Reynauds

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Discussion

Upinflames

Original Poster:

1,705 posts

178 months

Monday 20th March 2023
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I get white fingers and have for years. Anyone found anything that helps?

It's weird how it decides to come on sometimes and not others when it's just as cold. I feel like there must be a second trigger - cold + something else but I don't know what that is.

river_rat

688 posts

203 months

Monday 20th March 2023
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For me I think it's a sudden drop in core temperature which then leads to white/numb fingers.

Eg if working out/cycling on a mild day, so am hot/sweating, then stop and stay outside - core temperature quickly drops and body reacts with the white fingers. If just out in the same temperatures without the sudden change in activity level it wouldn't affect me.

It's quite annoying!

Upinflames

Original Poster:

1,705 posts

178 months

Monday 20th March 2023
quotequote all
river_rat said:
For me I think it's a sudden drop in core temperature which then leads to white/numb fingers.

Eg if working out/cycling on a mild day, so am hot/sweating, then stop and stay outside - core temperature quickly drops and body reacts with the white fingers. If just out in the same temperatures without the sudden change in activity level it wouldn't affect me.

It's quite annoying!
I know, it's a pain in the arse.

dandarez

13,282 posts

283 months

Monday 20th March 2023
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Yeah, it f annoying beyond belief!
It's Raynaud's by the way, with an 'a'.
Has become very common apparently, when I asked at the docs. Why? She had no idea (nothing new there then, but one thing has changed over the yrs, supermarkets are bloody cold places to what they used to be).

Oddly, it usually affects younger people, more especially girls/women ages 18 to 30s - typical I'm male and get it in my very late 60s and still have it in now my 70s. I met one young lady assistant in a Waitrose with it, she realised I had it when I dropped my credit card! (she told me she'd had it for 2 yres and was only 18 yrs old - christ, thank god for small mercies, I would simply have hated to have this when I was younger).

Prescribed Nifedipine at GP, until I asked if there were any side-effects? Told it was as common as 1 in every 100 people have effects like swollen eyes, headaches (I can't remember my last headache), swollen legs, constipation etc, etc.
Why the f would I take that when a couple mins in warm water restores to normal? Ok, I can't take warm water out with me, but hand-warmers or silk gloves help.

The pics below are from 3 yrs ago after coming inside on really cold day.
Then into some 'warm' water in the sink, couple mins, and 'life is restored!'
It's got no worse over 3 yrs on but no better, so all I can say is 'I hate the bloody cold! And please roll on the warm and sunny months, in fact, the hotter the better!'





mike80

2,248 posts

216 months

Monday 20th March 2023
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I get this, usually only a couple of fingers, and my right hand seems worse.

I'm a photographer (mostly sports, so outside a lot) and cyclist. Not the best combination!

SpartacusF

176 posts

53 months

Monday 20th March 2023
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Vibration is a trigger factor too, in conjunction with cold. Starting out a bit cold and getting colder is a killer, and as above, keeping a warm core helps a lot. And spending the winter somewhere hot.

cologne2792

2,126 posts

126 months

Monday 20th March 2023
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I was talking to someone on another thread and he has it to the point that he has to avoid using angle grinders or chainsaws as it aggravates the nerve endings in his fingers and causes him considerable pain for days afterward.

Conversely, A friend of mine also has it and she spends 90% of the year wrapped up like an Eskimo and 10% in her bikini on the beach.

Only then does she feel really well and relaxed.

I hadn't realised that there were different degrees of it.

Hub

6,434 posts

198 months

Monday 20th March 2023
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I've always been a bit prone to this, especially in my toes,but the last couple of winters it has been a lot worse. I seem to have permanently cold hands and feet, and the Reynauds comes on with standing on colder surfaces or if I haven't been that active (sat working from home for a few hours rather than moving about). It isn't that bad first thing in the morning but seems worse in the afternoon or later in the day. Prevention is being more active and staying warm (thicker socks etc), exercise to get the blood flowing. I could probably do with a GP checkup though...

Skyedriver

17,850 posts

282 months

Monday 20th March 2023
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This has been discussed before but my wife suffered terribly when we met about 20 years ago. Painful when they went white, even worse when the circulation was returning.
She had an operation, on NHS at the time, to "remove some nodes" I think on her spine. No longer suffers.

sutoka

4,651 posts

108 months

Tuesday 21st March 2023
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Father who is nearly 80 has had this for 50 years, sister who is nearly 40 has has it too. Both have been to the GP and been told it is hereditary and there is no cure apart from looking odd it doesn't cause any pain or discomfort.

I'm a few years younger but don't have it although I do get numbness in the tips of my fingers.

usn90

1,419 posts

70 months

Tuesday 21st March 2023
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I’m 32 and have had this for as long as I can remember, constant stone cold feet and hands, very unpleasant.

I stopped having baths because I was sick to death of feeling like my feet were being scalded stepping into the water, it was either that or have the bath like warm to the point the rest of my body feels cold, just have showers now where I can bring the temperature up as my feet come back to life.

It’s odd, if I go to bed with socks on I wake up at night as my feet then feel too hot, I guess I’m just used to them been so cold now

Armitage.Shanks

2,276 posts

85 months

Tuesday 21st March 2023
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To save writing out my response and what I thought might have been Raynauds but is actually Chilblains my thread is here https://www.pistonheads.com/gassing/topic.asp?h=0&... Lupus was ruled out with a blood test.

First started as a few spots on my little fingers a few years back and I dismissed it as a reaction/insect bite as it was painful and later itched. More recent you can see it comes back in anger and lasts several weeks. However this time it started in November and is still with me now!

I was prescribed Nifedipine even though I have slighlty low blood pressure and not sure if it's made a huge difference. I don't take pills unless I have to and didn't relish the potenital side effects but thankfully haven't got any from taking them so will persevere until it clears up (I hope).

Anyway given I've had it 5+ months went back to the GP who used the infra red temperature gun on my fingers 'Low temp' on the affected ones - no surprise as they are cold! He's decided to refer me to a consultant at the hospital rheumatology dept and I'm there in 2 weeks when no doubt it will have cleared up! Be interesting to see what they say as I show them the pictures I've taken during the various stages.

bad company

18,576 posts

266 months

Tuesday 21st March 2023
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I also have this condition. Not so much the white fingers but very cold hands & feet.

I won’t buy a car now without a heated steering wheel which seriously reduces the options.

GavC88

121 posts

141 months

Tuesday 21st March 2023
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I used to get this the whole time aged 15-22ish. Haven’t had it at all in the last 10 or so years thankfully.

Never saw a doctor, they just sorted themselves out after a while.

Four Litre

2,019 posts

192 months

Thursday 23rd March 2023
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I developed this around 5 years ago, just in fingers. Disappears in the summer and gets really annoying in the winter/ spring. I've had to buy heated grips for my motorbike and wear heated gloves when walking the dog in the winter. Literally feels like I could chop my fingers off and not feel a thing!

Waynester

6,338 posts

250 months

Saturday 25th March 2023
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Had it for years.. 51 now. I’m sure there was a previous thread about this..

I hate winter anyway, but Raynauds just makes it more miserable. I train in the gym early, usually there by 7:30am. Cold mornings, windscreen scraping, cold steering wheel etc and boom, fingers shut down. I then spend a few minutes in the gym changing room blasting my hands with the hairdryer in an attempt to get feeling & some blood flow back. Of course this is then ballsed up again by the gym usually having its cold ac on full blast, even though it’s -5 degrees outside (Pure Gym), and the equipment/dumbbells being freezing to touch!

I need summer now please

Celtic Dragon

3,169 posts

235 months

Saturday 25th March 2023
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Another sufferer here, thanks to genetics (paternal side).

Anything close to cold, and I’m reaching for ski gloves and my zippo hand warmers.

The only thing I have found that helps is exercise, as I haven’t done any for a year or so (thanks to moving during lockdown and having a house to work on), and really noticed it over this last winter.

Dad said jokingly the only temporary fix he found was chemotherapy. On that remark I’m ok with having white fingers!

BOR

4,702 posts

255 months

Sunday 26th March 2023
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This is also a symptom of an under-active thyroid, so might be worth asking for a thyroid function test for anyone with cold hands/feet.

8Ace

2,682 posts

198 months

Tuesday 28th March 2023
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I too suffer from this, genetics from my Dad. He suffers worse than me, and gets the totally white fingers which I don't, yet. I'm expecting it to get steadily worse as I age frown

For me I find that keeping my core warm is vital. If my core is warm, them my hands stay warm and usable. My hands are the first sign of cold, I can feel comfortable and not cold but my hands start to stiffen up. If I put on a jumper / move around a bit they recover. I do find that in winter I have to overdo the warm clothing, but i'd rather be too hot and be able to tie my shoelaces etc.

Strangely, my hands warm up in a very predictable way, from the little finger, ring, middle and finally my thumb / forefinger. I find this a bit puzzling as the main artery is on the thumb side of the hand, so would have expected that bit to warm up first.

Upinflames

Original Poster:

1,705 posts

178 months

Tuesday 28th March 2023
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Someone I know, a commercial diver, told me at the weekend that they (divers) take viagra for it