medical records such as mental health and terminations of pregnancy. However, even if you place your most sensitive details in these envelopes they will still be stored at the regional hosting centres; the seal can be broken by a doctor/NHS employee in an emergency. As yet sealed envelopes have not been developed and the Care Records will go live without them. (A consultants’ report said the envelopes might not work well and that sensitive data would be better stored locally.) So your detailed medical records will be widely accessible in your region.
* Hosting Centres - these are region-based. Hence all your detailed and sensitive medical records will be available at a regional level to anyone in the NHS who asserts they have a need to know. Someone in a neighbouring GP surgery or hospital will be able to access them.
* Secondary Uses Service - every time you attend a hospital appointment your post code, date of birth, GP details, consultant details, outpatient clinic, inpatient admission, procedure, cost and whether you are to be followed up is all sent by the hospital to BT. Prior to BT taking over this function your details where previously sent by the Hospital Trust to the SUS database which was run by a private company in Warwick. All these details will be stored at the regional hosting centre and can accessed by your local Primary Care Trust, Strategic Health Authority and the Department of Health via the SUS database that BT now manage. Medical researchers and even ‘Dr Foster’ are allowed access to all this personal and clinical information. For more details, read on…
That is just paranoid bull$hit.There are various components to NHS Care Records:
* Personal Demographic Service - this comprises your name, address, date of birth, NHS number and GP details. These details will be available to everyone in the NHS unless you are ’stop-noted’ (your details are hidden). Even high street pharmacists will be able to access these details. You may request your data to be stop-noted if you are a victim of domestic violence or in a witness protection program, for example.
* Summary Care Record - this includes all your major illnesses, allergies, prescriptions, etc. Unless you specifically elect not to have these clinical details uploaded to the national database, you will be presumed to have consented to them being on the database (this is called “implicit consent”). Once again, these clinical details will be available nationally. High street pharmacists are arguing that they should have access to this record and be able to amend it.
* NHS Care Records - these include all your detailed medical records, i.e. all your GP consultations, all your hospital consultations, and everything you tell your GP or consultant in confidence. These records will stored around the country in regional shared hosting centres. Patients are completely unable to opt out of having their detailed NHS Care Records stored at these centres. Primary Care Trusts and Strategic Health Authorites all share these hosting centres and records.
* Sealed Envelopes - these are supposed to be under development so that patients can restrict access to their most sensitive medical records such as mental health and terminations of pregnancy. However, even if you place your most sensitive details in these envelopes they will still be stored at the regional hosting centres; the seal can be broken by a doctor/NHS employee in an emergency. As yet sealed envelopes have not been developed and the Care Records will go live without them. (A consultants’ report said the envelopes might not work well and that sensitive data would be better stored locally.) So your detailed medical records will be widely accessible in your region.
* Hosting Centres - these are region-based. Hence all your detailed and sensitive medical records will be available at a regional level to anyone in the NHS who asserts they have a need to know. Someone in a neighbouring GP surgery or hospital will be able to access them.
* Secondary Uses Service - every time you attend a hospital appointment your post code, date of birth, GP details, consultant details, outpatient clinic, inpatient admission, procedure, cost and whether you are to be followed up is all sent by the hospital to BT. Prior to BT taking over this function your details where previously sent by the Hospital Trust to the SUS database which was run by a private company in Warwick. All these details will be stored at the regional hosting centre and can accessed by your local Primary Care Trust, Strategic Health Authority and the Department of Health via the SUS database that BT now manage. Medical researchers and even ‘Dr Foster’ are allowed access to all this personal and clinical information. For more details, read on…
Your GP is the gatekeeper for all your info. Portions of your record are only shared to other departments if there is a clinical need and then only that dept can view the info. Once care is delivered and completed it can be hidden again.
At the moment we don't have a sharing agreement set up, this is in progress. When this is set up when I open a record I would be able to see your current medication and any significant medical history. Even then individual parts of this can be hidden by the GP.
The above mentions the sealed envelope system. If I wanted to use that function I would be the subject of investigation as to why, I would then be sacked for gross misconduct as there is no reason for me to know about such issues.
That site reads as if all your info is out there by default, this is rubbish. The opposite is true. You are "hidden" by default. Also, any member of staff accessing data, or trying to access data they have no need for will be in deep trouble.
Edited by dave_s13 on Sunday 5th April 21:22
pies said:
dave_s13 said:
pies said:
Tinfoil hat nonsense....utter b0ll0x
Busa_Rush said:
Dogtags, details etched into small tags. Cheap, available where ever you are and readable by anybody who speaks english or a variation of. No computers, no security risk etc. Simples
A tattoo on your backside is what is required or a bar code with all the relevant information on.I worked with systemone for 2 years.....its has some major issues that haven't come to light yet.
Glad I got out before they do. And no I won't elaborate.
But any system thats developed by a load of first job coders working for 15k a year is bound to have problems. Before you say it isnt.....I know it is...I've met most of em.
Glad I got out before they do. And no I won't elaborate.
But any system thats developed by a load of first job coders working for 15k a year is bound to have problems. Before you say it isnt.....I know it is...I've met most of em.
cazzer said:
I worked with systemone for 2 years.....its has some major issues that haven't come to light yet.
Glad I got out before they do. And no I won't elaborate.
But any system thats developed by a load of first job coders working for 15k a year is bound to have problems. Before you say it isnt.....I know it is...I've met most of em.
15k a year? Try 12-15k (and 15k being the highest pay band after 5 years service...)Glad I got out before they do. And no I won't elaborate.
But any system thats developed by a load of first job coders working for 15k a year is bound to have problems. Before you say it isnt.....I know it is...I've met most of em.
dave_s13 said:
Also, any member of staff accessing data, or trying to access data they have no need for will be in deep trouble.
I've had the "pleasure" of talking to an NHS Admin person who had no need to have access to any such information yet they all did, and they used to take the p**s out of the patients something chronic. When told about this she thought she was telling us a huge joke about how funny this all is that there are loads of people able and happy to access this information they have no requirement to have access to etc... And their managers were trying to get them access to far more information as well.Jasandjules said:
dave_s13 said:
Also, any member of staff accessing data, or trying to access data they have no need for will be in deep trouble.
I've had the "pleasure" of talking to an NHS Admin person who had no need to have access to any such information yet they all did, and they used to take the p**s out of the patients something chronic. When told about this she thought she was telling us a huge joke about how funny this all is that there are loads of people able and happy to access this information they have no requirement to have access to etc... And their managers were trying to get them access to far more information as well.King Herald said:
Albert75 said:
Write to either your GP or the practice manager, and ask to opt out of 'The Spine'. In the letter, mention that you want your records Read coded 93C3. All conditions are give a Read code that enables the practice and/or primary care trust to search for a specific condition. For example, if you have essential hypertension, you will be given a Read Code of G20. Having code 93C3 on your medical file will indicate that you have refused permission to have your details uploaded onto the spine.
And when you're found unconscious after a car wreck, identified only by your wallet, they will have no access to any important info about you, such as allergies or whatever other important medical stuff they might need.Of course, if you have nothing of importance to record you stand to lose nothing.
elster said:
voyds9 said:
We seem to have got by with this system uptil this point, so what has changed.
Well if they had this system before it wouldn't of taken as many weeks for specialists to be able to get my records.This could well of meant me not losing my kidney.
Most people are suspicious of change in the NHS. -Understandable when the press ignore all the good news in favour of the one juicy bad news story. But what they don't see is the steady improvement that happens over time when they are only dipping in and out of the NHS occasionally.
I'm not aware of any problems arising form this system from within the NHS. Opting out just makes your health that little bit less safe if you move around the country at all.
We have much bigger concerns where patient notes are being carried around in car boots betwen clinic sites.
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