T1 diabetics thread

[How u doing]

Feirny said:

3rd week of omnipod now and I’m getting days and days of results like this. It’s brilliant, after 25 years of injections I’ve not had one for 23 days.

Congrats.

Going though a stressful time at the moment. BS haywire, pumping insulin like crazy, enough to fell an ox, struggling to keep it below 20 today.

[How u doing]

mike9009 said:

Feirny said:

How u doing said:

Congrats.

Going though a stressful time at the moment. BS haywire, pumping insulin like crazy, enough to fell an ox, struggling to keep it below 20 today.

You’ll get there, I was like that a month ago. Keep at it mate.

As noted in this thread about three months ago, I had a similar couple of weeks. I needed to double my daily Bolus for no apparent reason, and still had high sugars. Now back on track again after a Basal adjustment upwards. Not sure why I needed to change so dramatically though?

It will get in target again.....

Yes I know, sometimes it's easy to feel a bit maudlin about the whole thing.

I know the cause, stress, I can ride it out.

[23.7]

I tried with a Samsung android, functionality scanning etc rubbish.

Gone back to reader. Fits easily into a pocket, enables one handed scanning, driving, work gloves etc and because its light fumbling and dropping isn't a problem.

[23.7]

mike9009 said:

Those levels sound very good! Mine are often at those levels but more as a fleeting glance as the blood sugar's plummet or rise through them.

I 'think' I am experiencing the seasonal change again as I saw earlier this year. My blood sugar's keep dropping low, so adjusting basal again as I did six months ago. I wonder whether the colder temps mean my body is using more sugars to keep warm, or something like that????

Libre is giving me far more confidence in adjusting this nowadays though.....

I'm finding my physical hb1ac results are usually a couple of points lower than the libre estimate. The libre doesn't seem as accurate when readings spike, probably accounts for the difference.

I'm waiting for the lastest result as I type.

[23.7]

mike9009 said:

I have lost a stone in weight since March this year. BMI was 25.5 and I am now 23.9. I have a slight frame so this was a slight concern.

Now the daft bit, how I did it.....

When I was a kid in the 80's, whenever I was hypo, I was 'rewarded' with chocolate as the the dextrose tablets were always damp or mouldy. This habit has continued into adult life and using Libre over the last 18 months has meant more hypos (or at least more chocolate preventing the imminent hypo)

Swapped to Lucozade and the weight has been dropping off, unsurprisingly.

My dentist has warned me though!!

What does everyone else use for hypos??

Chocolate isn't a very quick acting carb. Too much fat.

Hypostop/ glucogel if sugars are dropping fast
Fruit pastilles if more of a correction
Chocolate biscuits or twix pre exercise if I want to top up.

[23.7]

I'm currently using novalog (aspart) agreed that I should try Fiasp. More front end, hoping it helps combat spikes.

[PositronicRay]

mike9009 said:

Look like I was last to post on this thread.

Anyone using Omnipod 5 yet? What is it like? It sounds like it will be rolled out to all T1s over the next few years.

I've put my name down for one, I think I'll also need to swap from freestyle to dexcom G6 for full functionality.

A younger colleague has already taken it on, still in his honeymoon period but loves the control.

[PositronicRay]

mike9009 said:

Brainpox said:

PositronicRay said:

I've put my name down for one, I think I'll also need to swap from freestyle to dexcom G6 for full functionality.

A younger colleague has already taken it on, still in his honeymoon period but loves the control.

A few weeks ago my specialist said that they should be opening up Libre to communicate with Omnipod sometime early next year so that Dexcom won't be mandatory. Enabling true CGM functionality on Libre 2 was the first step.

Thanks both,

I was told this about Libre too.

My specialist has said I need to learn how to carb count again and measure my ratios between insulin and carb. I have not carb counted for decades and just roughly 'know' how much insulin to take for a given meal or snack. Not eating out often helps this....

It might be a couple of years wait for me as my control is pretty good at the moment...Hba1c 6.8.

Please update each stage of trying omnipod....it will be really interesting.....

I hope they improve the libre accuracy, I'm on Freestle 2. The 1st 24 hrs after starting a new sensor are....erm.....interesting. i understand the dexcom to be more consisten..

[PositronicRay]

mike9009 said:

Feirny said:

Just had the approval to be put on Hybrid Closed Loop. Have to move to Dexcom from libre but I’ll be fully functional in about 3 weeks. Extremely happy and excited about it!

Have Professor Partha Kar to thank a lot for this.

Ah that's good news. Let us know how it goes.

A mate at work is on Omnipod and seems very happy about it. He suffered a lot of hypos which has now improved massively. Only negative seems to be change over times but I don't fully understand that.

I have my review next week and last time Omnipod was briefly discussed. Thing is, I worry my hba1c is too good at 49 without many hypos, to justify putting me on it.....

Similar to me, nice guidelines require an hba1c of 58 to qualify,

[PositronicRay]

Feirny said:

mike9009 said:

Had my 6 monthly review today. Now on waiting list for Omnipod, although evidently I am at the back of the queue due to my decent hba1c. Should be 6 to 8 months wait....

Quite excited about it, after 43 years of injecting insulin.

Got a stty cough at the moment which seems to be playing havoc with my blood sugars. I am almost double dosing my insulin and still they just launch upwards.... I have been told Omnipod would help sort this at times of sickness.....

If you have to wait that long, I dare say you’re waiting for HCL? Regular Omnipod is more than readily available now.
Omnipod has helped me in every area, including sickness, as you can just increase your back ground for an hour or so.

I set my basal + 30% for sickness, similar for bolus.

I also have basal programmes for stress, winter and summer (I'm more physically active during the summer)

I've also heard of people using site specific profiles too.

[PositronicRay]

Feirny said:

mike9009 said:

Ah Omnipod 5 sounds like what I am waiting for. Although I think the new libre plus (?) will interface with the Omnipod now....due to be announced soon according to my specialist....

However, I have been told I need to start learning to carb count again -so I presume the Omnipod 5 still needs carb knowledge from me rather than being completely autonomous?

Thanks for answering daft questions....

Yeah it still needs some basic carb inputs, but that’s really simple once you’re used to it.

Libre plus hasn’t had the full NHS sign off yet, as that’s what I wanted and why I have to move to dexcom, but hopefully by the time you get it Libre will be fully compatible.

That’s why we’re here, to answer the questions and help each other.

If you’re on Twitter, Partha Kar is a good man to follow. He’s the man getting all this sorted and pushed through and will happily help anyone who asks for it if he can.

That's inyrtesting re freestyle libre 2 plus, how does it vary from freestyle 3, is it going to be more cost effective therefore available to more T1?

Currently I'm on omnipod 5, but only qualify for freestyle 2 (not dexcom) so can't use its full potential.

[PositronicRay]

Feirny said:

PositronicRay said:

That's inyrtesting re freestyle libre 2 plus, how does it vary from freestyle 3, is it going to be more cost effective therefore available to more T1?

Currently I'm on omnipod 5, but only qualify for freestyle 2 (not dexcom) so can't use its full potential.

Sorry I thought I’d replied to this!

Not sure how the libre differ from one another, but the 2+ is compatible with the Omnipod 5 for HCL.

I’ve been on closed loop now for 2 weeks and noticed a slight difference, it’s pretty good at what it does and is eradicating a few silly highs I tend to get.

My time in range has gone from 64% up to 76% and I think itll keep climbing.

I was moved from Libre to Dexcom purely for the HCL but think I may prefer the dexcom as it’s more stable than libre!

Th useful info, I'll contact the diabetic clinic and see if I'm eligible to upgrade from libre2 to 2+

[PositronicRay]

Hybrid closed loop imminent.

Software upgrade on omnipod 5 PDM last week, just waiting for compatible libre 2 plus sensors.

[PositronicRay]

Feirny said:

PositronicRay said:

Hybrid closed loop imminent.

Software upgrade on omnipod 5 PDM last week, just waiting for compatible libre 2 plus sensors.

Great news! Just give it a little bit of time to settle, things aren’t instant with it.

Thx, the kits arrived but I'm going to delay deployment for a few days. 2 x major nights out and a wedding to attend.,

[PositronicRay]

mike9009 said:

sammyb349 said:

Hi guys.

Just found this discussion. Type 1 here since 2007. On insulin pump for last 8 years - currently running the Tandem T-Slim with Dexcom G6 closed loop integration (fantastic).

I am patiently waiting for the new tandem pump and Dexcom G7 - which is expected some time before Xmas (G7 is already available but closed loop isn’t signed off on it yet).

My control has been much better since I lost a load of weight last year, but has again been creaping back up - when loosing weight I went almost totally carb free which was actually fantastic. I have now brought carbs back, which obviously adds volatility to my BG control.

My Hba1c is 6.7% currently and spend 80% in range which I’m pretty happy with

Welcome!! Only a few of us regularly contribute so always good to have another view and experience on things.

6.7 is great. I am around that value most the time nowadays with old fashioned manual injections and control. I still eat carbs regularly through each day too......

I am a data fiend (geek?) so the big difference for me was going on libre 4 years ago. My Hba1c dropped from 8.0 ish to 6.7 ish.

It does make me question, if going on omnipod, whether it could get my hba1c better? Or would it just make life easier overall??

When I transitioned from MDI to omnipod my HBa1c improved slightly. Overall convenience much better, but also ability to adjust basal for activity, stress and time of day.

[PositronicRay]

PositronicRay said:

Feirny said:

PositronicRay said:

Hybrid closed loop imminent.

Software upgrade on omnipod 5 PDM last week, just waiting for compatible libre 2 plus sensors.

Great news! Just give it a little bit of time to settle, things aren’t instant with it.

Thx, the kits arrived but I'm going to delay deployment for a few days. 2 x major nights out and a wedding to attend.,

Trying to pair all the kit and failing

Libre 2 plus, only pairs with the omnipod PDM when you have no disable pod and all good BG shows on PDM, but the system won't pair to a fresh pod.
Switch back to manual mode and no BG readings. Driving me nuts, wasted a few pods so far.

[PositronicRay]

PositronicRay said:

PositronicRay said:

Feirny said:

PositronicRay said:

Hybrid closed loop imminent.

Software upgrade on omnipod 5 PDM last week, just waiting for compatible libre 2 plus sensors.

Great news! Just give it a little bit of time to settle, things aren’t instant with it.

Thx, the kits arrived but I'm going to delay deployment for a few days. 2 x major nights out and a wedding to attend.,

Trying to pair all the kit and failing

Libre 2 plus, only pairs with the omnipod PDM when you have no disable pod and all good BG shows on PDM, but the system won't pair to a fresh pod.
Switch back to manual mode and no BG readings. Driving me nuts, wasted a few pods so far.

ETA, I think it's sorted. Older omnipod 5s aren't compatible, I've opened a fresh box and seems to be pairing OK.

[PositronicRay]

mike9009 said:

Had my first on line delivery of insulin....my gawd how much packaging?

Got sent this article today which looks pretty interesting ...

https://www.theguardian.com/society/article/2024/a...

The level of research is stunning, bring it on!

[Huzzah]

I've been using omnipod 5 & Libre 2+ in a hybrid closed loop for the last 8 months. A different mindset and takes a little getting used to, definatly not fit and forget. But controls overnight BG so well I turn alarms off and get a better night's sleep.

Overall less corrections, TIR mid 80s easily achievable with the odd week in the 90s. Activity mode terrific, but can lead to post activity highs.

[Huzzah]

Milnsey said:

Huzzah said:

I've been using omnipod 5 & Libre 2+ in a hybrid closed loop for the last 8 months. A different mindset and takes a little getting used to, definatly not fit and forget. But controls overnight BG so well I turn alarms off and get a better night's sleep.

Overall less corrections, TIR mid 80s easily achievable with the odd week in the 90s. Activity mode terrific, but can lead to post activity highs.

How long did it take to get used to please and what initial difficulties did you experience ? Asking on behalf of my son

The 1st few weeks were frustrating, several months before I really became comfortable.

The tech is brilliant but imperfect, as things move on I expect it to improve.