Allopurinol for Gout

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Discussion

sjc

13,964 posts

270 months

Thursday 24th January 2013
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LordGrover said:
FWIW I've suffered gout periodically over the last ten years or so, primarily around big toe left foot. Apart from ibuprofen when it gets really bad I've had no other medication. IME exercise, walking especially is the best 'treatment'. I feel like it's impossible to put any weight on my foot when I first wake with an attack, and initially it's VERY painful to get started. Once I'm moving though it eases and usually allays the pain successfully. If the swelling and redness remain I'll pop ibuprofen for a few days to reduce the inflammation.
Works for me, but maybe I'm just lucky.
Rest assured, if you can get up and walk on it( painful or not),you haven't had anything remotely like a bad attack.With an acute attack, even the thought of a bed sheet being anywhere near the area is enough to make you vomit with fear, let alone walk.
Long may that continue for you!

Paul Dishman

4,704 posts

237 months

Friday 25th January 2013
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Jobbo said:
Paul Dishman said:
You've got 6 months worth of prescriptions without having to request repeats from the GP, saving both of you time. You ought to see if its worth your while getting a pre-payment certificate which is a season ticket to pay for your prescriptions
I can request repeats from the GP online, so it's no less hassle - still got to go along in person to the pharmacy attached to the surgery, sign and pay £7.65 every 4 weeks.

Pre-payment doesn't give me any saving because I don't have any other regular prescriptions.
The only other thing I can suggest then is to get the prescriptions transferred to a more convenient pharmacy

Obiwonkeyblokey

5,399 posts

240 months

Friday 25th January 2013
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Ive been sufferng from gout like symptoms for a few years until diagnosed with Psioratic arthritis. Like you extremely painful. I recently tried Acupuncture after many years of ignoring peoples advice and it seems to help.

anonymous-user

54 months

Friday 25th January 2013
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Obiwonkeyblokey said:
Ive been sufferng from gout like symptoms for a few years until diagnosed with Psioratic arthritis. Like you extremely painful. I recently tried Acupuncture after many years of ignoring peoples advice and it seems to help.
If it's gout, then even the sight of a needle will be unbearable.

Obiwonkeyblokey

5,399 posts

240 months

Friday 25th January 2013
quotequote all
Agreed, I cant even have a bedsheet on my foot when it flares up. However the recomendation that I received was to try Acupuncture at a time when there is no flare up.

Also, much of the treatment I have received so far has also been around my back and face, with only some on my foot, the idea apparently being to create a better flow or something around the body as a whole.

I know it sounds bonkers but its genuinely helped me.

That and the Irish Spring soap.;)


anonymous-user

54 months

Friday 25th January 2013
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And the port wink

Glassman

Original Poster:

22,534 posts

215 months

Saturday 26th January 2013
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First flare up in *king ages this morning.

I knew I shouldn't have read this thread again.

irked

/Colchicine

anonymous-user

54 months

Saturday 26th January 2013
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Glassman said:
First flare up in *king ages this morning.

I knew I shouldn't have read this thread again.

irked

/Colchicine
OUCH!!!! Are you sure your allopurinol dosage is correct. How much are you on now? I know your Dr said originally the 100mg was high, but that is the starting point to be honest.

Glassman

Original Poster:

22,534 posts

215 months

Saturday 26th January 2013
quotequote all
100mg

Last night: Greek meze - squid, prawns, taramosalata, pork, keftedes, sheftalia etc... pump primed with KEO lager and food washed down with a couple of glasses of red.

Colchicine is working its magic (with a couple of anti inflam chasers)

wink





Glassman

Original Poster:

22,534 posts

215 months

Tuesday 5th February 2013
quotequote all
GP has thrown a bit of a curve ball at me this arvo.

Went in to collect some painkillers and antibiotics (not gout related) and as she was writing out the prescription she asked the usual questions, at which point I reminded her that I'm on Allopurinol and Omeprazole. She then said that while I'm on this course of anti inflams/painkillers/antibiotics, I whouldn't take Allopurinol BUT, I shouldn't really be on them unless I'm prone to frequent attacks??

I think I need a review with a specialist.

Has there been a development/new news about Allopurinol?

anonymous-user

54 months

Tuesday 5th February 2013
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Glassman said:
GP has thrown a bit of a curve ball at me this arvo.

Went in to collect some painkillers and antibiotics (not gout related) and as she was writing out the prescription she asked the usual questions, at which point I reminded her that I'm on Allopurinol and Omeprazole. She then said that while I'm on this course of anti inflams/painkillers/antibiotics, I whouldn't take Allopurinol BUT, I shouldn't really be on them unless I'm prone to frequent attacks??

I think I need a review with a specialist.

Has there been a development/new news about Allopurinol?
I have come to the enlightened conclusion that GPs are ste!!!

One Dr gives me the Allopurinol and I'm fixed. Have had no attacks since being on it.

Another Dr (I moved) says that uric levels are unconnected to gout.

Another Dr (I moved back to original place) who is newly trained says they only put people on allopurinol if you have frequent attacks. I ask is one attack a year that lasts 6 weeks good enough. He says that's fine.

It's all bks!!! Go research on the net - Allopurinol is the ONLY (or at least BEST) way to prevent frequent or sever gout .

You need it my friend.


Glassman

Original Poster:

22,534 posts

215 months

Tuesday 5th February 2013
quotequote all
I would get between one and three SEVERE attacks a year. If I count the mild ones (which felt like bruising, but definitely were gout attacks) I'd say I was averaging maybe four or five a year.

The severe attacks were unbearable. You feel like you're about to drown from having so much water in you (trying to 'flush' it out) and the pain killers just don't seem to work at times. A full-on attack almost comes with its own obligatory time which must be endured before the pain/inflammation begins to subside.

Since being on Allopurinol, I have not had an attack. But there have been one or two half attacks (and they're usually preceded by a heavy session of drinking a particularly hoppy new beer, or some industrial scale debauchery).

To be told that I shouldn't really be on Allopurinol is like asking me to play Russian Roulette!




anonymous-user

54 months

Tuesday 5th February 2013
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Seriously, you're Dr is totally bonkers. Bonkers and wrong.

We gout sufferers know what works - just take control and tell the Dr you need allopurinol.

jonah35

3,940 posts

157 months

Thursday 7th February 2013
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Glassman said:
100mg

Last night: Greek meze - squid, prawns, taramosalata, pork, keftedes, sheftalia etc... pump primed with KEO lager and food washed down with a couple of glasses of red.

Colchicine is working its magic (with a couple of anti inflam chasers)

wink


Sorry to hear of your issues glassman. However, squid, praws, pork, lager and red wine??!!

TwigtheWonderkid

43,370 posts

150 months

Thursday 7th February 2013
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A work colleague's father died of the side effects of allopurinol. Without going into horrific and alarming detail, basically his skin went to hell in a handcart. Once the process had started they were powerless to stop it.

Glassman

Original Poster:

22,534 posts

215 months

Thursday 7th February 2013
quotequote all
jonah35 said:
Sorry to hear of your issues glassman. However, squid, praws, pork, lager and red wine??!!
Started the evening with a couple of beers. We got through our starters and then I switched to wine to have with the main.

Classy, me.


TwigtheWonderkid said:
A work colleague's father died of the side effects of allopurinol. Without going into horrific and alarming detail, basically his skin went to hell in a handcart. Once the process had started they were powerless to stop it.
Oh, ok.

eek

anonymous-user

54 months

Thursday 7th February 2013
quotequote all
TwigtheWonderkid said:
A work colleague's father died of the side effects of allopurinol. Without going into horrific and alarming detail, basically his skin went to hell in a handcart. Once the process had started they were powerless to stop it.
I'd hazard a guess it wasn't quite that simple

rupert the dog

1,433 posts

217 months

Friday 8th February 2013
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As far as I can see, there's no mention on here about the use of cherry extract. I started having horrendous gout flare-ups in my 30's, which continued until a brilliant consultant gave me aa steroid jab in the arse, and then, when settled down, put me on Allopurinol. Like a fool, I decided after a couple of years that I could do without the Allopurinol, as I'd had no attacks. ONCE YOU'RE ON ALLOPURINOL, DON'T STOP! Fatal mistake, back to steroids and start again after an attack that put me in hospital. Anyway, back to the cherries, it was mentioned by another patient in hospital, and I didn't really take much notice. Then a little while later I was in a deli in Aldeburgh, abd these 3 guys about my age (including the owner, a lifeboat man) were discussing gout. Two of them had tried cherry extract, and swore by it. So, I gave it a go - montmorency cherry extract. I can't give you any proof that it works, but after a few weeks, I felt better, and I haven't had even a twinge since, and that's about five years ago. That's all. Might be worth a try for some people.

sjc

13,964 posts

270 months

Friday 8th February 2013
quotequote all
Yep, cherrys do help, fresh or dried,but the importance or regular 2+ litres a day of water cannot be underestimated.The root cause is your kidneys not doing their job,and water is grest for giving thema kick constantly.
The very reason(see my earlier post) I didn't go on Alopurinal was it really is a tablet for life.

anonymous-user

54 months

Friday 8th February 2013
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For some of us there comes a point where water and cherry juice just isn't enough.

I started suffering gout in my late 20s but it was not until 2 years ago at 48 that I had to go on allopurinol as my attacks were so bad no matter what my diet was.