Prostate cancer
Discussion
I am not affected by this myself, but had a mate go through it, and you folks really helped me empathise with his situation over the last year or so.
Just wanted to add a link to a radio series about men and cancer, mainly prostate cancer, in case it's of use.
I've listened to it all, and found it chimes with the messages and info you all share here.
It's mainly about prostate cancer, but not exclusively. The presenter is a comedian, who has had it and he and his interviewees are open and honest about it.
This is Episode 1 of - Jon Holmes Says the C-Word
1. You Might Feel a Bit of a Prick
https://www.bbc.co.uk/sounds/play/m0020yrm
Just wanted to add a link to a radio series about men and cancer, mainly prostate cancer, in case it's of use.
I've listened to it all, and found it chimes with the messages and info you all share here.
It's mainly about prostate cancer, but not exclusively. The presenter is a comedian, who has had it and he and his interviewees are open and honest about it.
This is Episode 1 of - Jon Holmes Says the C-Word
1. You Might Feel a Bit of a Prick
https://www.bbc.co.uk/sounds/play/m0020yrm
Bit of an unwelcome jump in my 6 monthly routine PSA test.
A couple of tests ago (late 23) it had gone down slightly from over 5 (early 23) to just under 5.
Six months ago was 6.59 and the result now is 7.91, which has triggered a referral back to urology as over 7.5 (I'm 67). Tests, inc biopsy, in early 23 didn't reveal anything.
Quack asked if I'd noted any changes and can't say I have - I was concerned about general stiffness and dull ache around my lower back etc but consultant in early 23 waved them away as unconnected.
Particularly frustrating as wife is (hopefully) getting to the end of 2yrs of messing about with one of her eyes so we haven't been able to do or plan much while that's been going on - just cancelled a week's holiday we had booked for early Oct as they used long-lasting gas for her last op and the holiday was just within the no-fly window.
A couple of tests ago (late 23) it had gone down slightly from over 5 (early 23) to just under 5.
Six months ago was 6.59 and the result now is 7.91, which has triggered a referral back to urology as over 7.5 (I'm 67). Tests, inc biopsy, in early 23 didn't reveal anything.
Quack asked if I'd noted any changes and can't say I have - I was concerned about general stiffness and dull ache around my lower back etc but consultant in early 23 waved them away as unconnected.
Particularly frustrating as wife is (hopefully) getting to the end of 2yrs of messing about with one of her eyes so we haven't been able to do or plan much while that's been going on - just cancelled a week's holiday we had booked for early Oct as they used long-lasting gas for her last op and the holiday was just within the no-fly window.
kdri155 said:
It's been a while since i last posted on this topic, pleased to see so many of you have been successful in your treatment though.
As for myself its a different story, quick reminder I was diagnosed in June 2022, had the usual tests and Robotic Prostatectomy in December 2022, initially all seemed well both treatment and recovery but along the way I've had a few issues, recurrent bladder cancer, 3 times now, gall bladder cancer so gall bladder removed, partial Nuphrectomy (kidney) removal, cancer has also spread to my left thigh, pelvis and lower back.
I've had a couple of sessions radiotherapy, chemo and hormone treatment and now on a management plan to help slow things down before the inevitable, but life goes on until it doesn't.
Please dont read this wrong as its not a sympathy seeking post, I've become a bit of a bore telling everyone i met whilst working to get themselves checked.....we men just need to talk to each other please pass on how important it is.
Anyway good luck to each and everyone of you in the future,.
Best of luck to you. As for myself its a different story, quick reminder I was diagnosed in June 2022, had the usual tests and Robotic Prostatectomy in December 2022, initially all seemed well both treatment and recovery but along the way I've had a few issues, recurrent bladder cancer, 3 times now, gall bladder cancer so gall bladder removed, partial Nuphrectomy (kidney) removal, cancer has also spread to my left thigh, pelvis and lower back.
I've had a couple of sessions radiotherapy, chemo and hormone treatment and now on a management plan to help slow things down before the inevitable, but life goes on until it doesn't.
Please dont read this wrong as its not a sympathy seeking post, I've become a bit of a bore telling everyone i met whilst working to get themselves checked.....we men just need to talk to each other please pass on how important it is.
Anyway good luck to each and everyone of you in the future,.
And I echo the testing mantra.
kevinon said:
I am not affected by this myself, but had a mate go through it, and you folks really helped me empathise with his situation over the last year or so.
Just wanted to add a link to a radio series about men and cancer, mainly prostate cancer, in case it's of use.
I've listened to it all, and found it chimes with the messages and info you all share here.
It's mainly about prostate cancer, but not exclusively. The presenter is a comedian, who has had it and he and his interviewees are open and honest about it.
This is Episode 1 of - Jon Holmes Says the C-Word
1. You Might Feel a Bit of a Prick
https://www.bbc.co.uk/sounds/play/m0020yrm
This is excellent. A warm and informative listen.Just wanted to add a link to a radio series about men and cancer, mainly prostate cancer, in case it's of use.
I've listened to it all, and found it chimes with the messages and info you all share here.
It's mainly about prostate cancer, but not exclusively. The presenter is a comedian, who has had it and he and his interviewees are open and honest about it.
This is Episode 1 of - Jon Holmes Says the C-Word
1. You Might Feel a Bit of a Prick
https://www.bbc.co.uk/sounds/play/m0020yrm
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
Is anyone else doing the Run 50 Miles in October for Prostate Cancer Research?
I'm going to row it as running is too high impact for my knees.
https://www.prostate-cancer-research.org.uk/run-50...
Fundraising is going well - I'm at £2.5k so far. I now just have top do it!
I'm going to row it as running is too high impact for my knees.
https://www.prostate-cancer-research.org.uk/run-50...
Fundraising is going well - I'm at £2.5k so far. I now just have top do it!
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
Great news! My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
good news, long may it continueMy oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
westberks said:
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
good news, long may it continueMy oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
JeremyH5 said:
westberks said:
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
good news, long may it continueMy oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
Viper201 said:
JeremyH5 said:
westberks said:
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
good news, long may it continueMy oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
Ive been looking up a few things here, a friend has been told that they have found cancer on his penis, Now this apparently is very rare indeed. Just had diagnosis and is going through treatment plans.
Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
AstonZagato said:
My latest update (2023 diagnosed with Stage 4: spread to bladder, muscle and lymph nodes; inoperable; incurable; Gleeson of 10):
My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
Hopefully you have loads of years ahead of you az , everything crossed for you My oncologist is pleased at my 3 month checkup. My PSA is 0.03. Other bloods are normal. The side effects of the drugs that keep it that way are minimal. I'm totally over the radiotherapy. I'm leading a normal(ish) life and the drug stats suggest I could have a good number of years if I'm lucky. Quite happy with that.
ruggedscotty said:
Ive been looking up a few things here, a friend has been told that they have found cancer on his penis, Now this apparently is very rare indeed. Just had diagnosis and is going through treatment plans.
Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
Had a call yesterday from my housekeeper. She'd been thinking she had kidney stones. Went for a scan yesterday afternoon. Suspected pancreatic cancer.Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
Everyone needs to be careful
AstonZagato said:
ruggedscotty said:
Ive been looking up a few things here, a friend has been told that they have found cancer on his penis, Now this apparently is very rare indeed. Just had diagnosis and is going through treatment plans.
Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
Had a call yesterday from my housekeeper. She'd been thinking she had kidney stones. Went for a scan yesterday afternoon. Suspected pancreatic cancer.Im a bit taken back by it, right out of the blue really...
Gents we need to keep a better check on our bits and pieces....
Everyone needs to be careful
Firstly many thanks astonzagato and damplogs for answering my pms most helpful.
Some medical history first.
l had cauda equina in 2010. Basically everything below your belt is out of control ....emergency bilateral discectomy, but chronic pain is still there, from my back down left leg 24/7
Finished work at just 57 to concentrate on getting my life back. 2015 fitted with Nevro Spinal Cord stimulator cost £35k brilliant kit. Device under skin left side of my skeleton two cables go up the epidural ,one cable covers the leg and other the back.
I can remotely change the program. Charges everyday through my skin.
I came to have a PSA as a good friend turned up at our indoor rifle club to say btw l have Prostate Cancer with a PSA of 124!! I thought christ thats mad. He has had the Radio and hormone jabs. He is still here 2 years after initial, so good.
So went to the GPs, with zero symptoms only to be presented with a stunning blonde todo the DRE she thought was ok had PSA blood test 5.0 then 4.6 then 6.1 , 6.2 oh shhhit.
Then the fun you need an MRI , eeer North Wales won’t do it due to the Nevro kit, soooo very long story short go to Leeds where the device was fitted. Everyone was really kind and all done.
Welsh NHS say report from Leeds not received. l ring Leeds they then print off everything then scan it and send it to my consultants secretary , this Is March…. was told I had Cancer on 30th July by a specialist nurse , she was very good at last someone with a brain cell. She told me scans not seen by Welsh MDT and they needed them to ensure the cancer was not in outer tissue.
..consultants secretary wrote to Leeds 31st July for the scans…..l would not mind but I told them they needed the scans back in April …
I was quite keen on Cryotherapy but told by Welsh NHS not approved!! Spoke to charity PROST8 they sent my biopsy histology to Prof Ahmed of Imperial College London came back to say he thought Brachytherapy would be better for me with minimal side effects.
Fast forward to Thursday 3rd Oct see Dr Nikell Oomen at Glan Clwyd Cancer Centre He listened to my concerns about all the treatments and is going to refer me to Christies for Brachytherapy. But he could not do it as he needed the MRI scans from Leeds, and the histology for the biopsy at Bangor.
Slowly but surely we will get there.
Some medical history first.
l had cauda equina in 2010. Basically everything below your belt is out of control ....emergency bilateral discectomy, but chronic pain is still there, from my back down left leg 24/7
Finished work at just 57 to concentrate on getting my life back. 2015 fitted with Nevro Spinal Cord stimulator cost £35k brilliant kit. Device under skin left side of my skeleton two cables go up the epidural ,one cable covers the leg and other the back.
I can remotely change the program. Charges everyday through my skin.
I came to have a PSA as a good friend turned up at our indoor rifle club to say btw l have Prostate Cancer with a PSA of 124!! I thought christ thats mad. He has had the Radio and hormone jabs. He is still here 2 years after initial, so good.
So went to the GPs, with zero symptoms only to be presented with a stunning blonde todo the DRE she thought was ok had PSA blood test 5.0 then 4.6 then 6.1 , 6.2 oh shhhit.
Then the fun you need an MRI , eeer North Wales won’t do it due to the Nevro kit, soooo very long story short go to Leeds where the device was fitted. Everyone was really kind and all done.
Welsh NHS say report from Leeds not received. l ring Leeds they then print off everything then scan it and send it to my consultants secretary , this Is March…. was told I had Cancer on 30th July by a specialist nurse , she was very good at last someone with a brain cell. She told me scans not seen by Welsh MDT and they needed them to ensure the cancer was not in outer tissue.
..consultants secretary wrote to Leeds 31st July for the scans…..l would not mind but I told them they needed the scans back in April …
I was quite keen on Cryotherapy but told by Welsh NHS not approved!! Spoke to charity PROST8 they sent my biopsy histology to Prof Ahmed of Imperial College London came back to say he thought Brachytherapy would be better for me with minimal side effects.
Fast forward to Thursday 3rd Oct see Dr Nikell Oomen at Glan Clwyd Cancer Centre He listened to my concerns about all the treatments and is going to refer me to Christies for Brachytherapy. But he could not do it as he needed the MRI scans from Leeds, and the histology for the biopsy at Bangor.
Slowly but surely we will get there.
Edited by Penrhyn on Sunday 6th October 14:18
Penrhyn said:
So went to the GPs, with zero symptoms only to be presented with a stunning blonde todo the DRE she thought was ok had PSA blood test 5.0 then 4.6 then 6.1 , 6.2 oh shhhit.
My first PSA in early 23 was just over 5, then later 23 was just under 5. This year I had 6.59 six months ago and just had 7.91. I'm 67.Did you miss a biopsy step out of your timeline or did they diagnose just on the MRI? Urology at Chester did an MRI two days after GP referred back due to PSA above 7.5, and they tentatively arranged a biopsy pending MRI result. I had the biopsy this week and am waiting for results of that.
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